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aikiducky

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Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    Open Original Shared Link I hope the link works, this is the NIH consensus statement on Celiac disease, you can't get much more official than that, and it clearly states that all testing should be done while the patient is still consuming gluten. Hope this helps. Pauliina
  2. aikiducky
    I recognize that as well, although in my case it's often more of a sudden angry madness, or a sudden drop into a depression... but I also have that not bearing to be touched. It's weird because at the same time I'd really like to be comforted and reassured but I just can't bear any sudden touching...my husband can hug me if he does it very slowly and gently...
  3. aikiducky
    I remember someone on this board had this system for themselves that went like: Food can be divided into three groups: 1. Food that you are absolutely sure is gluten free 2. Food that you don't know for sure whether it's gluten free or not 3. Food you know isn't gluten free Only eat food from group 1. Really it's just a fancy way of...
  4. aikiducky
    Some people have no symptoms at all, but have total villous atrophy (meaning their intestine is as damaged as it can get). Other people have crippling symptoms but their intestine only shows minor damage. And every variation of the above. Severity of symptoms doesn't equal severity of damage. Some people start reacting much more strongly once they have...
  5. aikiducky
    Either you eat beforehand, or bring something of your own. I always talk with the chef themselves or a manager, never just a waiter...and sometimes they are well up to date with cooking safely for me, in which case I can eat there, and if they can't guarantee a safe meal for me they usually don't have a problem with me eating my own snacks while the people...
  6. aikiducky
    DarkIvy, YOU GO GIRL! What a terrific attitude you have! Pauliina
  7. aikiducky
    Yep, "suitable for coeliacs" is usually a red flag for me. Ironic... Pauliina
  8. aikiducky
    Rusla, I found this for you for Denmark: Open Original Shared Link There's a restaurant text and a list of shops, and a list of relevant words in English-Danish, etc. If you need a translation of something on the site, just ask, I can read danish reasonably well (it's close enough to swedish). I really like Copenhagen, and Danish people...
  9. aikiducky
    Yup, quite a few ciders have barley malt in them. Cider is one of those products where you have to know which brand to get. Pauliina
  10. aikiducky
    Glad to hear you're working and doing so well! And that yoghurt is doing you good! I've heard that beef is often hard to digest, like people who haven't eaten it for a while are advised to build up and only eat a little bit at first. And maybe the Arbys beef is a better quality? Pauliina
  11. aikiducky

    ARCHIVED Dating?

    aikiducky replied to JamiD's topic in Coping with Celiac Disease

    I think you'll see that in a year or so, you'll feel much better about the whole thing. You'll have the diet down to routine, and hopefully won't have so many symptoms to worry about. I think you might be right to think that it's just too early right now. Going gluten free is a big change, you need to give yourself time to deal with it not only physically...
  12. aikiducky
    Congratulations! Pauliina
  13. aikiducky
    Or skip the vinegar all together... I don't like vinegar, I find it too acidic in taste, so I just use lemon juice. Olive oil, lemon juice, a bit of salt, and some herbs is my staple dressing recipe. I don't even make it before hand, just sprinkle everything on top of the salad and then toss. Pauliina
  14. aikiducky
    Did you take the B12 in a pill? If your intestine isn't absorbing properly it might be that you didn't absorb the vitamin. Some people take shots, or let the vitamin dissolve under the tongue - it gets straight into the blood stream. What more can I think about...you might also be deficient in other nutrients I guess, is it possible to get tested for...
  15. aikiducky
    Elevated Igg alone is by a lot of doctors not considered strong enough evidence of celiac, which may explain why it wasn't investigated further. I think anybody with elevated anti-gliadin Igg would be wise to at least try the gluten free diet though (just my opinion). And I do think that it warrants further testing, I really do think they were negligent not...
  16. aikiducky
    My husband eats gluten and we don't have a dishwasher. We use the same cutlery and plates and glasses etc. but we both have our own teflon pans, because it's one less thing to think about. I mostly just cook stirfrys for myself so I'm good with one pan, not a major investment I thought. Pauliina
  17. aikiducky
    You should certainly also check that your not anemic again. This soon into the diet your probably not absorbing nutrients very well yet so it wouldn't be that surprising. And do you take a vitamin B supplement? That can also help with exhaustion. The bloating could be some other food besides gluten as well, it might be that there is something else you also...
  18. aikiducky

    ARCHIVED Still Having Stomach Problems

    aikiducky replied to sfm's topic in Doctors

    You could ask them to look for signs of past inflammation in the small intestine... like abnormal cells in the intestinal walls and other small changes that may still be visible even though your intestines may have mostly healed in the six months. That might be a clue that there has been celiac damage before you went gluten free. Pauliina
  19. aikiducky
    I'm afraid you might find with time that continuing to bake with regular gluten flour and not getting sick from it from time to time is not really possible. Flour gets airborne and settles everywhere, and as you said it's difficult to clean everything thoroughly. Take care to clean your hands very very well, especially under your fingernails! Wearing a mask...
  20. aikiducky
    Betty, I eat rice cakes with nut butter and deli meat for breakfast, plus two pieces of fruit, like a banana and an apple for example. Or I mix apple sauce and coconut milk and have that with gluten free corn flakes. If I have a long day ahead of me I like to have dinner for breakfast, so stir fry veggies and meat. :)If I know I'm going to be in a hurry...
  21. aikiducky
    I don't have a study for you to quote, but I know that here in Holland, quite often people do a gluten challenge with pure gluten powder. Sometimes here they do a gluten challenge with small children because sometimes there's some doubt as to whether they have celiac or whether they just reacted to wheat etc. because their intestines weren't "ripe" enough...
  22. aikiducky
    I've been casein free for a couple years now, and if anything, I'm more sensitive to it (just like with gluten), although my reactions are not as violent any more as they once were (also just like with gluten). I did eat goats cheese up till two weeks ago, but I've stopped that as well for now and I'm planning to reintroduce it in a month or so to see if...
  23. aikiducky
    Murpf, it really is 1 in 133 with active celiac. As to the genes, about 40% of the population have the genes to potentially have celiac activated, but as you see, about 1%-and-a-bit actually get celiac. It's really much more common than people think! I'm not saying that you were advocating not going gluten free...just wanted to clarify in case someone...
  24. aikiducky
    I actually think it's probably easier to find a celiac knowledgeable doctor in Sweden than it is in the US... I don't know how the Swedish health system works, but can you ask to be referred to a gastrointestinal specialist? There must be some kind of a Swedish society for celiacs I think and they would probably know who the most knowledgeable people are...
  25. aikiducky
    Could you post the exact test results? Which tests did they run at the time? And why Oh why didn't anyone send you to a GI doc for a biopsy at the time?!? I mean, they find out you have a serious health problem but never even mention it, let alone tell you that it's controllable by diet? Sheesh. OK, if you are still eating gluten, you can request another...
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