Jump to content

aikiducky

Advanced Members
 View Profile  See their activity

  • Posts

    1,033

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    Christine, inflammation can be a sign of celiac. And the other thought I had - there's no reason the cappucino couldn't have been cross-contaminated, with bread crumbs or cookie crumbs for example. Many people find that after going gluten free, they start to react very strongly even to minuscule amounts of gluten. Pauliina
  2. aikiducky
    You might feel like you need a piece of paper to convince other people, but are you actually going to go around waving that piece of paper at them if they doubt you? the only thing that is needed for other people to believe you is that you need to be convinced yourself. People pick up on those things subconciously, if you just say firmly, I can't eat gluten...
  3. aikiducky
    For what it's worth, I think you should pursue testing. It sounds like this doctor might be more knowledgeable? Also, if you indeed have celiac and you have been eating gluten all this time, it might be that the damage to your intestine has now progressed to the point that it's detectable. And the IGA deficiency thing is definitely worth checking out. ...
  4. aikiducky
    My symptoms are also worst about a week after being glutened. First I feel bad for a couple days, then I start to feel better, then a week from the glutening I feel the worst, and after that start to feel better quickly. Finally everything returns completely to normal three weeks after. I used to think it had to be something else as well, until I started...
  5. aikiducky
    I haven't taken part in this particular discussion because my doctors suit me (I don't know whether they are good or bad, but they suit me ). All I wanted to say was, VENT ON. You all have a right to your own feelings, and if it makes you feel even a tiny little bit better to get them out here once in a while, I say go right ahead. And for the people...
  6. aikiducky
    FWIW, I think your approach was entirely sensible. Try the diet, see what happens, try gluten again see what happens, do the testing. I don't see how you could possibly test it more, except for maybe testing again in a few years just in case. I just wanted to comment on one little thing: I don't know about Lapps, but Finnish people in general eat...
  7. aikiducky
    The tricky thing with being glutened, and depressed, is that it affects your ability to make good decisions. For example, I'd never eat gluten on purpose - but when I've been glutened, I might eat something that I'm not 100% sure of, something I'd normally never do. Knowing this helps me avoid it though. Pauliina
  8. aikiducky
    Would it help you to know that you're feeling depressed because the gluten (or the reaction to it) is messing with your brain chemistry? Next time you want to "comfort" yourself with gluten food, remember it's going to make you feel even more depressed. It's hard to believe before you have experienced it, but once you've been gluten free for a good while...
  9. aikiducky
    When people ask me what I can eat, I often say "a kinda asian diet, rice and veggies". That often gets people to think more positively about the whole thing, after all, millions of asian people aren't complaining... And then they often say something like, oh I love sushi, or something, and I'm off the hook. Pauliina
  10. aikiducky
    Yes, in the absense of gluten, antibodies should go down, and if damage has healed, the numbers indicating damage should go down. Keep up the good work! Pauliina
  11. aikiducky
    Lettuce goes right through me, too, but iceberg salad for instance doesn't. So it might depend on which green leafy veggie you use for salads. I like a banana and a very ripe pear for breakfast, those seem very easy on my tummy first thing in the morning. Pauliina
  12. aikiducky

    ARCHIVED Nausea

    aikiducky replied to laurelfla's topic in Related Issues & Disorders

    I had mild nausea for I think eight months or so after going gluten free, then it started to get less, and now after 15 months it's completely gone, unless i get glutened. Pauliina
  13. aikiducky
    How long it's going to take to get better has been up a lot lately, so I pricked my ears when I came across this just now : "I’ve increased the [follow-up] biopsy interval from one to two years because only 40% of people had complete recovery after 12 months gluten-free." This was in an article on the celiac.com site, by William Dickey, a gastroenterologist a...
  14. aikiducky
    Did you always eat lettuce? Or is it something you recently added? Lettuce goes right through me, for some reason, it just gives me instant D even when I'm otherwise fine. I have a vague recollection of once reading that there would be a micro-organism living on lettuce that most people are just fine with but then some people aren't and that gives them D...
  15. aikiducky
    I've only had these from anyone ONCE. After I get through explaining to them why NOT, they have a glazed expression, mumble something polite confusedly and never ask again. You know, my sister studies health bio sciences, and I just got into my explanation of IGG and IGA and IGE reactions, and she kept nodding, and then I realised that she actually...
  16. aikiducky
    Many people find that their symptoms get worse before getting better after they go gluten free. I'd give it a bit more time. When I first went gluten free, I felt like I could have slept all day, and I was hungry all the time. I hope you start to feel better soon! Pauliina
  17. aikiducky
    Your doctor seems to be confused. After six months on a gluten free diet, blood work SHOULD be negative. That's exactly what is supposed to happen! And if your daughter is still on a gluten free diet, her biopsy should also be negative. It would definitely be a good idea to talk with a doctor who knows more about celiac disease! Pauliina
  18. aikiducky
    I hadn't noticed this thread before... I've tried oats before when I've been on holiday in Finland. They we're grown on dedicated fields, and milled separately, iirc. I didn't have any reaction, and I usually react to the smallest amounts of gluten. I do wonder if the oats some of you tried really were that pure? All that said, I'm not going to go to...
  19. aikiducky
    Not that I'm a doctor, but what you're describing sounds an awful lot like the very first signs of damage in the intestine. Some doctors still won't diagnose celiac until the intestine is completely damaged, but with a positive ttg, I personally would think that it would be wise to try the diet. I bet it would make you feel better. Pauliina
  20. aikiducky
    I just wanted to add a voice of support. I agree with the two previous posters, I also had similar symptoms for the first few months after going gluten free. Your children are very lucky to have a family that is taking this so seriously! It sounds like you're doing a great job, just give it time ( a lot of time!). Pauliina
  21. aikiducky
    Ursula, something you should keep in mind now: after eating that bit of pizza, you can expect to have some kind of symptoms for quite a while. The D might pass quickly, but you're probably going to feel all kinds of weird vague things in the weeks to come. I bet the reason you've had more pains lately was the cross contaminated french fry, too. I usually...
  22. aikiducky
    Casein gives me constipation, mostly. And gas... Pauliina
  23. aikiducky
    I don't have it right here, but I recently saw a statistic by a Dutch celiac expert saying that (this is from memory) only 40% of patients with slight vili damage (Marsh 1) have positive blood tests, Marsh 2 it's 60% or thereabouts and it's only the people with total vili damage where the blood tests are as accurate as they are advertised to be. In other...
  24. aikiducky
    Great article. Nancy - by taking part in this board, you're probably helping more people than you can imagine. Just think about that. Pauliina
  25. aikiducky
    Hi everyone, and merry christmas! My mom makes ginger tea by boiling some fresh ginger in water, then making tea with the water. It's delicious. It doesn't have to be done by a company, you can do it yourself! Pauliina so far, having a delicious holiday, knock wood...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.