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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by 1desperateladysaved
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ARCHIVED Is There Such A Thing As Low Igg?
1desperateladysaved posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have heard that low IgA can void the test results for gluten antibody. The alternate or the test that works together with it looks for IgG antibioties. I am wondering if this can also be lacking in our bodies? If you have the same question, let me know, or stay tuned. I am going to ask the nurse about this tomorrow. If you know the answer, let... -
ARCHIVED Sad, Frustrated, Need Support
1desperateladysaved replied to argybargy's topic in Coping with Celiac Disease
If my kitchen had "gluten crumbs everywhere," I would set up a gluten free kitchen somewhere else in the house or outside. A table works as a countertop. A huge pot is my sink. Then, all it takes is an electric plug in skillet and some utensils. The skillet functions best as a fry pan, but on occasion I have baked potatoes in there. To do that I cover... -
ARCHIVED Getting Too Comfortable
1desperateladysaved replied to KMMO320's topic in Coping with Celiac Disease
I am sorry, I don't remember the brand. I bought it from a vending machine, read the label, and tried to give it away. However, my friend wouldn't take it, so I set it down by the machine and left. Most brands of water do not add it. But really my only point is to read every label which should not hurt. If anyone does know a brand name, let us know. -
ARCHIVED Sad, Frustrated, Need Support
1desperateladysaved replied to argybargy's topic in Coping with Celiac Disease
Since you are doing the cooking, can't you just make gluten free? Meat and vegetables are gluten free. I make excellent muffins out of almond flour. Even my family likes these, but one. Hang in there. My family is not completely on board, but it is getting better. My husband finally agrees that I do have a problem with gluten. He realizes things... -
ARCHIVED Hi Diagnosed Celiac 3 Months Ago
1desperateladysaved replied to horseatemymoney's topic in Coping with Celiac Disease
I am so happy you got your diagnosis and are working on being gluten free! Perhaps, with your way of telling the story, you could do a blog. I hope you are able to laugh at yourself some. Instead of dairy I use nut milk, coconut milk, or almond milk. I would stick to eating a nutrient dense diet. Get rid of junk foods and put in meat, vegetables,... -
ARCHIVED Getting Too Comfortable
1desperateladysaved replied to KMMO320's topic in Coping with Celiac Disease
Oops, yeah always read the label like you said. The last one I missed was bottled water. I found eventually that it had added ingredients, but thankfully none disagreed with me. Shew! I had seen one brand of bottled water with wheat added several months back. Just to clarify, I haven't found any since, so I think it is unusual. D -
ARCHIVED Half-Year Follow-Up: Peristsing Fatigue Attacks
1desperateladysaved replied to Em314's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My fatigue finally cleared after I eliminated foods I was intolerant to, and took B12 and Enzymes. Have you tried those? -
ARCHIVED Gluten Free For A Week, All Symptoms Gone! Possible?
1desperateladysaved replied to animmunetarget's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Question is, Is it even possible to respond to a gluten-free diet that quick? Any thoughts? My MD doctor claimed that I should feel better from the very first day. Well, I felt pretty good the first 4 days. I had withdrawal/cross contamination issues after that. I hope you will be able to skip that. I have damage that is taking longer to go away,... -
ARCHIVED Am I Crazy?
1desperateladysaved replied to Ol-Mauri's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As soon as you are done testing, the real gold standard test is to try the diet for several months. I hope you will get some definitive answers. D -
ARCHIVED Could I Be Celiac?
1desperateladysaved replied to tljfe9's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Greetings! I hope you will get some definitive answers soon. I did have extreme thirst without having diabetes and have been diagnosed as having celiac. My symptoms included bloating, brain fog, and extreme fatigue. My bloating occurred without pain. I am sensitive to scents and fungi. These also make me bloat. I think many of your symptoms could... -
Celiac Disease And Multiple Food Intolerances
1desperateladysaved commented on jebby's blog entry in The Patient Celiac
This are interesting pictures. I get the shortness of breath and some interesting swelling lately. I never use to notice, because I was always that way. I didn't have the classic diarrhea symptom- until I went gluten free. Now I react that way when I get gluten. I will be interested to know more about this as you get it out. I am intrigued by the food... -
ARCHIVED Anyone React To Soda?
1desperateladysaved replied to GFreeMO's topic in Super Sensitive People
I think I even react to carbonated water. I left root beer and coke behind a couple decades ago. I like to make smoothies with coconut milk and frozen fruit. Oh, I put in a little of home-grown honey if I feel like it. Tonight's was fresh raspberry and it was delicious! I wasn't even sad seeing someone else having ice cream. Mine tasted better! D -
ARCHIVED Does Anyone Have A Child With Autism Or Adhd And Celiac Disease?
1desperateladysaved replied to dotsdots's topic in Parents, Friends and Loved Ones of Celiacs
Oh, I hope you and your family can be helped by your discovery! It is exciting to think you may delivered from your symptoms. -
ARCHIVED Resurrecting The Celiac-Mono-Fatigue Connection
1desperateladysaved replied to AlwaysLearning's topic in Related Issues & Disorders
I believe I had symptoms early, such as I lost the enamel off my teeth, but it was after a bout of mono there were undeniable symptoms. I noticed bloating, fatigue, and sensitivity to perfumes and cigarette smoke. I am currently thinking that the celiac brought on the stress that allowed the mono to devastate me. I guess I may never really know for sure... -
ARCHIVED Third Week On Gluten Free Diet
1desperateladysaved replied to laura1959's topic in Coping with Celiac Disease
That sounds good, I hope it will continue. I can relate to years of things seeming to work for a while. It is scary to start feeling giddy. Get well *** Stay well, D -
ARCHIVED I'm New, And It Seems Like Everyone Thinks I Am Crazy :(
1desperateladysaved replied to JackieG2903's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Greetings Jackie, I choose to believe you have a gluten problem, or real symptoms. They don't sound fun. I remember the extreme fatigue that didn't go away after rest or anything else. I imagine the doctors thought, "Five children, a little tired??? But of coarse." I wasn't taken seriously. I know that hurts. My mother use to tell me that she couldn... -
ARCHIVED Hugs To You All
1desperateladysaved replied to AmandaD's topic in Coping with Celiac Disease
Thanks. -
ARCHIVED Went To A Chinese Restaurant
1desperateladysaved replied to w8in4dave's topic in Gluten-Free Restaurants
I hope all will remain quiet! -
ARCHIVED Any Tips On Controlling Anxiety And Depression?
1desperateladysaved replied to HumanDecency's topic in Coping with Celiac Disease
Scripture and songs about God taking care of me have kept me going through many very hard times. It isn't unusual to be sad when circumstances are sad. I have promises that help carry me through. -
ARCHIVED I'm New With Questions :)
1desperateladysaved replied to student314's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may have a gluten problem. The flu could trigger celiac. You should do some tests for Celiac and see if they will help you to discover what is wrong. You could have some other health problem. There must be something at the root of your problem and I hope you will find it. The heart problems do sound disconcerting, and certainly you should find out... -
ARCHIVED Am I Crazy?
1desperateladysaved replied to Ol-Mauri's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your weight loss must be caused by something. I don't think you are crazy. Were you eating gluten up until your test? Also you could have low total IgA which would give you a false negative. Did you have the IgG and other tests run also? Sometimes one test will be negative and another positive. First, make sure you are done with all the tests. If... -
ARCHIVED Blood Test
1desperateladysaved replied to NateJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tom's natural toothpaste does make toothpaste without fluoride. I am sure there are others. Lately I am using baking soda. It is cheap! D