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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    Good information from Columbia University: Open Original Shared Link "The diagnosis may be established because of non-gastrointestinal manifestations of the disease. These include dermatitis herpetiformis (DH), neurological symptoms such as peripheral neuropathy, ataxia, or epilepsy, frequently with occipital calcifications. Other, less common presentations...
  2. happygirl
    Buy your own food, make your own food. celiac and leaky gut Open Original Shared Link
  3. happygirl
    If you do have the blood tests done, here is a list of tests to request: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. from: Open Original Shared Link "Q: I feel hungry all the time. Is that normal? Yes, it is very common. Your body...
  4. happygirl
    Hope you had a very happy birthday today, Chris!
  5. happygirl
    Recipe in Washington Post - ingredients are naturally gluten free. Chocolate Cheesecake Cuisine: American Course: Dessert Features: Kid-Friendly Summary: This is rich enough to satisfy even the most dedicated chocoholics. The ganache topping covers any baking imperfections. Cheesecakes are basically custards and must therefore be baked in a bain...
  6. happygirl
    FYI---this is a theory. There are many, many Celiacs that do just fine with other foods. good4something: I would definitely explore other possibilities for the reasons behind not feeling well. I certainly hope you find some answers.
  7. happygirl
    Keeping fingers crossed for babies for A. and motorcycle disappearing for S. Anything else?
  8. happygirl
    Yes, and I would guess that most do. The CBC doesn't check anything that measures the body's response to gliadin. The only way to know if you have Celiac is the bloodwork/biopsy.
  9. happygirl
    It will get better. After being sick for so long, and only being on the diet 2 weeks (which seems like an eternity at this point, I'm sure!), it can be frustrating when life doesn't just "pick up" right away. Many people do see improvement right away, but for many its pretty gradual. You have to stop doing damage, then your body has to start healing, then...
  10. happygirl
    Hi MM, Welcome to the board! Personally, I don't know of anything that would affect the Celiac blood testing other than going on a gluten free diet. There was an episode of Mystery Diagnosis (or something like that) on Discovery a few years ago that involved a little boy who had seizures. Turned out later that it was Celiac. Certainly can't...
  11. happygirl
    Like any restaurant, it seems that some PF Chang's are better than others re: gluten-free menu (or so I've been told by former Pf Chang servers) When we go to the good ones, we get the exact same thing EVERY TIME because they are our favorites! Appetizers: Chicken Wraps Shanghai Cucumbers (listed under veggies/sides) Main Course: Chang's Spicy...
  12. happygirl
    www.glutenfreedrugs.com You may want to contact the owner of that site, and provide him with info on your phone call/email, since they have Cipro listed as gluten free.
  13. happygirl
    I think genetic testing is certainly helpful, but not the end all. 30-40% of the American population has one or both of the genes. 1 in 133 Americans (slightly less than 1%) is estimated to have Celiac. Also, ~5% of 'true' Celiacs do not carry one of the genes. There have been biopsy-proven Celiacs on this board who don't have the genes, and we...
  14. happygirl
    Any company that makes a spice that is only one (i.e., thyme, oregano, basil) ingredient, then it only has that one ingredient in it. They are gluten free. McCormick has a clear gluten labeling policy for all of its seasonings and spices (including seasoning packets). Open Original Shared Link "All of our single ingredient spices and herbs are...
  15. happygirl
    according to this site: Open Original Shared Link Benadryl Elixir is gluten free (info about the site: This website is authored and maintained by a clinical pharmacist as a public service, receiving no compensation whatsoever for providing this information. Information for this website is obtained from a number of sources, including personal contact...
  16. happygirl
    Don't worry----you won't have to cancel! You can look for gluten free restaurants near where you are staying. When I travel, I always bring my own food. Make everything ahead of time, and put it in meal size containers. Stay in a room with a fridge and microwave and you'll be fine. If you go out to eat with a group, and its an unsafe restaurant...
  17. happygirl
    Once you go gluten free, you can still eat pasta.....just a different kind. Check out Tinkyada (rice-based) pasta. It comes in all the normal shapes and sizes and tastes great. You can find it in many grocery stores, specialty/health food stores, and online. Good luck. I hope you feel better once you start the diet.
  18. happygirl
    Welcome to the board! There are others here who have multiple diet restrictions, beyond gluten, for various reasons. Best of luck!
  19. happygirl
    You should be consuming gluten if you are still undergoing testing for Celiac. Taking gluten out increases the chances of false negatives. The damage caused by Celiac happens when you are consuming gluten, and heals when gluten is taken out.
  20. happygirl
    flourgirl, Welcome to the board!!! I'm sorry that you have gone through so much, but I hope with the answers, life will improve! This board is a great place, and will make the Celiac learning curve much easier. Hope that you stick around and make yourself right at home.
  21. happygirl
    Ask your doctor to run these blood tests: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. Open Original Shared Link is a good site with more information.
  22. happygirl
    You may want to have his Celiac bloodwork run at more frequent intervals to make sure that his levels have come down, and remain down.
  23. happygirl
    If you have health insurance, I would go throught traditional bloodwork first.
  24. happygirl
    Present your symptoms to your doctor, and ask to be tested for Celiac. The five blood tests in the panel are: Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA Total IgA level. A common misconception about Celiac is that Celiacs...
  25. happygirl
    If gluten is your problem, and you've only been gluten free for 3 weeks, then I would assume you haven't fully healed yet. It may not be another food intolerance. Healing doesn't happen overnight. Even if you are 100% gluten free, your body still needs time to adjust.
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