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happygirl

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Latest Celiac Disease News & Research:

Everything posted by happygirl

  1. happygirl
    You could have something going on other than a gluten problem, so it may be helpful to be evaluated for other things. If you have been gluten free, and truly have Celiac, your biopsy may not be positive. But, to me, the purpose of the endo/colonoscopy will be to look for other things besides Celiac. Are you 100% gluten free?
  2. happygirl
    Hi Mern, I'm sure others will pop in with more ideas, but I wanted to welcome you to the board. Yes, wheat allergy testing is different than Celiac. Request that your doctor run the full Celiac blood panel, or find a doctor that will. The panel includes: (from Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial...
  3. happygirl
    Thanks.
  4. happygirl
    Just called and the very nice rep said they had received a ton of calls about it....said to encourage others to call.
  5. happygirl
    FWIW: The nurse at Enterolab personally told me that, for some, it can take over 2 years for their numbers to fall.
  6. happygirl
    Lisa, Happy Birthday! May your day be filled with all good things, including gluten free delights. Thanks for your friendship and all that you so generously do for this board. Much love, Laura
  7. happygirl
    However, beans and potatoes are gluten free---so don't worry about that. Not everyone has a problem with lectins.
  8. happygirl
    woodrow: Wanted to welcome you to the board and to the gluten-free diet! My favorite book is the one listed in my signature. There's lots of good information on celiac.com and www.celiacdiseasecenter.columbia.edu Let us know what we can do to help!!
  9. happygirl
    Popping in to say hello .... and yes, you truly are a bunch of "Silly Yaks!!" Hoping everyone is having a great night!
  10. happygirl
    Just wanted to welcome you to the board, and happy you have answers for Carter. Make yourself at home!
  11. happygirl
    How are you doing now, when you had the enterolab test done?
  12. happygirl
    Also ask if he ran the FULL celiac panel, or just some of the tests. AGA IgA AGA IgG tTG IgA EMA IgA Total IgA.
  13. happygirl
    The process that they use removes the gluten protein. After this information came out, the Celiac groups had independent (i.e., non-McD's) testing done on the fries, and they were gluten free. Always check to make sure that they truly do use a dedicated fryer.
  14. happygirl
    Open Original Shared Link Open Original Shared Link Open Original Shared Link www.celiacdiseasecenter.columbia.edu www.celiaccenter.org
  15. happygirl
    BB---I actually thought of you about two weeks ago when I was eating the cheesecake myself. I'm happy you enjoy it. My mom is a sweetheart and made it for me....it is SO delicious! BTW, we've started adding a bit more pumpkin for a stronger taste. Last batch one had a crust (ginger snap cookie, like yours) and the other was crustless. Delicious!
  16. happygirl
    Using that list makes a world of difference!!! Always turn the product over and look on the back label---you'll often find that a brand is owned by one of the companies that Peter listed. Makes food label reading SOOO much easier---and its trustworthy.
  17. happygirl
    The "official" way to diagnose is through bloodtest and biopsy, and then the response to the diet. Enterolab themselves say that they don't diagnose Celiac, but non-Celiac gluten intolerance. The problem with enterolab, at this point, is that his results haven't been duplicated by others, and his methods are not published. (All this being said...
  18. happygirl
    To my knowledge, there isn't a blood test for fibromyalgia...it is dx'ed after ruling out other things (like lupus, ra, ms, etc) and a physical exam, tender points, etc. It depends on who does the bloodwork...do they use an outside lab (like LabCorp, Quest, etc.) or if they do it themselves. Are they calling you with results (and if so, do they only...
  19. happygirl
    Taken from a highly respected Celiac center: Open Original Shared Link Q: Is it ok if I ingest some gluten if I do not experience any symptoms? No. The majority of patients with celiac disease experience no symptoms when they ingest gluten, either intentionally or unintentionally. This led to the concept that patients, especially children may grow out...
  20. happygirl
    Enterolab can't diagnose Celiac, though. The traditional bloodwork, which since you have insurance through your job, will likely be covered: (taken from Columbia University's Celiac Disease Center: Open Original Shared Link Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies...
  21. happygirl
    Agree with the book suggestion. Don't eat anything unless you know the ingredients and how it was prepared. Tinkyada pasta.
  22. happygirl
    You might contact a local celiac support group to ask them for recommendations from their members....here are some from celiac.com Massachusetts Boston - Support Group Children's Hospital- GI/Nutrition Dept. 300 Longwood Ave. Boston, MA 02115 Tel: (617) 355-2127 E-mail: celiacsupportgroup@childrens.harvard.edu Boston - Support Group The Healthy...
  23. happygirl
    Tiffany, I'm happy that you have a good doctor and am moving forward, but I am certainly sorry that your body is in the state that it is in....no fun for you. I'm not sue if you've tried accupuncture, but many people with chronic pain, including fibro or fibro symptoms, have found some relief from it. As with anything, you need a good accupuncurist, etc...
  24. happygirl
    Thanks, Carla.
  25. happygirl
    Clinically: From Open Original Shared Link Seronegative celiac disease Both the anti-tTG and the EMA titers correlate with the severity of villous atrophy [26-29]. As a result in the presence of partial villous atrophy either antibody may be negative. In addition the mode of presentation of the celiac disease, i.e. presence of silent or subclinical celiac...
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