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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I agree that your meals are high in starches (which gets changed to sugar in the body) and that will cause your blood sugar to go up and down dramatically. It sounds like hypoglycemia to me too, perhaps being affected by low blood pressure too. Perhaps switch to whole or 2% milk, get yogurt at 9% fat instead of 1-2%, and try adding more meats or nuts so...
  2. nvsmom
    Very cool!!
  3. nvsmom
    LOL Doesn't it seem funny that $11.12 is a good deal for a loaf of bread?!
  4. nvsmom
    Some seem to think a challenge can be shortened if one eats more gluten (up to 4 slices of bread per day for 2 weeks for the biopsy or 6 weeks for the blood test)
  5. nvsmom
    Yep, you got it. If it is low, it will "comfort" your doctor when he is looking at your negative DGP IgA and tTG IgA - it explains why a negative would happen. Just remember that celiacs can have negative IgA based tests with normal IgA (Immunoglobulin A). It isn't the majority, but it isn't rare by any means.
  6. nvsmom
    The inflammation of active autoimmune diseases (like untreated celiac disease or thyroiditis) can cause weight gain. I lost about 10-15 pounds when I first went gluten-free and I was not eating well - lots of gluten-free treats to make myself feel like I wasn't missing out. Lol. Some celiacs are underweight, it seems especially those with diarrhea, but some...
  7. nvsmom
    I completely agree with the others. If milk bothers you, as it does in 50% of celiacs at diagnosis, it is the lactose that is the problem. I do believe that grass fed cow milk is of a higher quality than gain fed, and it would be true for everyone. It s still milk though and would give you the same problems.
  8. nvsmom
    unfortunately the symptoms don't ease up in most celiacs, we just get used to them. Feeling poorly becomes the new normal. Hang in there ad don't over do it. One or two slices of bread, or the equivalent, is all you need. Try eating in the evening so your days aren't as bad. Good luck!
  9. nvsmom
    I was diagnosed with a positive tTG IgA, EMA IgA, and no biopsy so I am biased - I see no question mark in your diagnosis, you have celiac disease. A biopsy usually requires 1-2 slices of bread per day (or equivalent) in the 2-4 weeks prior to the procedure. If I were you, I would eat gluten daily. Have a muffin or a beer, but have something. The biopsy...
  10. nvsmom
    I agree. Not an impressive doctor. Get a new doctor an retest or go gluten-free if that is not an option. Hopefully you will feel better in spite of him.
  11. nvsmom
    That test is about 93-96% specific to celiac disease - out of 100 positive tests, only 4-7 are caused by something else. Chances are you have celiac disease.... It irritates me when doctors dismiss a positive result just because all the tests are not positive - they rarely are. In the presence of celiac disease symptoms, which means you are not a healthy...
  12. nvsmom
    Hugs. A positive blood test s often enough to diagnose celiac disease. I skipped the biopsy myself yet have no doubt hat I have celiac disease based on my test results. Biopsies can be done while awake, but it is not very pleasant from what I have heard. Those with dh do not always test accurately on the blood tests. A biopsy of the area beside the...
  13. nvsmom
    Actually, I just had the tTG IgA and EMA IgA tests run and they were positive. No other blood work was offered. I had been ill for decades, and had celiac disease in the family, so because i knew how specific those two tests are for celiac disease, when my doctor asked, I declined the biopsy. I felt there was no need. I went gluten-free and my tests slowly...
  14. nvsmom
    So your DGP tests are fine then if the range is up to 20. Keep in mind though that most celiacs around here were not positive on every single test, it is usually only a few so people get confused about their diagnosis - and rightly so. Your results do not indicate an IgA deficiency but it is a possible factor that could be affecting your results. Approximately...
  15. nvsmom
    Yeah! I hope you do better with it this time. Keep a symptom journal track everything. Write down how you are now, what is wrong and such, and comment every day or two on how you are doing. I sooo hope this works for you! Are you spreading out your medication times? Some people on T3 find it helpful to take it 2, 3, or even 4 times in a day, while...
  16. nvsmom
    Welcome to the board. The reticulin tests are quite old and not many doctors use them anymore. I don't believe they were the most sensitive tests and they missed some celiacs. Your tTG IgG is twice the normal upper limit. That's pretty significant. That test has a specificity to celiac disease of over 95% (meaning out of 100 positive tests, over...
  17. nvsmom
    A positive tTG IgA is never NCGS. 95% of the time (unfortunately) a positive result is caused by celiac disease, the other 5% of the time it is caused by thyroiditis, diabetes, crohn's, colitis, chronic liver disease, or a serious infection. You have hypothyroidism (Hashi's I assume - it is common among celiacs) so there is a chance that the thyroiditis...
  18. nvsmom
    A low positive tTG IgA (not double or quadruple the normal upper limits like yours was) can be caused by thyroiditis, diabetes, liver disease, crohn's, colitis, or a serious infection. Those causes only happen in about 5% of all positive results. A false positive tTG IgA is not common; a positive result is caused by celiac disease 95% of the time. The...
  19. nvsmom
    I've never heard anyone with sudden tongue swelling as a celiac disease symptom. That does sound more like an allergy to me but if you suspect gluten is an issue for you, then you should get checked BEFORE you go gluten-free (as Kareng said). On the other hand, I would avoid any foods that you think could have triggered the reaction in case it is an allergy...
  20. nvsmom
    Not ranty at all... I would have been dumbfounded by behaviour like that. Just scary weird.
  21. nvsmom
    Wow. Psycho...
  22. nvsmom
    Tinnitus is not related to B12 in my case either. My last B12 check was actually above normal, and the ringing was the same as it is now, and was a few years too. I hope you find other great restaurants. (hug)
  23. nvsmom
    (hugs) I hope you recover soon. I would be careful about going back. It may be safe now, but you will need to be extra careful with them. You already know that. Tinnitus? I have that all the time too. I can't honestly say it was worse when glutened but we're all different. Hang in there.
  24. nvsmom
    The tTG IgA has a specificity for celiac disease of around 95%, which means that only 5% of the positive are caused by diabetes, thyroiditis, crohn's colitis, liver disease, or a serious infection. When something other than celiac disease is the cause, it tends to be a low positive (like a 5 rather than a 10 or 20). It's unfortunate that your lab wasn't...
  25. nvsmom
    My last TSH was about a 0.01 too. Most doctors get pretty freaked out at that. LOL
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