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nvsmom

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Everything posted by nvsmom

  1. I completely agree with Lisa (GottaSki), a positive celiacs tets is a positive for celiac disease. The EMA IgA is considered to be about 98-100% specific to celiac disease; that means that if you have a positive result, there is a 0-2% chance it is caused by something else. In the world of blood testing, that is a very strong result. Also, the EMA IgA...
  2. So true! At least it is something that won't require life long meds like so many autoimmune problems do. Celiac can be very bad, but as you said, it could be much worse.
  3. Welcome to the group. I'm sorry that you had to be here but welcome anyways.
  4. It might not be worth it. From what I have heard, an "official" diagnosis is often helpful to get accommodations made in school but you can work around that if you need too. It might be different up here in Alberta, Canada, but I have three kids who are gluten-free, without an official celiac disease diagnosis, and so far I have managed to keep them safe...
  5. Huh, a celiac disease book that I don't remember ever reading... That doesn't happen often! LOL It looks reputable to me. Go for it or better yet see if you can get it from your library.
  6. Hope you stay well. I think I would keep my distance too and wash anything that was exposed very well before using it (like cups or utensils).
  7. (hugs) It is tough to keep them gluten-free. If possible, it does sound like a good idea to bring all of his food with you when he goes out. It will be a hassle, and some people mighte even be offended, but it is his health you are watching out for. I have three boys who I keep gluten-free and I provide them with all of their food when we are out and...
  8. Healing can take quite some time so make sure you hang in there even if you do not see many improvements over the first few months. Constipation was a problem for me for many months after going gluten-free. I had lots of fibre and nuts to help keep things moving. I also found that coffee worked some what too All fruits, vegetables, eggs and meats are...
  9. Yep, coffee. I used to rely on coffee a lot.... And occasionally that healthy stuff like exercise. I hope you feel better come Monday.
  10. Ugh, that is a real shame. Perhaps send them a note of complaint? I hope you feel better soon.
  11. In my province we have to put up with it because there are no options unless we travel out of province or country and pay for it ourselves... or are paying for extra insurance that will cover some of it.
  12. If it is gluten, it seems to affect people within the hour or within a day or two. I would guess, based on what I have heard from others, that the norm is within the first 6 hours or so. I hope he better soon.
  13. If you are concerned then you should take your concerns, and any symptoms, to your doctor. This is way out of my comfort zone of knowledge. I hope your doctor can help you feel satisfied with why you had those labs. Best wishes.
  14. LOL I've had a dream like that too but usually it's dealing with finding foods for my picky gluten-free kids. LOL Anxiety dreams can be soooo strange. My usual anxiety dream dates back to my substituting days when I would dream that I arrived at the job with absolutely no resources left for me. Ugh.
  15. I'm sorry things are so tough for you right now. My go to foods are nuts and eggs. They're not cheap but they are filling. When you do cook, make enough for plenty of leftovers that can be reheated when you need them Best wishes.
  16. You can also by (olive) oil sprayers/squirters in stores that sell kitchen gadgets.
  17. Low Iga does not mean that you have celiac disease; it can mean that you are more likely to get an autoimmune disease (celiac disease being one of them). IgA is the immune system of the mucosal linings (like in the intestines) so I don't find it surprising that celiacs are often low in IgA... plus low IgA can be caused by serious malnutrition (often found...
  18. Ditto Ravenwoodglass. False negative do happen in up to a quarter of all cases, but it would be unusual to have all the tests come up as negative - the reason doctors run so many is with the (correct) hope that at least one test will catch a celiac. And those zeros really are not a common result. Kinda odd. Get those immunoglobulin A and G tests...
  19. Raw apples and pears get me too. A really raw pain is usually the result. Some of the long time members of this board helped me figure out that one a year or two ago.
  20. I love smoothies for plying my kids with nutrition. I add carrots and peeled cucmbers to fruits to make it better. I also always add hemp seeds/hearts for extra fat and protein. When I use chocolate protein powders I can slip in more greens like avocado or spinach and the chocolate hides the green colour. LOL Cool is nice too.... especially f it is...
  21. I'm afraid I'm not familiar with those conditions so I can't offer any advice. For info on celiac disease or hypothyroidism, I can sometimes help but I wouldn't dare offer advice on this since I know next to nothing. I do wish you good luck in finding answers soon though.
  22. I agree, it should be fine. Good luck with the tests and welcome to the board.
  23. I forgot to mention dairy. About half of all celiacs are lactose intolerant when they are diagnosed. That could cause some problems for him too until he is healed in about 6 months or more.
  24. Yep. I was off the bell curve too and I still have no idea why. Frustrating isn't it?!
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