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gatita

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gatita

  1. gatita
    That's great you found a doc who "gets" you! Sounds like you know you can't eat gluten.... like me, there is NO way I can eat enough gluten to go for a biopsy, and luckily my doc also said my strong reaction and a few other signs and tests were good enough for him. My next step is going to be testing for nutritional deficiencies, will you be doing that...
  2. gatita
    Also, for what it's worth, if you really need a piece of paper from an M.D. saying he must be gluten-free for life, Enterolab provides one if his anti-gliadin antibody stool test is positive. I wanted the paper and got that before my own doc came around.
  3. gatita
    I've seen that sore tongue and some mouth problems can be both symptoms of celiac and/or B vitamin deficiencies, but on the old posts here, most people say it cleared up after going gluten-free. I'm 6 months gluten-free this week and am only rarely glutened anymore (yipee!! ) But suddenly I have this sore, cracked tongue, enlarged taste buds, and even...
  4. gatita
    I've been wondering all year if I also have SIBO, but my docs are taking forever to refer me to a GI. I'm going to ask for the test when I do go though, because it still seems like totally random foods set me off. Thanks for sharing your experience, I'm so glad you found something that helped!
  5. gatita

    ARCHIVED Jail/prison

    gatita replied to maximoo's topic in Coping with Celiac Disease

    Adalaide, that sounds like a win-win program. I visit a lot of people in prison as part of my job, and it often involves spending en entire day with them in the visiting room. I have a heck of a time figuring out what to eat. It's the only "eating out" I do anymore LOL. So far, I've only been glutened once, but I often just go hungry. Friends tell...
  6. gatita
    Oh my goodness that must be frustrating. I don't know much about crohn's but understand that gluten can be a problem for may crohn's sufferers, too, so perhaps going gluten-free would help that too? I wish you had a clearer diagnosis, but it's great that the crohn's forum people are so supportive -- like here. I'm also glad your man is getting on board...
  7. gatita
    I was never a big beer drinker but I understand the occasional Corona craving. I drink hard cider now (Trader Joe's has a really nice pear cider) and enjoy it a lot! I think the biggest change at first for many (me anyway) is not eating out. It took me months to realize I...just...can't...do it. That was always one of my favorite pleasures. I've gotten...
  8. gatita

    ARCHIVED Hair Color

    gatita replied to Candy's topic in Coping with Celiac Disease

    Dark brown and got my first greys at age 20.
  9. gatita
    Boy do I agree with this! I could not be scoped because of duodenal ulcers and so will never have that "gold standard" diagnosis since I can't go back on gluten... I do respect Dr. Green too... but nobody knows everything. I also can't tolerate probiotics but am glad they've helped others. I want to try them again someday, but I sure wish they were cheaper...
  10. gatita
    I feel the same way... I was very happily eating pasta and garlic bread until one day last June — wham! Even though with hindsight I can see some symptoms going way back, it was never severe like this. It still seems so surreal... Not sure what the stressor was, but it's the only explanation that makes any sense...
  11. gatita
    Kareng's idea of buying the red items is great! I was going to say go ahead and give her a new set of everything as a special gift from you (your stepfather can use the old stuff so she doesn't have to throw it out and feel bad). I'm sure she'll appreciate it -- I know I would!
  12. gatita
    Ouch!!! As soon as I saw the title of your post I could relate. I think this is one of the few diseases where it's easy to blame ourselves every time we have a relapse... I know I always feel guilty when I call in sick, as if my boss is thinking "What stupid thing did you do now?" Arrrgh.... Hope it wasn't too bad this time.
  13. gatita
    I agree you have a very advanced doctor. Because I don't have the word "celiac" in my record, I'm having a hard time getting a GI referral that my insurance will cover. It's very frustrating.... So it sounds like your diagnosis is a good thing that may help you get any additional testing you need.
  14. gatita
    I feel your pain... After a month of feeling good (other than a flu that wouldn't quit), I got glutened again on Saturday I always get D really bad, so if I have to work or travel, I take immodium, which can get me through the first few days. But basically, I feel it just postpones the inevitable so I try to avoid it if I can. The only good thing...
  15. gatita
    I'm so glad glad part of the news is very good -- the 'it's not cancer, not messing with the optic' nerve part. Now I will wish you the best on the treatment... I also have a friend who had brain surgery for a nonmalignant tumor (very large one) 20 years ago when she was 50 and she hasn't mssed a beat since, so I hope yours goes even better.
  16. gatita
    First off, do check out the celiac 101 thread for newbies on this site: http://www.celiac.co...ewbie-info-101/ I probably have more questions for you than answers, lol. Have you been tested yet for celiac? What makes you think you don't have it? I guess you know that once on the gluten-free diet, it's hard to get an accurate test. If it turns...
  17. gatita
    Oh no!! How awful to hear this.... sending (((hugs)))
  18. gatita
    And check your pet food. I finally got around to this and found the third ingredient in my cat's canned food is wheat gluten. That means I have to wash my hands every single time I pet him. Once this batch runs out, I won't buy it again.
  19. gatita
    Wow, this is interesting. It does seem sometimes that we in the US are too sanitized for own good. On the other hand, having lived in Mexico and suffering several very severe bouts of amebic dysentery, I may be one of the last folks you'll see voluntarily ingesting any more parasites.
  20. gatita
    I seem to have both. My GI symptoms started with gluten intolerance, backed up by a high anti-gliadin iga test. Later, I did a one-time gluten challenge and had a severe histimine-type reaction in addition to the GI stuff. Scratch test confirmed it. So you can have both.
  21. gatita
    That is a great flyer. I'm going to send it to friends and family!!!
  22. gatita

    ARCHIVED Curious...

    gatita replied to Skittles's topic in Coping with Celiac Disease

    Four to seven days, depending on the amount. When I did a mini-gluten challenge (small amount of pasta at one meal), it was more than a week.
  23. gatita
    I wonder if this will keep happening until we get our B and D vitamins and other nutrients up to where they should be. I just had the flu and it has last more than two weeks. Never in my life has the flu lasted that long or been so bad! So I do think our immune systems take time to get back to normal. There has been some research showing celiacs are more...
  24. gatita
    Thank you for this post. It really gives me hope and makes ME smile, even if I'm not healthy yet.
  25. gatita
    Wow, you are the only other adult I have "met" who had CMV! I got it about ten years ago, in my 40s, and learned as you did that it's very rare in adults who are not immune-compromised. (Apparently most U.S. people get it without symptoms when they are little kids in preschool or kindergarten.) I too, was tested for everything under the sun (except...
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