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Lisa

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Lisa last won the day on December 26 2018

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  1. Yeah, Jason...it can happen. The walls of the intestines have no nerves, so you would not feel where they biopsies.

    But you will find yourself with a lot of gas caused by the procedure and possible discomfort. It will "pass" (if ya know what I mean) ;) Nothing to concern yourself with, unless you're on a date :D

  2. A member most post a certain amount of times to activate the Personal Message option. You're almost there!

    By the way, I would like to invite you to review our Board Rules (Board Rule #2). Blogs and links are not alllowed on the post page or in your signature, but can be relocated to your personal profile page.

    Thanks.

  3. Can a doc determine if there is damage to villi with the naked eye or is biopsy the only way to know.

    Our Gi did 7 biopsies today and said things looked good. So should i believe my sons biopsy will be negative?? Thank-you

    A scope of the small intestines can look for damage to the villi and scalloped walls, and it can be viewed through the procedure. Biopsy's are taken at that time.

    Biopsy's can also indicated issues with gluten, but they may miss the effected areas. So a negative endoscopy or biopsy is not conclusive that Celiac Disease is not present. Or perhaps, not enough damage has occurred to be visible. It can rule Celiac in, but cannot rule it out.

  4. The letter from Kikkoman was a bit difficult for me to understand. I asked my chemist daughter for an interpretations:

    It is saying that the production process in making soy sauce breaks the protein down into it's constituent amino acids (building blocks) and small fragments, which aren't supposed to trigger a celiac response. States that "protein fragments need to be large enough to possess particular structures for the development of such reactions" and that fragments in their soy sauce "would be too small" due to the enzymatic processes they use during brewing. Apparently they do test (as they gave their test method) and find gliadin levels "below their limit of detection," which is 1.5 ppm.

  5. Open Original Shared Link

    Kikkoman claims soy sauce is OK

    Posted on May 1st, 2007 by alison

    I was in Miami in April and ate at the famous Nobu Japanese restaurant. I told the waiter about my intolerance to gluten, and therefore my inability to eat soy sauce, as it contains wheat. He replied, “We have something for people like you,” and produced a letter from Kikkoman soy sauce company that said, in a nutshell, that there are no wheat or soy proteins in their soy sauce that could cause allergic reactions. I sat there, stunned / confused / excited – could it be true? If so, why have I been avoiding soy sauce and therefore Asian restaurants in general for the last 5 years?? Could I actually eat family style with my gluten-eating friends? At that moment I had a decision to make – eat the appetizers my friends had ordered, or eat my own sushi with my wheat-free soy sauce I had stashed in my purse. What would YOU do?

    Well, I decided to do it – eat the appetizers, I mean! I ate a few pieces of saucy fish and some salad with a soy sauce dressing. A few minutes later, I had an intense itching in my throat, which I used to have all the time before going gluten-free and which I get sometimes with seasonal allergies. Was this my reaction to the small amount of soy sauce I had consumed? I stopped sharing right then and there and pulled out my soy sauce stash. I felt like a deflated balloon.

    Once home I decided that I needed to get to the bottom of this Kikkoman claim, so I sent an email inquiry. Here is the letter that they sent to me (note that it is dated February 4, 2005): kikkomangluten_statement_2_4_05.pdf. I don’t think I will be using the Lazy Susan in any Chinese restaurants anytime soon, but decide for yourself!

  6. Open Original Shared Link

    Yet, 97% of people with Celiac Disease, go undiagnosed, or misdiagnosed.

    Until doctors become more informed about the prevalence of this disease and better diagnostic methods are established, it will remain a generally self-diagnosed disease.

    An unwarranted biopsy should not be considered, but due to the fact that many, if not most people here have had extended histories of digestive issues, it should be considered. Currently the biopsy/endoscopy exam and the Serologic Blood Panel are the best options toward diagnosis. A positive dietary response is also supportive.

    While Celiac Disease warrants a level of concern, other unchecked diseases could warrant a much greater concern. Celiac Disease is linked to intestinal lymphoma, if neglected. A biopsy should never be dismissed. And worries about a "pre-existing" condition, should never deter you from seeking a proper diagnoses to regain your health or perhaps save your life. ;)

  7. It's obvious that you have some level of sensitivity or Celiac Disease. Below is the test to request/demand from your doctor. You must continue to digest gluten until you have exausted your testing.

    Anti-gliadin antibodies (AGA) both IgA and IgG

    Anti-endomysial antibodies (EMA) - IgA

    Anti-tissue transglutaminase antibodies (tTG) - IgA

    Total IgA level.

    Good luck and I hope you find your answer.

  8. I did barely remind myself. I thought Dr. Oz did a great job, but I grew tired hearing reference to the "G.-free" diet. In fact, even on this site, we have automatic controls not to accept "gluten-free" as legitimate. Spell it out Girl! (can you imagine going into a restaurant and explaining to the waitress, "I'm on the G.-free diet"....um grapefruit?)

    I enjoyed hearing from Dr. Peter Greene.

    Most any awareness is good, and I should not nit-pick, but......

    Elizabeth said all blue cheeses are gone from the diet and said "sorry". How evey untrue.

    This research in this field changes so quickly, that two year old information is frequently no longer valid.

    Maybe someone can post the video when available. It's well worth the view.

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