Lisa

I was wondering about vaccinations too. My son. Was just diagnosed w/ celiac and I don't know wether to continue giving him vaccines. People shouldn't be so rude you were just asking a question

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Heinz

It gets better. Trust me.

Also glad everything went well.

I think the key to a good grilled cheese, is multiple slices of cheese, or more than one slice that some of us remember in the "old" days.

"Last, I am in the process of writing my own book on celiac disease—"

We shall be looking forward to your book Scott.

It does appear that previous posts have now been edited.

The comments that went further than "There is no gluten in American made MSG that we know of at this time"

were out of line. Your opinion was not asked for.

If opinions were not allowed here or welcomed, there wouldn't be much of a message board left. What is important is that every voice speak with respect, regardless of other opinions. As was mentioned, it is often hard to convey a "tone" on the internet. I believe that the benefit of doubt should always take the high road.

I would buy products from these companies who will clearly list all forms of gluten, and not hide them in "natural flavors". Here is the list:

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A good rule of thumb is "when in doubt, don't". That's when you get on the computer or phone and call the companies to see if they have hidden gluten (rye, barley or malt). Wheat must be listed by law in an allergen statement or in the ingredients listing.

If it's your first year, the Triumphdining Grocery Guide would be helpful. It lists over 30,000 main stream products. I have long since learned to read labels, but it comes in handy when my husband wants to go out a buy some ice cream that we can share.

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I still buy products with the least ingredients. Go down the potato chip isle and see for yourself.

Welcome, glad to have you here.

If you have not already seen this, you might find it of interest (with regards to injecting gluten):

https://www.celiac.com/articles/21788/1/Fir...alia/Page1.html

And:

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I do wish you will reconsider your departure. Although, on occassion some of our discussion may be a little heated, they are not without great resource sharing. I would suggest you give it more time. You might be surprized, with some answers to your questions.

If not, I wish you and your son continued health in recovery.

I checked and the brand was kinnikinnick. The only weird thing listed was Yeast...so not sure if it was a Gluten free yeast or not. Oh well. Thanks for the replies everyone!

Yeast should not be a problem. Kinnikinnick is an excellent company. Have you writtten or called the company and inquired about their ingredients? I'm pretty sure they they test their products for quality controll regarding the gluten free status of their products, and they have dedicated facilities.

Here's a little background:

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It used to be predominantly made from wheat gluten, but is now mostly made from bacterial fermentation; it is acceptable for celiacs following a gluten-free diet.[1][2][3][4]

Pete is correct. Currently, the top eight allergen are required to be listed.

Here is some information on the Gluten Free Labeling Laws.:

https://www.celiac.com/articles/21617/1/-FD...ards/Page1.html

Well, that is subject to much debate here, but the experts state that the gluten molecule is too large to be absorbed through the skin. Although, some skin care products can find their way into your mouth, which is the concern.

Those a gluten allergy could be concerned with skin care products. There is lots to learn about Celiac Disease.

Don't we consider ingesting this a poison? Why would injecting it be any less?

Because the Celiac(no "s")immune response occurs in the small intestine. It does not take place in the circulatory system. Different animals, as I said.

This is a Canadian source:

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I believe that injecting potential gluten sources into the blood stream and ingesting gluten are two different animals.

WOW! Hats off to ya. . I'm working on 28. It's been quite a ride.

This the test serology panel to request:

Antigliadin antibodies (AGA) both IrA and IgG

Antiendomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

It is imperative to continue with a full gluten diet for the optimum accuracy. Enterolabs can indicate any sensitivities, but it will not/can not diagnose for Celiac. My suggestion is to follow through with conventional testing first. Good luck

I called Benefiber to ask about their gluten free label even though it contain wheat dextrin. The response was rediculous. She said that it is technically gluten free as it only has 10 ppm and it needs to be over 20 to be seen as containing gluten. But, if you are completely intolerant to gluten it may cause a problem. What? Completely intolerant? Does that mean some people are only partially intolerant?

Nicole

Labeling a product as "gluten free" is totally voluntary at this point. Determinations are curently being studing to standardize the term. 10ppm is considered a safe level for people with Celiac to consume.

If your son is very sensitive to the smallest amoung of gluten, I would choose another product. Metamucil capsules and Citrucel is gluten free.

Additional information:

https://www.celiac.com/articles/21617/1/-FD...ards/Page1.html

ANY distilled alcohol is considered safe for people with Celiac to consume. Bourbon would be safe, even though it's grain based, because it's distilled. Now, some very sensitive people with Celiac have said they don't do well with distilled grain based product like alcohol and vinegars.

Here is a pretty broad list of CAN HAVEs:

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

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Here is some additional reading:

https://www.celiac.com/categories/Celiac-Di...en%252dFree%3F/

Oat are naturally gluten free, but there is a high risk for cross contamination in the field, harvesting and manufacturing.

There are some dedicated oats in the market place.

Hi Lynne,

It means that you haven't gotten in trouble YET!

Your warning level is only visible to you and the mods. The other members can not view your level. A warning is issued when the Board Rules are violated. Three stikes. your out.

Welcome back.

Some gluten free breads have other talents. Door stops and biceps enhancers comes to mind

Painful like lava is exiting your body? Yeah, that's normal. Painful due to constipation, normal too, with Celiac or an intolerance

I'm sorry that this is an old thread but didn't want to start a new one...Organic Valley's cottage cheese contains gluten according to their website and so does their grated parmesan cheese of which I've bought 3 containers and used, aaargh! I don't know what I was thinking, I know to check every brand and every thing. I just thought it was the lactose thing. Just a reminder to all to be careful out there, it's like being in a land mine field.

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I sure would like to know what form of gluten is in their cottage cheese. Can't figure out where wheat, barley or rye would play a role here.