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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    You have received some good advice. Make sure you are not deficient in anything. Watch the amount of lactose you are ingesting in one sitting. Flower Queen had a great suggestion. Give up Xanthan Gum! I thought I was getting glutened when I was a Newbie. But how? I was eating the same things my gluten-free hubby had been eating for 12 years and he...
  2. cyclinglady
    This is a current and a trusted source: Open Original Shared Link
  3. cyclinglady
    I am sorry that your case is not clear. I hope the diet helps, if there is not improvement, find out the cause of your villi damage (like Crohn's). A follow-up endoscopy would be prudent. celiac disease can affect the stomach...it can affect any area of the body. Personally, I would seek a second opinion even if I had to pay cash.
  4. cyclinglady
    Nice and happy "feel good" story but this is a old article from 2013. The author is a behavioral therapist (in her third year of getting her BA in Psychology hology....gee she most likely just finished her general ed courses and maybe took Psych 101), was never tested for celiac disease, but made a choice to go gluten free and sugar free. Gee, I am going...
  5. cyclinglady
    Why would you say you do not have celiac disease? Did your doctor tell you this? I ask because 10% of celiacs are seronegative meaning they produce no antibodies to gluten. You had villi damage, right? And then the tests. Did you get a full panel? TTG, DGP, EMA? I personally test positive to only one (DGP IgA) on the complete panel. If my doctor had...
  6. cyclinglady
    This store is not near me. Did you read their website about gluten free? Open Original Shared Link Like most supermarkets, they outsource their store-brand products. It sounds like they rely on suppliers to meet gluten-free labeling requirements. Meat and poultry are a bit different as they fall under the USDA and not the FDA. I think most try...
  7. cyclinglady
    I would never recommend tanning beds or even getting a tan. Watched my friend die from Melanoma leaving a stricken husband and children. Try green concealer under your foundation and avoid gluten like the plague!
  8. cyclinglady
    Sorry to hear this. Have you ruled out an infection from the site? Pick up something like norovirus at the doctor's office? I picked up the flu and a cold virus when I went to my doctor's office this past winter. Lucky me!
  9. cyclinglady
    I am sorry that you are sick. ☹️ You might have been glutened or you could be dealing with intolerances (garlic, cheese......etc). You already know this, but it best to avoid eating out (always a risk) until you are feeling better. I react to lots of medications (not a gluten issue), so I just drink lots of water, rest and consume safe foods tha...
  10. cyclinglady
    My best guess is to say that celiac symptoms are never consistent based on my own personal experiences. It is often why I have had to ask my GI to check my antibodies to rule out a glutening. It is a reason why doctors have a hard time identifying and diagnosing celiac disease. So many symptoms and they often overlap with other illnesses.
  11. cyclinglady
    In the olden days....I used to bake a lot. It is hard to get a good rise with whole wheat bread. So, I addd extra gluten (yep, there is a bag of that stuff) to improve the elasticity.
  12. cyclinglady
    I think you can do a search within the forum to determine how to survive a cruise. The first step is notifying the cruise line months prior to departure. Then upon boarding immediately find the head waiter or one of them. Usually the ship has everyone eating at the buffet restaurant for lunch the first day. . I ask for them to get me food from the back...
  13. cyclinglady
    I am sorry that your daughter is itching! Celiac disease is linked to many rashes and one is DH which is a blistering insanely itchy rash (maybe more like a poison ivy or oak rash). Try googling images of rashes and hives to at least help identify the rash/hives. If the antihistamines work, then you will know it is hives. To know if the rash is DH...
  14. cyclinglady
    Are you referring to bone or soft tissue? You should consider getting your neck examed by a doctor. It might not be related to celiac disease at all. As far as your teeth are concerned, celiac disease does have an impact. Unfortunately, the damage is permanent. Another possibility is neuropathy which for celiacs, can take a long time (over a year...
  15. cyclinglady
    I will add, that per my Chinese-American girlfriend, no self-respecting Asian would consume rice without washing it three times! It is a raw agricultural product. But then there is the those who have told us that washing removes some good nutrients. I choose to follow my Asian friends who have been consuming rice centuries long before dietitians began...
  16. cyclinglady
    Negative (remember, I am not a doctor). You can try for a GI consult and ask for the full panel, but on paper, you look good. No documented autoimmune issues, not anemic at this time (I think you are taking iron supplements), you do not appear to be malnourished, no family history......hard to make a case. Celiac disease symptoms are like so many other...
  17. cyclinglady
    Get copies of all her lab results. It is a good idea to always have them on hand for the rest of her life (or while she is under your care). You might change doctors or health plans. My new doctor's were so please to see my records and I did not have to go back to obtain them (most of my doctors have retired or passed on anyway). The DGP might...
  18. cyclinglady
    Yes! My EMA was negative, even in follow-up testing. The only positive I have had is with the DGP IgA. My GI does not even order the rest of the panel anymore (saves money) at my annual exam. Biopsy positive. Did she get a the DGP test? If not, I would ask for it. From my research very young kids and very old people tend to test better with the...
  19. cyclinglady
    Thanks, Ennis!
  20. cyclinglady
    I love Breyers. I buy it for my family. But I found that I do best with just plain vanilla. The other flavors have some added junk that does not agree with me. I can only have a few bites because it impacts my blood sugar! ?
  21. cyclinglady
    This is why Celiac.com is here! The founding member, after all these years, still has a strong desire to help celiacs and anyone with a gluten issue (because science does not know how gluten can affect some people negatively without GI damage). Our doctors don't have time and honestly, our family and friends don't get it either. We are lucky to...
  22. cyclinglady
    My IgA deficiency result was (and still is) way above range, but that is most likey attributed to having other AI issues like Hashi's. About 10% of celiacs are seronegative. Keep that in mind. And if your biopsy is normal, consider giving the gluten-free diet a trial. Whatever you do, continue to advocate for your health. Something is making you...
  23. cyclinglady
    I think you are doing fine. Your antibodies are down. Congratulations! But I think your expectations for recovery are too high. Let's face it. You have an autoimmune disease that will never go a way. You are going to have ups and downs. Celiac damage goes beyond the gut. Systemic damage can take a long time to heal. Even though I just had anemia...
  24. cyclinglady
    Just curious. What were your cholesterol results? Mine were always super low (like total was 116 and HdL was 32. Got a lot of pats on my back from my doctors, but I found that I was not absorbing well. A low HDL is not good. Now my HDL is 64 after being gluten free, healing and absorbing nutrients.
  25. cyclinglady
    Yep, you are not IgA deficient, so the celiac test (remember Kaiser usually orders just one) TTG IgA should give you a valid result. You will not need this test run again, if you need to pursue the other celiac tests: DGP and EMA.
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