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cyclinglady

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Everything posted by cyclinglady

  1. cyclinglady
    If you had active Graves Disease, I think your symptoms would be more severe. My Mom and cousin both have it. My Mom has permanent double vision as a result. Both ladies had bulging eyes. Both dropped weight like crazy. Their Graves is no longer active. I have Hashi's (20 years). I had an enlarged thyroid and nodules. My antibodies were off...
  2. cyclinglady
    It sounds like you are gluten free, but getting glutened once or twice a month is going to prevent healing if you have celiac disease. For me personally, a glutening can set me back months (symptoms and antibody testing). I hope you can figure it out. Here is the link:
  3. cyclinglady
    IgA Deficiency test (in the case of celiac disease, this is used as a control test to see if all IgA type tests work) TTg IgA and TTG IgG DGP IgA and DGP IgG (I think one of these were ordered. There used to be Anti-Gliadin tests that are now outdated, but might still be in use and are not as accurate. Not sure if your doctor ordered the newer...
  4. cyclinglady
    Unfortunately, the reality is that celiac experts STILL do not know when a baby should be exposed to gluten. Read this: Open Original Shared Link
  5. cyclinglady
    Welcome! Your doctor, based on your medical history and biopsies is probably correct in your diagnosis. You could ask for the blood tests for confirmation. Some folks maintain antibodies for a long time (months like me). Trialing the diet will also confirm your diagnosis. How are you felling so far? In a few months while this on the gluten free...
  6. cyclinglady
    ?. I would quote you, Karen, but I can not!
  7. cyclinglady
    Not a quote issue, but everything I log on, I get the same message about notifications, etc. that I have cleared days ago.
  8. cyclinglady
    Although I do not agree with your thought process of gradually going gluten free (it is not advice I have ever seen in all my research concerning celiac disease), you could certainly give it a try. Eating gluten (or any food) could be considered an addiction. Not many 12 step programs recommend just cutting down on alcohol, drugs or tobacco for a few months...
  9. cyclinglady
    Well, at least she ordered some of the celiac tests, though the EMA is probably the most expensive. Your GI can order the rest of the panel (TTG), if needed. At least you are headed in the right direction!
  10. cyclinglady
    Your best bet for a Hashi's diagnosis is getting your thyroid antibodies tested. Some doctors may treat with a small dose of thyroid replacement, even if TSH, etc. are in normal ranges, but antibodies are above normal. Even with thyroid replacement, there is no guarantee that you will feel better. Like any other AI issues, the reason for a flare-up is...
  11. cyclinglady
    ?
  12. cyclinglady
    Ah....two weeks in? It could be some gluten withdrawal. Some folks here have reported withdrawal symptoms. But this is not about going gluten free and healing fast. The damage from gluten lasts and lasts. It takes time to heal. Most of us take a year or longer to heal? Why? The learning curve for the diet is steep and each of us have sustained damage...
  13. cyclinglady
    Hi! Wow! Sounds like your doctors are not following the British GI recommendations for diagnosing celiac disease. Normally, if celiac disease is suspected, they run a simple screening blood test to check for antibodies. If positive, you are referred to a GI for an endoscopy to obtain biopsies (looking for villi damage and not gastritis). ...
  14. cyclinglady
    Same issues in Safari too (it worked this time....)
  15. cyclinglady
    Welcome! You have a positive on the celiac panel. Not all of them have to be positive -- just one. The next step is getting a confirmation and final diagnosis by seeing a GI and getting an endoscopy (biopsies). Keep eating gluten or the biopsies will be negative. BTW, your result is exactly how I tested (not common, but still valid). My biopsies...
  16. cyclinglady
    Well....I like Jane Anderson. Sure, she is super conservative on her approach to gluten free, but she has DH. If I had DH, I would be SUPER cautious. Even now, I have had hives daily....all over my body...like even the soles of my feet and the palms of my hands. The itching is intense. However, I can get relief using antihistamines as prescribed by my...
  17. cyclinglady
    Frieze...you at so right!
  18. cyclinglady
    This is getting a bit off topic, but although there is a possibility of cc with strawberries grown in straw, the risk should be small. Why? I live in CA where commercially grown strawberries are grown in masses (I think we are the leading state in most produce). Strawberries are surrounded by plastic. Who has time to spread draw except little boutique...
  19. cyclinglady
    Yes! My GI told me (and I got the report) that everything looked good. No damage that he could see, but he wisely said that we would have to wait for the pathologist's report (got that report too). My celiac blood panel was mildly positive which means in my case that I just had one positive on the panel and it was not sky high. I had moderate to severe...
  20. cyclinglady
    With Both RA and TD1, I would not be convinced that genetic testing would be beneficial. Some 30% has the genes that can develop into celiac disease (majority never develop it). I am officially diagnosed (four years). Hubby went gluten-free 15 years ago per the advice of my allergist and his GP. Good advice? Not for correctly diagnosing celiac...
  21. cyclinglady
    Sounds great! Ask for another DGP IgA in six months to insure it is dropping. Be patient, it could take a while. Be sure to read the Newbie 101 section under " Coping". Lots of good tips there. ?
  22. cyclinglady
    Welcome to the forum. Well, you really need to get a hold of the test results. I can not tell which celiac test was given (TTG or DGP) and the lab ranges are not clear. What I can tell you that if he has a positive on any of the celiac tests, he should be referred to a Gastroenterologist and he should be on a gluten diet. All celiac testing (blood and...
  23. cyclinglady
    Ah, I can completely understand. I am not a doctor, but your antibody results are high. I would insist on getting a copy of the pathologist's report just for the record. It sounds like the first GI was not looking for celiac disease initially. You werelucky he took any tissue samples at all. Luckily, he ordered the antibodies test too after being...
  24. cyclinglady
    Hi! Anemia was my only known symptom I had at the time my GI screened me for celiac disease. I went in for a routine colonoscopy since I had hit the 50+ club. Three months later, I suffered from some fractures and go my osteoporosis diagnosis. My anemia resolve swiftly (months) on the gluten free diet. I also have a genetic anemia, which...
  25. cyclinglady
    Here is my suggestion....eat more fat. ?
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