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cyclinglady

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Everything posted by cyclinglady

  1. cyclinglady
    Grass fed is just the natural, traditional way of cattle eating -- eating grass on the range. People now pay a higher price for this kind of meat. It is a leaner meat because cattle do a lot of walking around to graze. Cattle, in feed lots or a combination, fatten up fast on a grain diet (e.g. Corn, sit, etc.), plus, we seem to be running out of land...
  2. cyclinglady
    Well, I would strongly recommend seeing a doctor (maybe an endo if your PCP is not thyroid savvy, but I have always used my PCP). Are you sure you had the hypo-related thyroid antibodies tests (3 of them)? It looks like you are hypothyroid. You probably need thyroid replacement, but I am not a doctor! Thyroid replacement will help you feel better...
  3. cyclinglady
    On a gluten-free diet, my low iron resolved within months with supplementation. I would ask your doctor to re-check your ferritin levels and antibodies at the three month mark since you can not judge by symptoms. I would also ask for a bone scan. I fractured two vertebrae doing NOTHING two months into my celiac disease diagnosis. Found out I had osteoporosis...
  4. cyclinglady
    Elk is gluten free like all unprocessed meat. Okay, everyone said that, but extra validation never hurt. You should ask who butchered it though. Lots of my family members hunt (yes, they work and are dedicated to the National/Federal Parks and Land, but culling herds is a necessity in time of drought and over population). Their butcher is local and...
  5. cyclinglady
    Hi! It is true that there is a strong link of autoimmune thyroiditis (Grave's Disease or Hashimoto's Thyroiditis) with celiac disease because both are autoimmune disorders. You can get screened for celiac disease by taking a simple blood test (JMG supplied excellent advice). You do need to be on a gluten-containing diet (daily, 8 to 12 weeks prior...
  6. cyclinglady
    I looked at their website, but did not see anything that mentioned gluten free. Tea is normally gluten free unless gluten (usually barley based) is added. But that should be included on the label. I drink plain old Lipton and Republic of Tea (this one is certified gluten-free). It is possible (though very low) that the tea was cross contaminated. Here...
  7. cyclinglady
    @LouiseBea Welcome! Has celiac disease (dermatitis herpetiformis, skin version) been ruled out? DH treatment requires a life-long gluten free diet.
  8. cyclinglady
    Wow! My kid did a 5th grade project on cancer-sniffing dogs. Besides her written report, we demonstrated a dog's ability to sniff out "cancer" by bringing in our Labrador. My daughter trained our lab to find a tiny bit of food hidden in cups. I have joked before about the need for a dog who could sniff out gluten. My bet is that the dog would beat...
  9. cyclinglady
    Better to catch a celiac disease diagnosis early. Experts do recommend the testing of all first-degree relatives even if asymptomatic and while on a full gluten-containing diet. I had my kid screened and requested a full panel since I test oddly. She was also screened for anemia. That was about three years ago. We are considering running the panel again...
  10. cyclinglady
    My anemia resolved with a few months of a gluten-free diet and I had moderate to severe intestinal damage. My hemoglobin has never been in the normal range (I have a genetic anemia on top of the iron-deficient anemia). Your result seems fine. A low hemoglobin is below a 7 or so. That is when doctors start pushing for transfusions. You also have a hard...
  11. cyclinglady
    Only you can make a decision on whether to do a challenge or not. My hubby went Gluten Free 12 years before I was officially diagnosed. He refuses to do a challenge, because we need to pay our bills and we know that gluten makes him sick. Why would anyone remain gluten free for more than 16 years if they did not need to? He does tell me that I have...
  12. cyclinglady
    A CBC would check for size of blood cells, number of blood cells and hemoglobin levels, etc. If you are within range, you probably would not be considered anemic. A ferritin test (iron stores) can be checked too. If very low, it starts to create symptoms. Open Original Shared Link
  13. cyclinglady
    Welcome! Sorry to hear that you had been gluten free when you were tested for celiac disease. The only way to get an official diagnosis is to do a gluten challenge under a doctor's care: Open Original Shared Link As far as recovering from a glutening? Everyone is different. It can take a week or months to recover. There is no speedy way...
  14. cyclinglady
    ?. Okay.....but what is the cause for the low ferritin? A glutening? When was the last time you had a celiac antibodies test or do you use DH flare-ups as a gauge?
  15. cyclinglady
    I only test positive to the DGP IgA (even in follow-up testing) and my biopsies were a Marsh Stage IIIB. Thankfully, my GI ran the entire panel! Most doctors prefer the good, but cheaper TTG IgA test, but it does not catch all celiacs like me. In fact, it often does not catch young children and really old people based on a few pretty recent studies. ...
  16. cyclinglady
    Just search for GIs in your area. Usually doctors post biographies. Look for someone who mentions celiac disease in his/her bio. Then call the office to confirm. Sacramento is a pretty big city. If you are not successful, there is a celiac disease center at Stanford University.
  17. cyclinglady
    Go for it! If you are converting the recipe from a gluten-containing recipe, hold back a few tablespoons of flour until you are confident that the dough is the right consistency. Reduce the sugar a few tablespoons too as this particular bread flour already has some added sugar. Chill the dough well before baking. Use a silicone mat or parchment paper...
  18. cyclinglady
    Hi! i want you to know that I ONLY tested positive on the DGP IgA (even in follow-up testing and different labs). My GI was celiac-savvy and ordered a endoscopy/biopsies to confirm my celiac diagnosis. You only need one positive on the celiac panel. My only symptom at the time was anemia. My ferritin was very low and I had already gone through menopause...
  19. cyclinglady
    Here is the most current gluten free drug list for 2017. It is a work in progress, though. There are fewer drugs on this current list than on his previous list, but I expect the pharmacist is still working in it. Check this list, if your medication is not on it, ask your own pharmacist to research for you. Once he/she has come up with a few acceptable...
  20. cyclinglady
    Oh, one more thought. I could have sworn that my niece had celiac disease. She tested negative. Her 4th GI, finally ordered a pill camera. They found Crohn's (she did not present with typical Crohn's symptoms) located at the very end of her small intestine beyond the reach of an endoscopy or colonoscopy. Not suggesting Crohn's, but not everything...
  21. cyclinglady
    I think that most members on this forum are either seeking a diagnosis or they are learning about how to adhere to the Gluten free diet and cope with a new lifestyle. No offense meant, but why are you here? Either trial the gluten-free diet (100%) or find another diet to help you lose weight or whatever.
  22. cyclinglady
    Holy Cow! This is RARE! Let's not jump to cancer and scare the ?!&! out of her! Nice to be helpful though! ?
  23. cyclinglady
    Keep us posted!
  24. cyclinglady
    Welcome! Glad you found us. It is nice to have access to people who are in the same boat. Ennis has provided you with some good links. Questions? Just ask! Healing? Takes time. Everyone is different.
  25. cyclinglady
    Well, we are not doctors, but most of us can feel your frustration at not seeing symptom improvement or getting a really firm diagnosis. I just threw out PCOS because I saw an earlier posting about you having acne and hair issues in an earlier posting, but I honestly do not have a clue: "Since going gluten free my hormones seem to have changed. My...
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