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cyclinglady

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Everything posted by cyclinglady

  1. cyclinglady
    Thanks for letting me know. I do understand your fears...sort of. My niece is 20 and was recently diagnosed with Crohn's. I could have sworn it was celiac disease, but she tested negative. A pill camera actually helped with her diagnosis as her damage was at the far end of her small intestine out of the reach of both scopes. I can tell you...
  2. cyclinglady
    Good grief! 1) I have never seen these shampoos in any of the retail shops that I frequent and 2) would never pay $68 for a bottle of shampoo -- gluten free or not. Who am I though to critique gluten-free shampoo when I purchase mine from Costco or Big box stores? But the author of this article is obviously an expert. Here is her complete bio posted...
  3. cyclinglady
    Welcome, Kim! It is hard to wait for test results! Did they run a celiac antibodies test as well? My GI told me that visually everything looked good, but my biopsies revealed villi damage. Keep us posted.
  4. cyclinglady
    This is what the gluten-free Watchdog has to say about plastic retainers: Open Original Shared Link
  5. cyclinglady
    Sorry, I should really read your posting. That is what I get when I am trying to multi-task! ? Have other things been ruled out (e.g. Crohn's)? Have your doctors found the cause of your anemia? If I recall, my ferritin increased from a 2 to a 55 in just a few months of being gluten free. Was the last celiac disease test given exactly...
  6. cyclinglady
    What does your doctor think? I was like you. Anemia, (low ferritin and hemoglobin) except I opted not to get transfusions. On top of that I have a genetic anemia which pretty much masked the iron-deficiency anemia. Oh, I am a cyclist too! Which celiac tests did you take? If the full panel was not given, you could ask for it. If my doctor...
  7. cyclinglady
    Welcome! The test you described helps to diagnose IBD. There are two forms: Ulcerative Colitis and Crohn's Disease. The first affects the largel bowel and the second the entire GI tract. This test does not help diagnose celiac disease to my knowledge. Open Original Shared Link It is possible to have celiac disease and one of the IBD disorders...
  8. cyclinglady
    Welcome. You might consider asking for the DGP celiac tests. I personally have never had a positive on the TTG or the EMA -- even on follow-up testing, yet my biopsies revealed intestinal damage. The other thing to consider is that some 10% of celiacs are seronegative. Learn more about the complete panel: Open Original Shared Link
  9. cyclinglady
    Make sure your GI takes all the recommended number and placement of the biopsies!!! My visual was "normal" on the endoscopy, but the biopsies revealed patches of moderate to severe villi damage.
  10. cyclinglady
    I am not a betting woman (unless Gemini is with me), but with thyroid, a removed gallbladder, and elevated celiac antibodies, chances are you have celiac disease. The endoscopy will confirm aand convince your doctor. Guess what? I had a non-functioning gallbladder removed 10 years ago, diagnosed with Hashi's 20 years ago and four years ago, my GI said...
  11. cyclinglady

    ARCHIVED Lotions

    cyclinglady replied to artistsl's topic in Dermatitis Herpetiformis

    I use the Costco brand (shampoo and conditioner). Even says gluten free on the label. The price is good, which is important when you have a very long-haired teenage girl who most likely uses too much! We also use Suave because Unilever is good about disclosing ingredients on the product label. Maybe not the best quality, but again, my teen and I tend...
  12. cyclinglady
    Good news! Please just make sure that you had the complete celiac panel taken. I never test positive to the TTG even in follow-up testing. If my GI had not ordered the entire panel, my diagnosis would have been missed. Remember, that some celiacs are seronegative (about 10%). What was the diagnosis, if you don't mind sharing?
  13. cyclinglady
    Unfortunately, the most recent study about when to give gluten to babies did not pan out. ☹️ Open Original Shared Link I too, delayed gluten (due to my hubby back then), milk and eggs when my daughter was a baby per the advice of my allergist. I fed her a Whole Foods diet rich in fruit and veggies. Did it work? Who knows? She does not hav...
  14. cyclinglady
    Welcome to the forum! Eating gluten free will not harm anyone provided their diet is varied (meats, fish, fruit, veggies, etc). Eating only gluten free junk foods like cookies and chips is NOT healthy when you exclude things like veggies. I have Hashi's and celiac disease. I have read sites that recommend a gluten free diet for Hashimoto's...
  15. cyclinglady
    Yep! I do not worry about a celiac reaction except what can end up in my mouth. So, I make sure my lipstick and hand lotion are gluten free. You can have an allergic reaction to anything topical. Like my Aunt has a nickel allergy and can not wear cheap earrings. My family can not use bandages that contain latex. You can have a wheat allergy in...
  16. cyclinglady
    Breyers Natural Vanilla Ice Cream. Just a few ingredients! Since vanilla is the most popular, it should be nut free too (not on shared lines). But call to confirm. Welcome to the forum!
  17. cyclinglady

    ARCHIVED Lotions

    cyclinglady replied to artistsl's topic in Dermatitis Herpetiformis

    Vaseline Intensive Care (white bottle) is gluten free. You can use coconut or olive oil. What about just some Neosporin (antibiotic ointment)? That might help the infected areas.
  18. cyclinglady
    True. I do not suspect Synthroid as the culprit. I should have made that clear. Tuesday should consider follow-up antibodies testing as a means of determining if her current symptoms are related to a repeated gluten exposure. It might just be a virus and not related to celiac disease at all. The reality is (based in member input) that most celiacs...
  19. cyclinglady
    Victoria, I think your advice is sound. It is much easier for Newbies to avoid oats until they experience some symptom improvement and then test (and that could be months or a year). Oats are still controversial. Sure, "gluten free" oats that have been grown and manufactured under a purity protocol system may be fine for most celiacs (but not all)...
  20. cyclinglady
    I would just suggest that you ask your GI to run a celiac panel to actually determine if you were glutened or not. When I experienced my first glutening, my symptoms were so different from when I was diagnosed and I had no idea what I ingested. Turns out based on my test results that I had been glutened. I suspected a few products, but never found the...
  21. cyclinglady
    I get facial and tongue swelling usually from medications -- even ibuprofen, aspirin and acetaminophen! I have regular allergies (IgE) and some odd ones (lots of hives). I am not sure that it is related to celiac disease/Hashimoto's (autoimmune) or it is a Mast Cell issue (neither does my allergist). It just falls under the umbrella of hypersensitivity...
  22. cyclinglady
    Too many celiacs were getting diagnosed with Refractory celiac disease which is not common. Many of these celiacs thought they were gluten free, but found that they were still getting hidden exposures to gluten. Let's face it, the learning curve for the gluten-free diet is very steep. So, the diet allows celiacs to really eliminate gluten and heal...
  23. cyclinglady
    If you did not see any gluten listed, I would relax.
  24. cyclinglady
    Have you been tested for celiac disease? Might this new problem be related to celiac disease?
  25. cyclinglady
    If you are attempting this diet, it is probably because you are not feeling well, despite eating gluten free. I would skip even a gluten free multi-vitamin (even if certified) at least for a month as part of this experiment. It should not harm you. Be sure to eat a varied diet. Of course you should discuss this with your doctor. We don't know if...
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