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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Welcome! Food intolerances are real. Sometimes they resolve on the gluten-free diet and others do not. I also can not tolerate pineapple. My list includes Xanthan gum or anything related to the garlic family. My intolerances to dairy, nuts, and eggs have resolved. Is your gallbladder functioning? A HIDA test can determine functionality.
  2. cyclinglady
    Hi! I know your doctors have told you that you have refractory celiac disease, but maybe you do not. Some researchers have found that many celiacs have been improperly diagnosed with refractory celiac disease. Refractory celiac disease is rare. The researchers discovered that trace contamination was occurring with many celiac patients. Open...
  3. cyclinglady
    Yes. Celiac blood testing measures antibodies which can take months to build up after being dormant (gluten free). Here is more information regarding testing after being gluten free (gluten challenge): Open Original Shared Link I hope you feel better soon!
  4. cyclinglady
    Great! ?
  5. cyclinglady
    Not sure how Canadian Health works. My insurance allows me to choose a GI within my network. I check the doctor biographies.
  6. cyclinglady
    With her IgA level normal, all the IgA tests for celiac testing work. It would be interesting to see what the DGP IgA test result is. With a slightly elevated TTG IgA, she should probably get an endoscopy. But that could be related to another autoimmune disorder. Going back on gluten for two weeks is not really enough time for the blood tests. ☹️ ...
  7. cyclinglady
    Did you call the drug manufacturer? Are you looking for an actual gluten label in the box? It does not appear to have any gluten ingredients, at least on the tablets. Drugs do not fall under the FDA rules for gluten free. Most drugs are gluten free, however. Too bad it is not clear cut. If you are looking for a cause, this would be it!!! Anyway...
  8. cyclinglady
    A month is a long time to still have an allergic reaction. I am not a doctor, but your tongue looks an awful lot like the Burning Mouth Syndrome images. Of course it could be celiac related. Who knows? I think your doctor is your best bet! ?
  9. cyclinglady
    I am not a doctor, but IBS is sort of code for "I be stumped". But your doctor has give you good advice. Besides strictly adhering to the gluten-free diet, follow the FODMAP diet for at least six weeks. Keep a food and symptom diary. If you improve after six weeks, try adding the restrictive food back into a diet, one food at a time. You might be able...
  10. cyclinglady
    Welcome to the forum! Unfortunately, symptoms for celiac disease can overlap with many other illnesses. The blood test and intestinal biopsy can help to diagnose celiac disease. You will just need to wait. ☹️ Consider asking for the complete celiac panel, if you still think it might be celiac disease. Please do not discount Crohn's disease whi...
  11. cyclinglady
    My reactions to gluten exposures have been inconsistent and/or severe with long recovery times. The only way for me to know for sure if gluten is to blame is to get my antibodies measured, which my GI has gladly ordered in the past. I would suggest asking for antibodies testing (celiac) in order to confirm or rule out a gluten exposure the next time you...
  12. cyclinglady
    An elevated TTG has been linked to autoimmune issues. He already has an autoimmune issue -- TD1. So, it could be related to that, but don't get your hopes up yet. Kids often test better to the DGP IgA. I test positive only to the DGP IgA (I am old!) and never on the rest of the celiac panel, even on follow-up testing. Weird, but true. If he does...
  13. cyclinglady
    When was your last follow-up celiac blood test? This will help determine whether your current issues are due to a celiac flare-up. Learn more: Open Original Shared Link If celiac disease is ruled out, you can focus on other possible causes. ?
  14. cyclinglady
    I am sorry that your child is ill! Thank goodness you keep on advocating for his health! Yes, it could be the early stages of celiac disease. TD1 and celiac often go hand-in-hand. About 10% of TD1 patients develop celiac disease. Both seem to share the same genes. Both are autoimmune. In fact, it is recommended that all TD1's get screened for celiac...
  15. cyclinglady
    Neurological issues take the longest to heal. ☹️ Most celiacs take a year or longer to heal. Add In neurological issues and it could take years. So.....be patient! So hard, I know. Learn and master the diet. Avoid going out as each gluten exposure causes set backs and further damage. Read our Newbie 101 thread under "Coping" for great tips. Just tak...
  16. cyclinglady
    This might answer your question: Open Original Shared Link
  17. cyclinglady
    I am diagnosed, but my hubby is not. He has been gluten free for 16 years (just four for me) and there is no way he would go back on gluten in order to get an official diagnosis. Just keep in mind that your children/siblings/parents should be screened. celiac disease is genetic. They may present differently than you. Some celiacs have no symptoms s...
  18. cyclinglady
    I hope you figure it out! ?
  19. cyclinglady
    You have Hashimoto's Thyroiditis, right? Your CRP and sed rate may never go down with Hashi's even though you are doing a good job of being gluten free for your celiac disease. celiac disease is the only Autoimmune disease (AI) that you can control because the trigger is gluten. No such luck with other AI issues like Hashi's, lupus, etc. Your cholesterol...
  20. cyclinglady
    Since your first GI never tested you for celiac disease and might not have taken biopsies during your endoscopy, I would suggest finding a GI who has diagnosed or works with celiac patients. Often doctor directories list biographies on each physician. Look for one who specializes celiac disease. Call and ask staff before wasting time and money in an...
  21. cyclinglady
    Oh, so sorry that you are unwell! Your diet sounds great. Maybe lay off the cashews (hard to digest for anyone) for a few days. Honestly, when my gut is damaged, I can not drink alcohol. Try giving that up until you have has significant improvement. Learn more about leaky gut:
  22. cyclinglady
    There are 300 symptoms for celiac disease and many overlap with other diseases. There is no way anyone (even a doctor) who could diagnose you based on symptoms alone. To learn about testing: Open Original Shared Link The problem is that you need to be on a gluten diet for ANY celiac test to be accurate. Learn more about a gluten challenge: ...
  23. cyclinglady
    I don't understand. What numbers went bad?
  24. cyclinglady
    Congrats on lowering your TTG so fast! It can take a year or longer for test results to hit normal range. Everyone heals at a different rate. Celiac disease is genetic. It is the only autoimmune disorder that has a FOR SURE a genetic link (more than 30% of the population carries the genes). But know one knows what triggers the autoimmune response...
  25. cyclinglady
    Here is my two cents..... My hubby went Gluten Free 16 years ago based on the poor advice of my allergist and his GP (PCP). Well, it worked! It took a good year to master the gluten-free diet and to feel well. Four years ago, I went for a routine colonoscopy. During my GI consult, he recommended celiac testing. I was shocked! Okay, I am small...
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