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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    It might have been me. I was stating that, in my case, Thalassemia a genetic anemia that I've had my whole life and peri-menopausal issues/thyroid (heavy bleeding), caused my doctors to over look Celiac Disease for years (decades). I actually had that second iron-deficiency anemia and in my case, taking iron and being able to absorb it (and my other meds...
  2. cyclinglady
    Thanks for adding more information on Thalassemia! I was being very self-centered and just though about my issues with it!
  3. cyclinglady
    Yep, the old saying "Health is Everything" is so true! Glad you are feeling better!
  4. cyclinglady
    So often food intolerances or allergies don't cause severe and swift reactions. Often they are delayed up to 24 hours or longer. Reactions can vary with the food. For example, oats and quinoa reactions follow my first gluten reaction of food sitting in my stomach and pain or tweaking in that area. Later I get muscle aches, fatigue, etc. Milk, though...
  5. cyclinglady
    Rice porridge, Rice or Corn Chex cold cereal, leftover rice or like, today.....canned salmon on fresh greens! Yes, for breakfast! Ate a grapefruit and had coffee. Then snacked on some sunflower seeds. I'm allergic to eggs, so they are out for a protein source. So, I typically have leftover meat (i.e. I cook a bunch of chicken breasts and then freeze...
  6. cyclinglady
    What kind of porridge? I can not tolerate even gluten-free certified oats or quinoa. Have you read the threads on mast cell activation syndrome? Worth reading.
  7. cyclinglady
    Check out the newbie thread for other tips on avoiding cross contamination. Other items like a colander or wooden spoons can gluten you in a shared kitchen. No bulk nuts either! Good luck!
  8. cyclinglady
    Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low...
  9. cyclinglady
    I do not have DH, but it sounds like you do. Your best and only defense is no gluten! Recovery from DH can take much longer than intestinal healing based on what forum members who have DH have stated. Patience is required. Search this forum for symptom relief. Good luck!
  10. cyclinglady

    ARCHIVED Tingling

    cyclinglady replied to KCG91's topic in Related Issues & Disorders

    Take vit. C (supplement or in food) with that iron. I take a sublingual version of vit. B12 to by-pass my intestinal tract. My current docs are not too savvy about supplements or celiac disease for that matter, but I think supplements are helpful until healing is complete. I have taken supplements for years (my retired doc did a lot of "out-of-box" thinking...
  11. cyclinglady
    How is your thyroid? My first hypo symptom has always been slowing down while running and just not feeling strong. As it worsens, I find that I have to take lots of work breaks, eyebrows thin at the outer edges and I feel a bit cold. Anemia causes fatigue for me too as well as shortness of breath. It was basically my only symptom that my caused my doc...
  12. cyclinglady

    ARCHIVED Tingling

    cyclinglady replied to KCG91's topic in Related Issues & Disorders

    I started taking vit. B12 and magnesium in hopes of eliminating the nerve symptoms. It seems to be working!
  13. cyclinglady
    Ugh, I had the flu (fever for five days) at the beginning of the month. Lots of fatigue too for two weeks afterwards. Than hubby shared an intestinal virus (was not food poisoning) and I was out for another five days. My daughter had the flu too. She was at the docs for a well check and saw a notice about the flu and how it can affect you cognitively...
  14. cyclinglady
    If I get accidentally glutened my symptoms last for a week or more. I get crazy (just ask my family) and have tingling issues too that have been resolving as I heal. Nerve damage takes a long time to heal -- if ever, but I am always hopeful.
  15. cyclinglady
    Oh, my mom has Fibro and Graves (thyroid) but recently tested negative to celiac disease. She does not believe that foods could trigger symptoms even though her kids and grand kids (some) have allergies/asthma/food intolerances to the same things (i.e. Nuts, eggs, milk proteins). I completely disagree!
  16. cyclinglady
    I have two anemias: thalassemia (genetic) and iron deficiency which did not respond to iron supplements due to undiagnosed celiac disease. Vit. D was also low even after taking 2,000 units a day! Everything has improved with my celiac disease diagnosis and gluten-free diet. I also have osteopenia and they suspect osteoporosis in my upper back since I had...
  17. cyclinglady
    I know I should be thankful, but I am sick of summer and long for some rain. It is so dusty and dirty! I bought some new winter clothes during the holidays and I can not even wear the sweaters. Flip flops and capris are my daily attire with a hoodie tossed on when evening comes or I shop. That said, my heart goes out to those I snowy areas. I have...
  18. cyclinglady
    You would want to see one if your myelin was being damaged causing eye damage, paralysis, severe pain, etc. My MIL died from it. I would think you would want to rule it out. Problems may stem from celiac disease, but I would want to be sure. It is a horrible way to suffer and die. My MIL was a saint and she never screamed in pain in front of us, but...
  19. cyclinglady
    My hair was super duper thick, but I had hair loss this past year from thyroid problems and that included my eyebrows which thinned out at the outer edges. All back to normal since my thyroid has stabilized and I must be absorbing all those vitamins I am taking' not to mention the good gluten-free food I have been eating!
  20. cyclinglady
    Good for you for complying with your diet! It is such a huge adjustment. I can not speak to your other issues, but can share my story. My blood panel came back mildly positive, but my biopsy showed marsh Stage IIIB. My one year follow-up is coming up at the end of March. I expect my blood test to be in the normal range, since I have been cooking/shopping...
  21. cyclinglady
    I think it has to do with changing up the various strains that each probiotic offers.
  22. cyclinglady
    Thanks for your response!
  23. cyclinglady
    I have been gluten-free for almost a year, but have been cooking gluten-free for my husband for 13 years. It is hard. I hate it. I am sick of cooking three meals per day and feel like a pioneer woman. How I long for simple convenience if eating out! The good news is that I can kiss my husband without the worry getting glutened! Things could be worse...
  24. cyclinglady
    Congrats!
  25. cyclinglady
    I can understand your frustration concerning your son's antibodies being high after one year. I wash all my dishes by hand. I use a separate pot, colander and spoon for my daughter's gluten noodles. I clean those items along with her thermos and cereal bowl using a separate sponge. I change my dishcloth and towels daily and I do all the cleaning. (She...
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