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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. Ugh! My intolerances and allergies have not improved. Now, I need to keep to a low carb diet. Will it ever end? I sat and drank an ice tea today while my parents munched on Chicago style Italian Beef sandwiches. I assured them that I was happy not to be getting glutened. The risk of even ordering a salad seemed too great. I am glad they enjoyed...
  2. I did not have any symptoms at all except for anemia. I just went for a routine colonoscopy (over 50) and the GI suggested Celiac. I was shocked. Took the blood test and it was mildly positive. I knew that I had it, so I ate gluten like a fiend for the next seven weeks. I literally and quite stupidly consumed a loaf of sourdough bread, pastries, cakes...
  3. No, my GP didn't seem concerned. Instructed me to cut "out sugar" and exercise (I get my results and doctor comments online too). What? I teach three exercise classes a week, run 3.5 miles twice a week and bike ride up to 50 miles on the weekends. I don't think I can exercise more! I've already given up gluten and there was no way I was going to...
  4. We use it and we have never had a gluten reaction.
  5. I am formally diagnosed but my husband is not. He went gluten free 13 years ago at the advice of my allergist and his MD. He will not do a challenge. Why bother? It has been so long and we know gluten bothers him. I do not recall the statistic, but about 1/3 of the US population has the gene for celiac disease.
  6. My only symptom was anemia. No intestinal issues. My diagnosis was a shock! A few months later, I had a fracture and now have osteoporosis. Get your doctor to order a complete celiac blood panel.
  7. I use Gu.
  8. Find another doctor…….
  9. I would get them tested (ask the ped or GP) now before going gluten free. It's standard protocol for those with celiac disease to have children, parents and siblings tested. My daughter was symptom free, but our GP gladly tested her. He never argued at all. She was not positive, but that doesn't mean she won't ever get it (with two parents with gluten...
  10. I was formally diagnosed a year ago. My husband has not been formally diagnosed, but went gluten free 13 years ago at the advice of my allergist and his MD/GP. Since my daughter was symptom free (I know….my only symptom was anemia), I waited until the "Affordable Care Act" was officially in place to have her tested for celiac disease. We are self-employed a...
  11. How's your thyroid? That's how my brother was diagnosed with Hashimoto's thyroiditis. He thought it was carpal tunnel syndrome, but it was his thyroid. He probably should be gluten free, but he hasn't been tested for Celiac disease yet. But, yours might very well be related to Celiac. Only more time will tell. I'm in a orchestra band and play the...
  12. Like, "Not Me!", my husband and I get cranky when we accidentally get glutened. Prior to my diagnosis, I was having bouts of anxiety that now, looking back, were probably related to both Celiac, anemia, thyroid swings and menopause. I was a mess. This all went away when I resolved each issue, but it took a year or so. It wouldn't hurt to go gluten...
  13. I use Ester-C but only because it is gluten-free and at Costco (relatively cheap).
  14. Yes, chances are you are healed. Most assuredly your blood tests will not be accurate. The good news is that you are now avoiding most complications. So, based on your year of being gluten free and seeing improvement, continue to stay the course. You can think about testing your kids or siblings. Again they must be eating gluten! By the way, I...
  15. I have to say, that I used to shop a lot at TJ's, but now that Walmart and other stores have many certified gluten free items, I do not go there much even though I have been shopping there for 30 years. I can not drink wine anymore and now I can not eat my beloved cherry chocolate chip soy milk ice cream either. Man, I used to buy six at a time! Drat that...
  16. I've used that brand. Start slow. Take just one tablet (I never took two even when the doc suggested it) every three days. Take with vit. C for better absorption. Wait a week or two and then go to taking one every other day. Wait for another week until you work up to a daily tablet. I take mine at night with a vit. C tab or a glass of OJ so it will...
  17. Welcome. Keep us posted on your results! Keep eating gluten in case you need a biopsy.
  18. We switched to potato and corn chips. My daughter loves Pirate's Booty. For a crowd (Girl Scouts) I make popcorn on the stove. Serve with some fruit and the kids love it. It is cheap too! I shop at Sprouts (cheaper than whole foods), Costco, Trader Joe's and my local grocery store. I hit Walmart for pre-packaged stuff when we are on the road.
  19. Although I'm a pretty good authority on Celiac Disease (I was diagnosed a year ago, but my husband has been gluten free for 13 years), I'm new at Diabetes. Your BMI is fine. Don't worry about that. Just make sure you are tracking your calories for your current weight (or more if you want to gain). You need to be concerned (and you are) about...
  20. What a relief for you. Now you can move forward!
  21. Ugh! Those glutened covered slobbery adorable faces and tiny hands CAN make you sick! Imagine gluten on your walls, light switches. Let's face it, gluten can be everywhere when kids are involved. We wash our hands a lot. Germie gel is great for germs, but it won't clean off sticky gluten residues. I won't even touch food outside the house if my hands...
  22. I agree with everyone! Most of my intolerances /allergies were identified long before my diagnosis. Since going gluten free for almost a year, my intolerances/allergies have not gone away (milk, nuts, garlic, eggs). Now, I have developed a few new ones (xanthan gum found in lots of processed gluten free foods) and pumpkin seeds. Will it never end? ...
  23. He needs to be on gluten until all testing is done per the University of Chicago Celiac Center and then you can remove the gluten. Please research their website as they are one of the leaders in Celiac Disease Research and treatment. By the way, granola is not gluten free as oats can be cross contaminated (unless it's certified gluten free granola)....
  24. Beside Celiac-related woes, you should research your fasting blood glucose. It seems high -- just on the border from pre-diabetes and sugar spikes can cause hand and feet numbness, etc. So, watch your carb/sugar intake as that tends to increase when you go gluten free (gluten-free flours, rice, etc.) Chances are your docs will take the "wait and see...
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