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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Your first obligation is to your son. His health and well being is your responsibility. I am a mother first and a daughter second now. I know your anxiety. I travel both summer and winter to stay with my family for weeks at a time. My husband's been gluten-free for 12 years, so my family's been pretty much on board, but now I've been diagnosed. My...
  2. cyclinglady
    Thanks for your response!
  3. cyclinglady
  4. cyclinglady
    Did your doctor take six or seven tissue samples during your endo (biopsy)? A visual means nothing! My only symptom was anemia besides having been diagnosed with thyroiditis some 15 years ago. But, I do have Thalassemia too which is another type of anemia and causes low hemoglobin too. My ferritin levels have been as low as a 2. I can't answer your...
  5. cyclinglady
    Excellent advice from the others!!! Going gluten-free is NOT more expensive! My entire household is pretty much gluten free except for pre-packaged gluten foods my daughter takes to school. She actually prefers my homemade gluten free goodies over any store bought item. I spent less than $50.00 replacing a cutting board, some plastic ware, colander...
  6. cyclinglady
    Keep pushing for the Celiac Blood Panel. I agree, your doctor is not up-to-snuff on diagnosing celiac disease. My husband has not had a single sinus infection since going gluten-free twelve years ago! No snoring either (except when he's been accidentally exposed to gluten). Best of luck to you!
  7. cyclinglady
    I agree with Colleen and Lisa. Your GI should have ordered a celiac disease panel and done biopsies. I'd try to get another doc to do the test. That said, I'm officially diagnosed, but my husband (who has been gluten-free for 12 years has not). We'll never know if he has celiac disease as he won't do the challenge. Who can blame him? He knows that...
  8. cyclinglady
    Maybe he thought the ER ran a Celiac panel,but I doubt it. Get the blood test and then get off gluten! Take copies of testing procedures from reputable sites (e.g. University Hospitals) if you get resistance from him.
  9. cyclinglady
    That's weird! U of Chicago tells doctors to first take a blood test and then take biopsies. How did your doc justify the endo to insurance? He must not suspect celiac disease. There is still a chance to miss damage on a biopsy. I would think that you would need the blood test to rule out celiac disease as other things can produce Villi damage (per U...
  10. cyclinglady
    Wow, someday I'll attend one! It sounds fabulous!
  11. cyclinglady
    Happy Birthday! I have been on a rotational diet but it's been over 15 years. I still remember it well. My day always started with dinner and that way I had leftovers to take to work for lunch. I did a four day plan. I divided up all the foods that I could eat grouping foods that went together in terms of previous cooking habits (e.g. beef & potatoes...
  12. cyclinglady
    Welcome Miss Chris! It is hard to have celiac disease and it can be depressing! I was diagnosed in March. Fortunately, my husband's been gluten-free for 12 years. Who would have thought that both of us would have issues with gluten? Even though I was already gluten-free savvy, I took my diagnosis hard. But six months later, I'm feeling pretty good...
  13. cyclinglady
    Here's some information about testing at UC San Diego's Celiac Center: Open Original Shared Link It mentions that you must be eating gluten until ALL diagnostic tests are completed! My doctor told me to continue to eat gluten after my "weak" positive blood test until my biospy/endoscopy seven weeks later (which showed moderate to severe damage -...
  14. cyclinglady
    Making it the old-fashioned way is way better! Everyone loves the taste of our popcorn! It's cheaper too. No need for an air popper. Just pop it on the stove with a little bit of oil. Keep it moving and shake it. Like the microwave popcorn, you have to listen to for the popping to slow down.
  15. cyclinglady
    I've used it for years to make pudding (whole or pre-cooked). As kids we didn't even let the pudding cool down completely to eat. I used it just this week as a thickener for my apple cobbler. It helps solidify the filling for pies. Now being gluten-free, it's another "piece" of the flour blends used for baking.
  16. cyclinglady
    Homemade chicken rice soup, biscuits an apple cobbler for dessert! It's our first rainy day of the season and it feels cold (60 degrees compared to 94 two days ago!).
  17. cyclinglady
    Enjoy your day and best wishes to you! We just celebrated our 25th on Monday and I hope you and your husband will also enjoy many years of happiness!
  18. cyclinglady
    Yeah, I know that quantity does not mean quality (I'm married to a Six Sigma Black Belt ), but I was just trying to point out to Vallene that she should try to follow all the advice especially when concurrent advice is given. Of course, not everyone here is an expert and you have to use good judgement and common sense. Hard to do when you're suffering...
  19. cyclinglady
    My doc used the old test, so it can't be compared to yours.
  20. cyclinglady
    Rice flour is good, but if you only use it, you'll get "gritty" baked goods. Blends are best and there are different blends for different baked goods.
  21. cyclinglady
    So, it appears that you have an intolerance to either corn or nightshades (tomatoes, white potatoes, etc.) Another idea is that you got some cc issues with Trader Joe's products. It's Wednesday and unlike a gluten response, my intolerances/allergies usually go away within two days. Let's hope it's the same for you. Eat only whole foods for the next...
  22. cyclinglady
    My old MD believed in Leaky Gut Syndrome. All those courses of antibiotics you took! (As a side note: CIPRO has a "black box" warning about serious side effects that the FDA has required the manufacture to disclose.) Frieze's suggestion is good. You typically can last a month on a diet like that. All fresh meats, though. Nothing preserved. Then...
  23. cyclinglady
    Please read jebby's blog located on this forum: https://www.celiac.com/gluten-free/blog/1038/entry-1883-my-oh-my-peripheral-neuropathy/ There are others who have the same issues with neuropathy. Best Wishes!
  24. cyclinglady
    Cans of good salmon, sardines, good tuna. Go Picnic gluten-free meals are yummy! Soy or coconut yogurt, fruit, cold veggies, cereal. Hotels bring in microwaves and frigs, can't the hospital? If not, a big ice chest (they have ice!!!) I'm sure they have a dietitian on staff and you need to meet with them to discuss your diet but to see if they have...
  25. cyclinglady
    What about winter squashes, legumes and beans? What are you eating for protein? Make a list of all the foods you are eating. Maybe that list isn't so long. Maybe you're just eating the same 20 or so foods all the time. Time to try new veggies or fruit -- like Taro root. Lots of carbs there. What fats are you eating? Are you rotating your foods around...
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