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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Laura's right. Try another product. Or have some gluten-free chocolate. I will say that the only food that my husband can not eat besides gluten, is chocolate! Ugh! Let's hope this isn't the case for you.
  2. cyclinglady
    First of all, "it's not all in your head". That's just a cop out for a doctor who's at a loss for diagnosing you correctly! Terminate your relationship with him ASAP but not before getting copies of everything single thing in your file (including all labs). I had a doctor like that once, but fortunately, my husband told him off! It was not in my head...
  3. cyclinglady
    Thanks for the update! I'm glad you are finally getting some answers and help! Yes, it's hard at first going gluten free and it's a pain to eat out easily, but at least this is an illness that you can treat with good wholesome food! Things could be worse! Claire's finally going to start feeling better and so will you! Continue to do as much...
  4. cyclinglady
    In any case, find out the root cause of your anemia. Don't just let the docs prescribe iron pills! Good luck!
  5. cyclinglady
    Good catch on the T3 and T4 levels. For 20 years mine have never been off, so I don't think about it. Thanks!
  6. cyclinglady
    I buy pre-packaged gluten-containing foods for my daughter to take to school. No gluten bread or anything that will crumble. I also purchase cookies, but keep them in a separate area/container and I don't let her eat them walking around the house and she must wash her hands when she gets home from school and after eating a rare gluten snack. Most...
  7. cyclinglady
    Go Picnics are great and are perfect for traveling!
  8. cyclinglady
    I've never had any issues with probiotics and I've taken them in many forms. Maybe something else?
  9. cyclinglady
    Yes, the symptoms are very similar (gastro). I'm sorry to hear about your sister. Be sure to get checked yourself!
  10. cyclinglady
    All good advice! Maybe you should get a bone scan. Folks with celiac disease, even if they are kids, can have osteopenia or osteoporosis. Your doctor may want you to add in more calicium in the form of supplements until you are properly absorbing vitamins and minerals, etc.
  11. cyclinglady
    It might be best to continue to eat gluten until you get the Celiac Blood panel results. If it's positive for Celiac Disease (celiac disease), your doctor may add another endoscopy to your upcoming colonoscopy appointment. If so, you'll need several tissues samples from the small intestine to confirm celiac disease. Then you can go gluten free! Welcome...
  12. cyclinglady
    I'm going to defer the celiac lab result questions to some of our experts! I will say that your TSH is high. The current range is between 1 - 3. I feel best personally, being closer to a 1. Were you tested for thyroid antibodies? Both my brother and I were diagnosed with Hashimoto's Thyroiditis when we were in our 30's. So, it's not unusual for men...
  13. cyclinglady
    100 people? It only takes one gluteny kid to spread crumbs in your own kitchen! Seriously, you have to hit 100% -- not 98% to be gluten free. I think that you'll find your RA or fibromyalgia symptoms will diminish or even go away completely if you are 100% gluten free. You might have some food intolerances too (e.g. nightshades: potatoes, tomatoes...
  14. cyclinglady
    I suppose you could be absorbing some iron depending on the severity of intestinal damage. I would absorb the iron and my levels would improve within a month or so, but once I stopped the iron, my ferritin levels decreased. Are the doctors sure you have iron deficiency anemia? It could be anemia due to a Thalassemia trait? Might be worth researching...
  15. cyclinglady
    Is there anyway you can get copies of your lab tests and make an appointment with another doctor to review the results? It would be worth paying out-of-pocket for a visit or discuss it with your GP who might not be an "expert" but could discuss with other doctors in the practice (or research it). A colonoscopy isn't bad if you are sedated (knocked out...
  16. cyclinglady
    I save the ends of my loaves I purchase and keep them in the freezer. When I accumulate a bag full, I run it in the food processor (or crunch it up in a plastic bag using a rolling pin). Good tip on the crushed Chex!
  17. cyclinglady
    It's okay. It's the beans. I used this flour when I first started making gluten-free stuff for my husband 12 years ago. He only asked for apple raisin spiced cupcakes and all the spices pretty much masked the bean flour. Now I use a few other flour blends (all-purpose) and mix in a portion of bean flour since I bought a ton of it (I store it in one of...
  18. cyclinglady

    ARCHIVED Life Is Good

    cyclinglady replied to MattMcI's topic in Sports and Fitness

    It's a great feeling, isn't it?
  19. cyclinglady

    ARCHIVED Life Is Good

    cyclinglady replied to MattMcI's topic in Sports and Fitness

    Sounds like you guys are all getting back to good health! Just remember that it takes time to heal. You'll get there! Take it from me who's had to sit out when I have: delivered a baby via c-section had gallbladder surgery fractured a vertebrae It took time but the end result was that I went right back to my "game". It will come back!
  20. cyclinglady
    Ugh! You couldn't PAY me to eat a buffet unless it was in a totally dedicated gluten free restaurant (are there even any of those around?) Reaction or not, you are more than likely causing damage. Each time you get glutened, it causes damage that take lots of time to heal. Did you say you have osteoporosis? How many fractures have you had? How many...
  21. cyclinglady
    Well, if you wanted to do an endoscopy you would have to do a gluten challenge. That means eating a couple of pieces of bread a day for two to three months. You are right that a biopsy is the "gold standard" for diagnosis, but you've been on the gluten-free diet for a long time. You have a Celiac Disease diagnosis and have been off gluten for a year...
  22. cyclinglady
    I admit that I'm a piggy! Ate about 8 Snickerdoodle cookies last night. They tasted so good fresh from the oven (and they were just sitting there on on the cooling rack calling to me! They taste great straight from the freezer, too! I'm going to break a tooth someday! Too impatient to wait for them to defrost! I ate a frozen brownie too. I have such...
  23. cyclinglady
    I'd push for a Celiac blood test like the others folks have mentioned. Do it now before you take him off gluten for good. Why test? He's already doing better on the gluten-free diet, right? A formal diagnosis will be extremely helpful when he goes to school as well as getting support from extended family and friends in maintaining the gluten-free diet...
  24. cyclinglady
    I haven't made gluten-free donuts, but I used to make yeast jelly-filled donuts (paczki). They tasted like heaven, but only just fresh from cooling and filling. I didn't care for them an hour or so even (maybe I just stuffed myself so much that I got sick of them). Commercial bakers must use preservatives to keep donuts fresh for hours. It was a lot of...
  25. cyclinglady
    I've been hosting Thanksgiving for decades! Since my husband's been gluten free, I prepared everything and prevented cross contamination. Now that I'm gluten free, no one brings anything with gluten into our house. I just prepare all the food. It's so much easier and everyone understands. That said, we are dining with gluten free extended relatives...
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