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Nancym

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Everything posted by Nancym

  1. Nancym

    ARCHIVED Quote Of The Day

    Nancym replied to moonunit's topic in Doctors

    What an amazing story! I tell you, I should write a book about the misdiagnosed people out there.
  2. Nancym
    I think the reason is because the diagnostic tests are too archaic. They're not catching the people before the disease has progressed to a severe point. The dietary test, if you've got GI symptoms, is too difficult or theyr'e too addicted to grains, for people to really do. Its like asking someone to give up cigarettes for a couple of weeks to see...
  3. Nancym
    Well, here's the interesting thing about that, Dr. Fine's stool tests finds antibodies to gluten in the intestines long, long after you've last consumed it. So what sort of long term damage does having an immune response going off periodically do to your body? Since gluten sensitivity is linked to a lot of autoimmune diseases... (I have a couple of them...
  4. Nancym
    I think you can get the best treatment by finding the doctor with the same diseases that you have.
  5. Nancym
    Hopefully it is just the gluten causing his bones to hurt but if you put him on a gluten-free diet and they still hurt, mention it to your Pediatrician and have him checked for ankylosing spondylitis. It causes joints to fuse, starts in the spine. Boys get it worse and more often than females. It is good to get an early diagnosis so you can start treatment...
  6. Nancym
    You know, I think the problem is a lack of support for people. If you don't have the internet resources of even a support group, you're so alone with this disease. Nothing helps like being able to talk over these issues and have other people help ground you in reality of dealing with the diet and social issues. My first thought when I get diagnosed...
  7. Nancym
    You could make your own almond milk if you can tolerate nuts. There's a ton of recipes on the Internet just search for "nut milk recipe" and you should be able to find them. They're really easy to make too.
  8. Nancym
    There is a drug induced Lupus too, so perhaps you were reacting to a drug you were taking? Talk to your doctor, he'll probably order a few tests. Do you have other symptoms? I thought I had Lupus too, turned out I had a different autoimmune disease. :\
  9. Nancym
    So if you have a reaction to it... the implications are frightening! Oops, sorry for the irreverence.
  10. Nancym
    I like the SCD diet on many levels, but my understanding of gluten sensitivity is that we lack the enzyme need to digest certain proteins. I don't think any diet can make you create what you don't have.
  11. Nancym
    Its my opinion that the best way to support your son is for your entire family to adopt a gluten-free/dairy free diet. You might be surprised at how much better you feel as well! Oats are controverial for celiacs. Most oats are at high risk of cross contamination with wheat or other grains due to the way they're raised and stored and processed. ...
  12. Nancym
    If your intestines were badly damaged it might take awhile for them to heal up. I have no idea how long it takes. Also, I wonder if perhaps there might be more things you're sensitive to, eggs, soy, nuts?
  13. Nancym
    You're probably wasting your time with another endoscopy if you're already off the gluten. Why not just get a diagnosis from Enterolab.com? They can test you for other sensitivities too.
  14. Nancym
    If you're gluten free it is too late for an "official" diagnosis because you have to have been eating gluten all along to have any shot at all as showing up celiac... unless you use enterolab.com. What I did was just give it up and noted how much better I did. Then I did the enterolab testing, got told about my casein intolerance, gave it up too. I...
  15. Nancym
    I'm fasting to help my other disease, ankylosing spondylitis. Just drinking tea, coffee and water. It is sort of related because it may be due to a bad gut bacteria and leaky gut which feeds on starch. I'm waiting for my tummy to go down too. I think I might also have either colitis or Crohn's disease, which goes along with this diagnosis. But any time...
  16. Nancym
    Just a suggestion but until you identify exactly what she is sensitive to, can you keep her on a very simple diet of fruits, veggies and meats? I'd avoid all grains and beans and nuts and dairy, including soy, rice and corn. I think a lot of us are sensitive to mulitple things and it takes a really minimalistic diet to eliminate them all, at first.
  17. Nancym
    When I bloat up it is a sign I've eaten something that is disagreeing with me. I don't know any other way of getting rid of it other than waiting it out and figuring out the culprit. Even though I've been fasting for 18 hours, I've got a lot of bloating still from the macadamia nuts I had been eating. :\
  18. Nancym
    Just wanted to mention a cookbook that would fit in really nicely with this diet. I just got mine yesterday. It is called "The Garden of Eating". The inspiration for the diet is the paleo type diet which means no grains or sugar or dairy. The only exception I see is there are some recipes that include potatoes and sweet potatoes, which wouldn't be allowed...
  19. Nancym
    With something like potentially 30% of the population being suspectible to food intolerances to wheat... I'm thinking maybe the human race took a wrong turn a few thousand years ago when it got addicted to gluey grains. In my fantasy I'd like to see it acknowledged that eating wheat is unhealthy and see the human race change its collective diet back to pre...
  20. Nancym
    Everyone is different and has different symptoms. I'd suggest excluding foods you think you're intolerant to, go on a simple, basic diet, then add those foods in gradually and take note of how you feel.
  21. Nancym
    Unfortunately untreated celiac disease leads to other autoimmune conditions quite often. Glad you're following the diet! I suggest finding a local celiac patient group and go to meetings. I haven't done that yet but I just got a diagnosis of an autoimmune disease and I have gone to one of their meetings. They're people you can learn from where to eat...
  22. Nancym

    ARCHIVED Milk!

    Nancym replied to VydorScope's topic in Related Issues & Disorders

    Dairy was pretty hard, but not impossible. I've always been a cream-in-coffee drinker and it took me a few weeks to adjust to black coffee. But now it tastes fine to me. I miss cheese the most I suppose, but I just changed my eating 100%. Instead of cereal, I have very yummy sausages I can microwave to heat up. Or eggs. I eat fruit instead of dairy...
  23. Nancym
    Well, I often felt the same way! If diet does the trick, that seems like a pretty clear diagnosis. I wonder how much of the diagnosis of IBS is actually a food intolerance? I diagnosed myself with diet, within 2 days I was like you, my GI tract was well behaved and quiet. But I decided to have followup testing done at Enterolab.com simply because I was...
  24. Nancym

    ARCHIVED Pets With Cd

    Nancym replied to plantime's topic in Publications & Publicity

    I started feeding my cat raw meats and he has finally stopped vomiting! He always vomited, even when I found all-meat cans of food in the grocery store, he'd vomit that too. It is more expensive but my puddy tat is so wort it.
  25. Nancym

    ARCHIVED Amazing Stupidity

    Nancym replied to floridanative's topic in Doctors

    Amen sister! My Mom's doctor is that way. I suggested that anti deppressants were not appropriate for my Mom because of her heart condition and the recent study that showed patients with cardiac problems died a lot more when they were taking AD's. She had no clue, absolutely no clue! She said, "Oh no. They're perfectly safe! We've been prescribing them...
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