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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    Hi Jack and welcome to the forum. I'm not sure if it is just on my computer but some of your text is missing on my screen, so forgive me if I have missed something you wrote. Celiacs have problems with diarrhea but also mucus with their stools sometimes. I am just wondering if you have a problem with either.
  2. cristiana
    Hello both. Beccs - is there any chance that it could be a grumbling appendix, as we call it here in the UK? Smiling Politely, can you be more specific as to which quadrant this pain is appearing in? Open Original Shared Link As a sufferer of mystery chronic lower left quadrant pain I extend my sympathies to you. It is very frustrating...
  3. cristiana
    Well done for getting those blood tests done. It will be interesting to learn the results, do let us know how you get on. Re: dealing with anxiety I found the following website very helpful. Open Original Shared Link There is also an excellent book to go with it, At Last a Life. Obviously, there can be physical reasons we are anxious such...
  4. cristiana
    Hi BeckyD. I am so sorry you are having all these problems. These issues have changed. After more than a year of itchy left-sided pain across my ribs and round to my back to the spine, under my left breast, etc, I was so sure was what I had was really serious that I managed to persuade a specialist to do not only another mammogram in January...
  5. cristiana
    About six months prior to my diagnosis I developed the most awful debilitating anxiety. Coincidentally my B12 levels were extremely low and I had iron anemia. These deficiencies were treated with supplementation before my actual diagnosis and I believe it helped tremendously. Do get your levels checked with your doctor first as if you are deficient you...
  6. cristiana
    This is a really interesting topic. I do find it curious that many of my coeliac friends here in the UK never go anywhere near any websites for help - they don't need to - because steering free of gluten has been all they have had to do. They wouldn't think twice about the possible risks involved in going to a restaurant and ordering an ostensibly...
  7. cristiana
    Hi again - I have just caught the beginning of a programme which dealt with food adulteration. You and Yours, BBC Radio 4. (22 Feb 2016). Open Original Shared Link If you are in the UK I think you can listen to it by clicking on the above link. It starts around 8 minutes in. It really made me think - the contributors were saying if I remember...
  8. cristiana
    Hello I am just wondering if anyone has experience very painful wind/gas? The reason I ask is I often have lower left quadrant pain (left of umbilicus going down to groin). I have had two gynecological scans - all is well, except one radiologist saw I had internal varicose veins, suggestive of pelvic congestion, that was overruled by a specialist...
  9. cristiana
    You're welcome, Flowerqueen. I hope you get the answers you are after. The problem that you and I and people like us are faced with is which other diet to follow, if we find ourselves in pain again. very bewildering but perhaps this is a good place to start!
  10. cristiana
    Hi - I don't know of any statistics but have just had to have a sigmoidoscopy because I get terrible lower left quadrant pain, near my hip, which feels like wind that builds up over the day. My gastroenterologist didn't expect to find anything through this test and he was right - all normal. He thinks it is either lactose intolerance or IBS, annoying...
  11. cristiana
    According to last year's Coeliac UK Food and Drink Directory they both are safe foods for us - I haven't got this year's though. I do react if I am glutened but have never had any problem with Creme Eggs - and I bought some just after Christmas. If you are anywhere else in the world maybe they change the ingredients but I would say you are fine in the...
  12. cristiana
    Well all I can say is thank you so much for coming back to report - this may help others. I have stopped popping vitamins since my last round of tests and it will be interesting to see what 'deficiency' symptoms go away! Seems to me that an in ideal world all of us with these tingling, twitching symptoms etc should have our vitamins tracked - once diagnosed...
  13. cristiana
    Hi Akron, I have quoted my comment and the corresponding part of your post as I am just blown away that you found the answer was too much B6, as I suggested That just shows you what a hypochondriac/Dr Googler I have become, because otherwise how would I have known that? I gave up studying human biology when I was sixteen! But seriously, I am glad...
  14. cristiana
    Just one thought ... if you manage to rule out GI sources of pain, and it isn't muscular skeletal pain referring to the lower abdomen/groin etc, it is worth finding out if you might have pelvic congestion. I was told by a radiographer that this might be my problem, as she saw a lot of veins on the left hand side when she did a scan, but the gynecologist...
  15. cristiana
    Hi again - don't panic about lactose intolerance as a lot of celiacs (if that is what you have) find it passes after a while gluten-free and the villi heal. I gave it up for a while and found it helped with the bloating but I missed dairy so much and started to bring it back in. I have had some relief in the past going lactose light for a while, drinking...
  16. cristiana
    Hello - strange you should post this as my pain symptoms are identical, except they are all on the left side. I have left hand sided lower abdomen, left groin, left pelvis and left hip pain, on and off for many months, and have had it again since the autumn. The pain is worse when I sit down all day or do exercise, particularly walking up slopes or uneven...
  17. cristiana
    I would second this - please get tested for B12. I found that supplementing this when I was borderline normal was tremendously helpful.
  18. cristiana
    Good to read on a brain fog day!
  19. cristiana
    I totally understand your concerns. I know with my own readings I might have another as yet undiscovered auto-immune problem, plus some other more undesirable things. It can be scary contemplating what-if scenarios but I am trying to become a bit more disciplined and not go down that route so much as one thing for sure, it won't add any hours to my life...
  20. cristiana
    Hi - I had very similar symptoms when I was your age, which came on when I was stressed and living abroad. I just assumed I had a nervous stomach as the symptoms waxed and waned over the years - worsening with stress. I had never heard of Celiac Disease then - had I heard of it I would have had the tests then. Instead it took almost thirty years to find...
  21. cristiana
    Hi Amina I guess if we live in gluten filled houses cc is always a possibility. There again, it is possible it has nothing to do with it - maybe it is just a rash caused by something else. Eczema? It is easy to attribute everything to gluten but sometimes gluten isn't the culprit . A different set of symptoms but a few months post DX I...
  22. cristiana
    Hi Donna I do understand your concern. I had never had much in the way of surgical intervention and had never had a sedative and was seriously freaking out about it. Would you believe it, in the UK it is quite routine to have an endoscopy without any sedation at all - my friend was dx'd this way - so I was thinking, I want that too! I have an inbuilt...
  23. cristiana
    Yup... and good old Costa Coffee sell gluten free wraps too, I always seem to be buying their last one though. I feel a bit guilty taking the last one! It seems to me they should be selling more of them.
  24. cristiana
    Gemini - I remember you saying this before about the bread in the UK. One really good brand is Marks and Spencers whole grain I think it is called - my fussy-eater family members can't tell the difference. The other tip someone told me when I was missing 'normal' bread was gluten-free bread somehow tastes much better toasted. I think they are right...
  25. cristiana
    I had terrible out of the blue anxiety before dx. My gastro symptoms followed but months later. I was very low on B12 and iron which I am sure didn't help. I have found that occasionally that anxiety comes back. It is as if I learned that behavior before I was dx'd and something triggers it again, not always gluten. When I feel it knocking at...
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