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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Could This Be A Problem
tarnalberry replied to wowzer's topic in Gluten-Free Foods, Products, Shopping & Medications
Topical application of estrogen should have no affect on a vaginal yeast infection (I've asked this question a number of time ). If the itching is caused by dry skin, however, the estrogen might help. -
ARCHIVED Could This Be A Problem
tarnalberry replied to wowzer's topic in Gluten-Free Foods, Products, Shopping & Medications
Estrace is fine. I use it regularly. Hormone fluctuations can cause intestinal changes, however, so if this is a regular occurrence, perhaps on a monthly schedule, it could be that. (If the use of the Estrace is new, it could also be that.) -
ARCHIVED Overwhelmed With Exercise!?
tarnalberry replied to LoveBeingATwin's topic in Sports and Fitness
Finding what you like is important! I like having options too. I particularly like activities that are a combination of exercise and social/outdoors activities. Skiing, hiking, rock climbing, swimming, running, yoga, dancing, kayaking, etc. Gaining active pastimes I think are the biggest help in maintaining good physical conditioning (if challenging in... -
ARCHIVED Doctor Doesn't Know What He's Talking About?
tarnalberry replied to emi-220's topic in Doctors
Look up the NIH consensus paper from the celiac disease conference last year. It specifically notes that damage is still done in asymptomatic celiacs. -
ARCHIVED My Doc Said I Could Cheat....
tarnalberry replied to BostonCeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's a "secret"??!?! That's a frighteningly close to unethical thing to hear from a doctor. Sure... cheating *once* a year isn't the end of the world (but still not worth it) - once a month is the equivalent of not following the diet however. What cheating once a year would do for you, however, is make it harder to stick to the diet as you're reminded... -
ARCHIVED Digestive Enyzmes
tarnalberry replied to badleyr's topic in Gluten-Free Foods, Products, Shopping & Medications
Unless you've got documentation stating exactly where in the peptide chain the gluten protein is being broken down - and it occurs somewhere pretty close to the middle of the 33-mer that kicks off the autoimmune reaction in the intestines - the enzyme will *not* reduce damage to your intestines. Celiac is NOT an enzyme deficiency like lactose intolerance... -
ARCHIVED Oat Floar
tarnalberry replied to Cuervo's topic in Gluten-Free Foods, Products, Shopping & Medications
In general, oats are contaminated with wheat. There are a handful of specialized (expensive) oats that are not, but they are not used in commercial products. I would absolutely avoid products made with oats (and, hence, oat flour, oat bran, oat germ, etc.). -
ARCHIVED So Jerry Is Very Frustrated....
tarnalberry replied to JerryK's topic in Coping with Celiac Disease
It's gonna take at least three months to get fresh memories out of your head. It'll get easier, the farther you get away from it, but until then, you just gotta buckle down. -
ARCHIVED "special" Circumstances
tarnalberry replied to clbevilacqua's topic in Traveling with Celiac Disease
I would think the same, and my blood sugar dips just thinking about it. Thank goodness Cliff Nectar bars and Bumble Bars are small. Go ahead, just try to search there Mr. Ticket Taker! -
ARCHIVED Enzymes For Gluten Intolerance?
tarnalberry replied to Hoolie's topic in Coping with Celiac Disease
My opinion - and I stress that this is opinion - we don't have enough evidence to separate gluten immune reactions into ones that damage the immune system and ones that don't. There is no evidence that any gluten reaction is due to a lack of natural human enzyme that breaks down gluten at the generally offending sections of the protein, so I don't expect... -
ARCHIVED And I Was Doing So Well....
tarnalberry replied to snowcoveredheart's topic in Coping with Celiac Disease
If I'm cooking it or eating it (and if I'm cooking it, I'm going to be eating it), it's gluten and dairy free. "Deal with it, people." It still tastes just fine - in fact, my friends / family / acquaintances / coworkers usually love my foods (the baked goods taste different from what they're expecting, but they often like them too, and I don't bake often... -
ARCHIVED Testing Information
tarnalberry replied to cchhrriiss's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The gene test is accurate and precise - it'll tell you if you have the known genes for celiac disease. It won't tell you if you have the genetic makeup that makes you susceptible to developing gluten intolerance or the other genes that haven't yet been identified covering the rest of the people who have diagnosed celiac disease, and it won't tell you if... -
ARCHIVED Multiple Food Allergies Including celiac disease
tarnalberry replied to gfgypsyqueen's topic in Food Intolerance & Leaky Gut
Yep, especially with only three things to restrict, I'd say to keep everyone eating the same foods, with the allergens out. It's just much safer that way. What items are you restricting? It can be hard, especially at first, until you figure out ways to adapt around it and get into the habit of using, and liking, those ways. After that, it's easier, but... -
ARCHIVED Not Sure If I Have Celiac!?
tarnalberry replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you think you will want the clinical tests, go to the doctor first. The blood tests are invalid if you've been on the gluten free diet for very long. That said, you can indeed try the diet without doctor's intervention if you choose to go that route, just make sure that you are 100% gluten free for a good length of time - at least a month - before coming... -
ARCHIVED Ordering gluten-free Without Making A Stir At A Restuarant
tarnalberry replied to georgiagirl's topic in Coping with Celiac Disease
If you know the location, go in and ask questions, *ahead of time*. Barring that, it becomes important to know what goes into common recipes to make educated guesses at restaurants, and then ask. Sometimes, you can wander off (to "go use the bathroom") and find a manager and talk to them about your options. You may still have to discuss it at the table... -
ARCHIVED Pamela's Baking Mix... Making Me Sick
tarnalberry replied to emcmaster's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, there is dairy in, I think, pretty much all her mixes. -
ARCHIVED Dairy Intolerance In Addition To Gluten
tarnalberry replied to carrielynn's topic in Food Intolerance & Leaky Gut
casein intolerance isn't like lactose intolerance. the former is an immune response in the gut in response to the protein, the later is a lack of an enzyme that allows bacteria in the intestines to break down the sugar. casein intolerance doesn't go away, like temporary lactose intolerance due to villi blunting. you can use milk alternatives for things... -
ARCHIVED Need Help And Advice Please....really Sick
tarnalberry replied to Annnettem's topic in Coping with Celiac Disease
Please, please both miles2go and ursa, don't assume I'm taking anyone's side or saying anything with anyone else. I'm not. I'm trying to correct a common misconception that came up coincidentally, that's all. Sorry if I sound defensive, but it's frustrating to have people put words into my mouth that I didn't put there, especially after I try to correct... -
ARCHIVED Positive Blood Test
tarnalberry replied to Farrbody's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's not necessary to have it, IFF you're going to eat gluten free religiously as you already know you need to. Your doctor could want it for a baseline, to compare against another biopsy in the future to see how well you're healing, but that's not that common, and not that necessary, IFF you're going to eat gluten free. It's a personal call, even though... -
ARCHIVED Whole Grain Bread?
tarnalberry replied to russtay1's topic in Gluten-Free Foods, Products, Shopping & Medications
That's the rub - I only need them to stay good for about four or five days; smack in the middle of "to freeze or not freeze". -
ARCHIVED Bear Naked Granola
tarnalberry replied to infiore's topic in Gluten-Free Foods, Products, Shopping & Medications
That granola still has oats; the gluten free label is misleading in this case and I would absolutely not trust it. It may well be the fiber that is making a difference, so hot cereals with plenty of fiber (adding flax meal can help with that, and adding jam can help with taste if she wants sweet stuff), or muffins with flax, rice bran, and high fiber gluten... -
ARCHIVED "gluten-intolerant" Vs. "celiac" - Does It Really Matter?
tarnalberry replied to RiceFiend's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You *absolutely* need to avoid gluten. There is no way to be certain that you are NOT damaging your intestines, and a lot of signs that say you are. Blood testing for celiac wouldn't include IgE tests, so I'm confused. IgE is the standard immune molecule response for standard allergies, which celiac is not. The standard blood testing for celiac includes... -
ARCHIVED Toasters
tarnalberry replied to uhave2bekidding's topic in Parents, Friends and Loved Ones of Celiacs
Definitely not worth the risk. -
ARCHIVED Celiac & Lactose Intolerance
tarnalberry replied to JennyC's topic in Related Issues & Disorders
Some ways that dairy can be an issue: Temporary Lactose Intolerance - from villi damage, as the tips of the villi produce lactase (the enzyme produced by the human body) to break down lactose (the complex milk sugar); when the villi regrow, the ability to produce lactase reappears as well Genetic Lactose Intolerance - inherited, genetic lactose intolerance... -
ARCHIVED Need Help And Advice Please....really Sick
tarnalberry replied to Annnettem's topic in Coping with Celiac Disease
I never said any such thing. I've very specifically said nothing either one way or the other. It's true that sometimes treatment for even very serious, life threatening, conditions will be postponed if the state of health makes the treatment more likely to cause death. It's also true that nutritional deficiencies and other exacerbating conditions usually...