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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    that's true - the trade offs go both ways, and there could be side effects that are not worth it, that are worse than the symptoms that you're experiencing, even if they were to go away. if I thought the side effects I had the first month were to last throughout the time I took it, I would never have stayed on the medication - my hands and feet would feel...
  2. tarnalberry
    1) After a Iga and Igg blood test, and a referral to a pediatric GI, what can I anticipate? We can't be seen until the end of March, so answers are nowhere near enough. It really depends. There isn't a really really standard process here. Most likely, they'll want to do a biopsy. 2) Is the intestinal villus test the "gold standard" for diagnosing Celiac...
  3. tarnalberry
    That route of testing sounds totally standard (less than many doctors would do, actually). And I agree, given the picture that's already been taken, it's *fabulous news* that you're going gluten free. Welcome to the board!
  4. tarnalberry
    The 'prison walls' are as big as you make them - remember that many people in the world never eat wheat. And you'll also forget what constant diahreah is like. What constant bloating or stomach pain is like. You'll forget all those negatives too. And you'll learn a bunch of new positives as well.
  5. tarnalberry
    While I can imagine one or two - absolutely, it seems the first culprit suspected should be food!
  6. tarnalberry
    I'm so sorry. My best wishes to him and your family.
  7. tarnalberry
    One thing it will absolutely help with: "brand recognition". Hopefully a few less people will look at their loved ones and say "Celiac Disease? I've never heard of it. You must be making that up. Now eat that roll."
  8. tarnalberry
    Welcome! Your symtpoms could be celiac related, and do sound food related. The reason why a food log would be so helpful is that you say it "doesn't happen if you eat a salad" - what was on that all of those salads that didn't bother you; did it include croutons? And you say that it does happen if you eat anything else? Is that *REALLY* anything else?...
  9. tarnalberry
    You hit the nail on the head - she needs to respect your decisions. She (well, more precisely, her husband) may choose different ones, but that doesn't mean you have to make the same decision he makes. If you want to respond to her disbelief in the medical studies about the long term effects of untreated celiac, you could go to pubmed, print the abstracts...
  10. tarnalberry
    Very likely, I'd think. They have to worry about the perception of the "gluten-free" label by consumers who have no idea what that label means and what that means to their purchase rates. Not to mention the 'real estate' cost on the label.
  11. tarnalberry
    Sounds like a fun event!
  12. tarnalberry
    I would encourage you to call the airline and ask for their assistance in planning this one out - for both ends of the trip. There are so many little regulations that may be difficult to know about, aside from individual policy restrictions on a particular airline, that going to the source directly will probably yield the best results.
  13. tarnalberry
    I prefer the fact that manufacturers can't imply that their brand of normally gluten free items are special because they are gluten free, as this sort of thing could mislead folks new to the diet, on the periphery of the diet, or who don't pay as close attention as those who take the time to stay informed. Not to mention false implications leading to false...
  14. tarnalberry
    I got them at the PCC is Issaquah.
  15. tarnalberry
    many people are sensitive to the adhesives they use. different brands use slightly different adhesives, so do try different brands. (I always use the waterproof bandages myself, and am usually fine with them, but will react maybe 2% of the time.)
  16. tarnalberry
    you can make a ranch dressing from raw cashews, blended in a cuisinart with water, cider vinegar, salt, dill, and italian herbs. quite tasty. as for a casein free cheese... never found one I'm happy with, but I always was a cheese snob.
  17. tarnalberry
    Mainstream medical science just doesn't really know, unfortunately. There isn't even much recognition of non-celiac gluten sensitivity. My feeling is *yes*, that it just means that you're aware of the effects on your body before there's much damage to the intestines, but what any one doctor will say on the subject...
  18. tarnalberry
    It may not be homemade, but they are good!
  19. tarnalberry
    After it happened, were you able to make any guesses about how you were contaminated?
  20. tarnalberry
    Welcome! It is daunting at first, but isn't it great to be feeling better!
  21. tarnalberry
    As has been mentioned, imitation crab meat is a common source of gluten in sushi restaurants. Additionally, did any of the rolls have a sauce in them? (Not the soy sauce on the side, but a sauce in with the meat/veggies.) If so, it likely had soy sauce or another sauce which contained wheat. Another option is that the wasabi contained wheat. This...
  22. tarnalberry
    That is an option, and how they determined the issue in the first place. But it's also why I suspect the number is actually higher than 10%. The results came from those who had intestinal damage after a few weeks on daily oats. We know from other studies, and our own experience, that it can take longer than a few weeks of gluten exposure, after having...
  23. tarnalberry
    1) Pretty much all commercial oats, including McCanns, have been tested to be contaminated with wheat at levels above the 200ppm European CODEX standard. There are a few places, Open Original Shared Link that are set up, throughout the whole process, to provide uncontaminated oats. 2) Even pure, lab grown oats, with no wheat contamination, cause intestinal...
  24. tarnalberry
    The semantics thing amuses me. My opinion: Having Celiac disease is not a choice, lifestyle or otherwise. Being on the gluten free diet is a choice, and by the definition already posted, a lifestyle one. Have a disease/condition/ailement is not a choice, but treating it is. It might be dumb not to treat it ('hey doc, I'm profusely bleeding...
  25. tarnalberry
    *Theoretically* I would agree with you. The "true" indication of damage to the intestine is through the biopsy, but I have a feeling medical science will change it's mind on that one eventually.
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