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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED What Would You Do If There Was A Cure?
tarnalberry replied to cgilsing's topic in Coping with Celiac Disease
See, I don't see that as a cure. I see that as a long-term treatment, just like the diet is. If you stop taking the pill, you can't have gluten. It doesn't fix the underlying problem permanently. I'd probably have the pill around for eating out and so forth, but I wouldn't aim to add gluten back to my diet in any way. -
I haven't read much on his site for two years or so, but the last I did, I found most of his articles to be fluff, hyperbole, or flame-bait. It's the last, I think, which turns me off the most. I took another look around, and he's still pushing editorial (emotionally charged opinion) as medical fact. To me, science is science, logical and straightforward...
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ARCHIVED Told Yesterday That In Ny celiac disease Is Tax Deductable
tarnalberry replied to norm41's topic in Gluten-Free Foods, Products, Shopping & Medications
It is possible, in theory, to do so, but there are a number of caveats: 1) you can only deduct the increased price of gluten-free foods, which means you have to keep receipts and deduct the cost of "normal" foods 2) you've got to keep meticulous records and have a doctor's letter on file with the IRS 3) realize that this is a big red flag for the IRS to... -
ARCHIVED I Have A Qustion About The Turkey
tarnalberry replied to babygirl1234's topic in Gluten-Free Foods, Products, Shopping & Medications
Argh (at your aunt)! It *pisses me off* when people are that disrespectful. You are doing exactly the right thing - not eating something unless you know it to be safe. Be secure and CONFIDENT in yourself, knowing that you are doing the BEST thing for your health. A quiet confidence is often quite hard for someone to rally against, though she might try... -
ARCHIVED This Ain't Easy...
tarnalberry replied to super-sally888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
the fact that you react by itching makes me worry that you have a true allergy, which you should *not* test. allergies can, and do, get worse with exposure occasionally, and it's not worth the risk. as for oats and celiac... 1) all commercial oats are contaminated at levels higher than the CODEX standard of 200ppm, even McCanns. there are at least three... -
ARCHIVED I Have A Qustion About The Turkey
tarnalberry replied to babygirl1234's topic in Gluten-Free Foods, Products, Shopping & Medications
self-basting turkeys are not always gluten free, nor are some of the seasoning packages that may be added. turkey's need to be labeled if anything with a grain is added, but you have to check and find out what's been added. -
ARCHIVED Celiac Panel Now Rejected For H. Insurance
tarnalberry replied to Mom to Many's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There shouldn't be any problem getting her coverage under a group plan at a moderately large employer - there are no screening requirements. But it can be a problem indefinitely for private insurance; some private insurance will always have an issue, some will say "we can insure you after a number of years gluten-free, and good test results", others won... -
Some of us ... don't entirely trust him. He is a doctor who has a website which addresses a number of ideas on health, many from a nutritional perspective. His website does sell products (one of the reasons I'm not a huge fan), and some of what he advocates is little more than opinion. I'll add, however, that despite my dislike of his approach...
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ARCHIVED Healthy gluten-free Flour
tarnalberry replied to Juanita's topic in Gluten-Free Recipes & Cooking Tips
I vary what flours I use depending on what I'm making - I don't pre-make any mixes, and don't even always use the same proportions. I presume a pumpkin roll is similar to pumpkin bread? Somewhat dense, with a hearty flavor? If so, it'll do well with heartier flours, and I would particularly use amaranth (a bit nutty), millet, and flax. I'd still use... -
ARCHIVED Question About Reintroducing Dairy (cow's Milk)
tarnalberry replied to mamatide's topic in Coping with Celiac Disease
inside her stomach, lactose free milk, and regular milk plus a lactaid pill are the same thing. in the former case, the lactose has been broken down by adding lactase before it gets to her intestines (before she drinks it). in the later case, the lactose has been broken down by adding lactase before it gets to her intestines (in her stomach). as a bonus... -
ARCHIVED Headaches Related To Celiac?
tarnalberry replied to mac3's topic in Related Issues & Disorders
Dairy gave me headaches, before I discovered I was intolerant to it (through an elimination diet) and removed it from my diet. -
Many mixes have bean flour in them, which can bother many people, especially if you're not accustomed to it.
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ARCHIVED Oh No! The Day Of Giving Thanks Is Nearly Upon Us
tarnalberry replied to Sweetfudge's topic in Gluten-Free Recipes & Cooking Tips
It is not only safer to make a turkey without the stuffing in the cavity, but also results in a juicier, more tender bird, since you won't have to overcook the meat in the effort to get the center of the turkey cavity to 160F. -
ARCHIVED Your Opinion Please...
tarnalberry replied to silly-yak1979's topic in Related Issues & Disorders
many people get pregnant and have kids before they discover they are celiac, but as ursula noted, you really need to stop cheating - intentionally eating gluten as little as once a month is the same as not following the diet, in terms of long term risk of complications (cancer, nutritional deficiencies, shortened life-span). so, please, please, go fully... -
ARCHIVED Do Any Biopsy-positive Celiacs Get Offended When Someone With
tarnalberry replied to Nantzie's topic in Coping with Celiac Disease
I would be offended if someone was offended by me using the term celiac without a biopsy - it would be quite elitist of them to assume that the term can be used if and only if you have a biopsy, and I hate intended elitism. I do, however, greatly dislike someone using the term, and then being lax about the diet, just like many others have mentioned on this... -
ARCHIVED Healthy gluten-free Flour
tarnalberry replied to Juanita's topic in Gluten-Free Recipes & Cooking Tips
flours made from the following are all more nutritious than rice, potato, and tapioca (and wheat, for that matter): amaranth quinoa garbanzo bean millet flax nuts buckwheat teff -
ARCHIVED Feeling Scared...
tarnalberry replied to Stef-Ani's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome! I know it seems overwhelming at first - it's such a huge change. You're giving up a life long habit, in spite of everyone around you not doing so. It's hard, and there will be difficulties, and challenges, and grieving, but you can do it, and be healthier and happier for it. You may well have to throw out a lot of stuff from your cupboard... -
ARCHIVED Pretzels And Donuts
tarnalberry replied to tbs19's topic in Introduce Yourself / Share Stuff
I like glutino pretzels best, definitely better than ener-g. Even my non-gluten-free husband, who isn't a fan of gluten-free flours, likes them. I'd have to order them online, I think, but don't generally bother. -
There is only one right answer to that question.
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ARCHIVED Question About Reintroducing Dairy (cow's Milk)
tarnalberry replied to mamatide's topic in Coping with Celiac Disease
daffadilly, I think you missed the information that said that the child *was healthy* and had *no* symptoms when on casein but not lactose. that makes a crucial difference. no, dairy isn't needed - thank goodness for that, as I can't have it. but its not evil either. mamatide, as has been noted, being able to digest lactose isn't an all or nothing thing... -
ARCHIVED Cold All Of The Time....
tarnalberry replied to Shawn's topic in Coping with Celiac Disease
pardon the obvious stupid question: what is the temperature in your bedroom? (not "what is the thermostat set to?" because that may or may not tell you much about your bedroom temperature.) -
ARCHIVED Malabsorption Results
tarnalberry replied to annacsmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
what this says is that he's producing high levels of antibodies (and hence is gluten intolerant) but his intestines are not so damaged that he's not absorbing the food he eats. that last one is a good thing, but he still should stay gluten free. -
I didn't know you *could* use wheat flour for gravy for the first 18 years of my life - and I didn't know about gluten free until I was 25! We always used cornstarch (make a slurry of cornstarch and cold water first, then add to the juice and bring to a simmer - the directions are on the package too), and now I also like using sweet rice flour.
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ARCHIVED Where To Stay/eat On The West Coast Area
tarnalberry replied to Sweetfudge's topic in Traveling with Celiac Disease
In Seattle: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link In Bellevue: Open Original Shared Link And this site gives a few other ideas: Open Original Shared Link -
ARCHIVED I Broke The News To My Mom...
tarnalberry replied to shai76's topic in Coping with Celiac Disease
I'm sure it'll work out fabulously, and sometimes, a small little thing is the way to go.