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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    I hope you continue to improve !
  2. RMJ
    I went to a registered dietician who specializes in Celiac. She was concerned about the balsamic vinegar I was using and suggested a different brand, Napa Valley Naturals.
  3. RMJ

    ARCHIVED Canker sores

    RMJ replied to kkgirl's topic in Doctors

    Posterboy, canker sores and oral thrush are NOT the same thing. Kkgirl, good luck with your doctor's appointment, those look painful.
  4. RMJ
    In most people the gluten free diet will reverse the damage, although it may not go all the way back to normal. You're young so there is a good chance you'll heal completely - children seem to heal better than older adults, we'll hope you heal like a child! Your toddler should heal up just fine. Intestinal lymphoma is very rare. Untreated patients...
  5. RMJ
    Yes, blunted is less damaged than atrophy. Blunted villi are shorter than normal, but they are there and available for absorbing nutrients. Atrophied villi are basically gone - the surface is flat with no villi projecting out.
  6. RMJ
    There is a whole spectrum of damage that is seen in celiac disease. Looking at your results another way: "Patchy flattening" - Only patchy, not all over, Yeah! "Isolated areas" - Isolated, not all over, Yeah! "Blunted villi" - Only blunted, that's great. You still have villi. In some people the villi are totally atrophied. "40 intraepithelial...
  7. RMJ
    Steak and potatoes? Ham and hash browns? (although ham gives me migraines).
  8. RMJ
    Some people with celiac can't eat oats, and some gluten free oats are not as gluten free as they could be. I'd try omitting those from your diet.
  9. RMJ
    I don't have symptoms either, so my doctor follows my antibodies (the whole panel was high when I was diagnosed). That is not ideal, the scientific literature says antibody tests are great for diagnosis but not so accurate for followup. At first I just read labels and avoided anything with gluten-containing ingredients. Antibodies went down but two were...
  10. RMJ
    I don't know if this would help, I've been eating Nature's Path Whole O's which are certified gluten free. They don't taste or crunch like cheerios (they are harder) but they are the same shape. They don't contain oats. They are also a lot more expensive than Cheerios.
  11. RMJ
    How frustrating/scary! Hope you get answers from the docs soon.
  12. RMJ

    ARCHIVED Immunologist

    RMJ replied to lacey's topic in Related Issues & Disorders

    Hi, Since you say you don't have seasonal allergy symptoms, I have some questions. I used to work for a company that made the extracts used for skin testing. (Extracts are standardized and if the tests are done correctly they CAN tell the degree of allergy). Did you come up highly positive on every single test? If so, did they do a control without...
  13. RMJ
    The second column (first column of numbers) is your results. The third column (second column of numbers) is the normal range. Your results for celiac are negative. But you still could be sensitive to gluten (non celiac gluten sensiticity), there is no accurate blood test for that.
  14. RMJ
    A good place to look for data on this type of test is the FDA website. This type of test is approved by FDA via a "510(k)" process. A manufacturer has to compare their test to an existing test. Here is information where Inova compared the combined test to the separate tests (top of page 5). This is not their most recent combined test, but that one just...
  15. RMJ
    Very interesting. Here is a link to the full article. Open Original Shared Link
  16. RMJ
    I think this is the journal article: Open Original Shared Link
  17. RMJ
    In reflex testing they look at a result and decide if the next test is needed. Another example, some labs only do EMA if the Ttg is positive.
  18. RMJ
    No gluten ingredients (click on the "+" next to "description" to expand that section and see the ingredients). But this doesn't say anything about possible contamination. Open Original Shared Link
  19. RMJ
    Here is a link to an explanation from the USDA as to what is allowed in chicken. If injected with a solution they must state the ingredients on the label. Open Original Shared Link
  20. RMJ
    I would be very unhappy if I had a strictly gluten free household and someone brought gluten into it. My household is not completely gluten free (my husband prepares foods with gluten in a separate area) but I'd still be unhappy if guests expected to eat gluten in my house. It's your health, not just a preference.
  21. RMJ
    Enzymes: alkaline phosphatase, ALT and SGOT, which are in the normal range. Bilirubin is also related to liver function and yours is high.
  22. RMJ
    I am sorry you are having such severe problems. You asked for the results to be put into English, I'll try. The genotype and haplotype results are from genetic tests looking at genes related to celiac disease. These confirm that you have the genetics to develop celiac disease. About 30% of the population has these genes. IgA - this is just a...
  23. RMJ
    Thank you for that information! I'm super sensitive and trying to use whole foods plus a few certified gluten free items. This really helps.
  24. RMJ
    Have you been tested for intestinal parasites after being in the foreign countries?
  25. RMJ
    It is always nice to hear of a success, and someone feeling better! Yeah!
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