Jump to content

RMJ

Advanced Members
 View Profile  See their activity

  • Posts

    1,565

  • Joined

  • Last visited

  • Days Won

    50

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    How frustrating/scary! Hope you get answers from the docs soon.
  2. RMJ

    ARCHIVED Immunologist

    RMJ replied to lacey's topic in Related Issues & Disorders

    Hi, Since you say you don't have seasonal allergy symptoms, I have some questions. I used to work for a company that made the extracts used for skin testing. (Extracts are standardized and if the tests are done correctly they CAN tell the degree of allergy). Did you come up highly positive on every single test? If so, did they do a control without...
  3. RMJ
    The second column (first column of numbers) is your results. The third column (second column of numbers) is the normal range. Your results for celiac are negative. But you still could be sensitive to gluten (non celiac gluten sensiticity), there is no accurate blood test for that.
  4. RMJ
    A good place to look for data on this type of test is the FDA website. This type of test is approved by FDA via a "510(k)" process. A manufacturer has to compare their test to an existing test. Here is information where Inova compared the combined test to the separate tests (top of page 5). This is not their most recent combined test, but that one just...
  5. RMJ
    Very interesting. Here is a link to the full article. Open Original Shared Link
  6. RMJ
    I think this is the journal article: Open Original Shared Link
  7. RMJ
    In reflex testing they look at a result and decide if the next test is needed. Another example, some labs only do EMA if the Ttg is positive.
  8. RMJ
    No gluten ingredients (click on the "+" next to "description" to expand that section and see the ingredients). But this doesn't say anything about possible contamination. Open Original Shared Link
  9. RMJ
    Here is a link to an explanation from the USDA as to what is allowed in chicken. If injected with a solution they must state the ingredients on the label. Open Original Shared Link
  10. RMJ
    I would be very unhappy if I had a strictly gluten free household and someone brought gluten into it. My household is not completely gluten free (my husband prepares foods with gluten in a separate area) but I'd still be unhappy if guests expected to eat gluten in my house. It's your health, not just a preference.
  11. RMJ
    Enzymes: alkaline phosphatase, ALT and SGOT, which are in the normal range. Bilirubin is also related to liver function and yours is high.
  12. RMJ
    I am sorry you are having such severe problems. You asked for the results to be put into English, I'll try. The genotype and haplotype results are from genetic tests looking at genes related to celiac disease. These confirm that you have the genetics to develop celiac disease. About 30% of the population has these genes. IgA - this is just a...
  13. RMJ
    Thank you for that information! I'm super sensitive and trying to use whole foods plus a few certified gluten free items. This really helps.
  14. RMJ
    Have you been tested for intestinal parasites after being in the foreign countries?
  15. RMJ
    It is always nice to hear of a success, and someone feeling better! Yeah!
  16. RMJ
    Two weeks may not be enough of a challenge. Figure 2 in this paper: Open Original Shared Link shows a very slight increase in some antibody levels at two weeks but it really took four weeks for the bigger increase. If you're so sick during the challenge it certainly says that your body can't handle gluten.
  17. RMJ
    I was very surprised that my doctor had the biopsy results a few days (I think 2 or 3) after my scope.
  18. RMJ
    I am not saying they should do more tests. They could easily improve their testing using the same number of samples they test now. They test X boxes and end up with X samples. But they mix everything together (from the X boxes) before taking the samples from that mixture. They should instead test the individual samples from the X boxes.
  19. RMJ
    They pool their samples then test multiple samples from the pool. So if one result was high it would be diluted out in the test results. I think this link is available to nonsubscribers to gluten free watchdog: Open Original Shared Link
  20. RMJ
    Thank you Nomi2 for your diligence - I'm very sensitive and would feel safe eating your products! "Wild oats" is a slightly vague description. There is more than one species in the oat genus that may be called a wild oat. Regular oats do not contain gluten. As you said, regular oats may be contaminated due to shared trucks/silos/equipment. There...
  21. RMJ
    If your son's doctor is saying your doctor didn't test you for total IgA, he's thinking in the wrong direction. Low IgA could lead to a false negative result (looking like a negative when it is really positive). Since you already have a positive result the total IgA result isn't really needed.
  22. RMJ
    The issue from my perspective (several decades as a trained scientist) is that their sampling plan for testing the Cheerios is not scientifically sound.
  23. RMJ
    The risk of a non-celiac getting intestinal lymphoma is extremely tiny. The risk of someone with refractory celiac disease is higher (I think maybe double?) but 2 x extremely tiny is still extremely tiny, and an elevated antibody level is not enough to say you have the refractory version. You could have a repeat endoscopy to look for damage. Are you still...
  24. RMJ
    A visible bread crumb is not a small amount to a celiac, it is an amount that can cause severe reactions.
  25. RMJ
    Different doctors test for allergies in different ways, some more scientifically -based than others. Were the same types of tests run 10 years ago and recently? Blood tests looking for allergen-specific IgE or skin prick tests are the most scientifically accepted tests for things like pollen, housedust, molds and pet dander. I used to work in R&D...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.