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RMJ

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Everything posted by RMJ

  1. RMJ

    ARCHIVED Osteopenia

    RMJ replied to Mshell's topic in Related Issues & Disorders

    Weight bearing exercise is also good for osteopenia.
  2. RMJ
    Nuts.com has some certified gluten free nuts. Open Original Shared Link
  3. RMJ
    I was not able to have a biopsy when I first discovered that my celiac antibodies were high. I decided going gluten free was worth it even without knowing how my villi looked, because I didn't want a bunch of autoimmune (against me!) antibodies in my body. You might try gluten free and see what that does to your antibody levels. Just be aware that the...
  4. RMJ
    It usually takes more than 3 weeks on the gluten free diet for antibody levels to go down to normal. However, if your blood tests come back negative, you may want to do a gluten challenge and retest.
  5. RMJ
    Yes, those are antibody tests. The gliadin, tTg and endomysial should be repeated after she has been gluten free for a while (but DON'T go gluten free until the endoscopy/biopsy has been done). The IgA is a control test. Different laboratories use different ranges so to compare, the repeat tests should be done by the same lab as the original ones. And...
  6. RMJ
    How was she diagnosed? If she had antibody tests, you can repeat those in 6-12 months to see if they return to normal levels. If not, you should be more careful. I had few if any symptoms, but discovered through antibody testing that I am very sensitive to teeny tiny levels of gluten. One of my antibody levels (Dgp IgA) is still a bit above the normal...
  7. RMJ
    There are two doctors involved and they have different recommendations. I had a colonoscopy 10 years ago and took the medication the morning of the procedure, but all the prep was the night before. If I take it one hour before I start the morning prep that will be too far ahead of the procedure, so I'll take it after, whenever I'm allowed to eat.
  8. RMJ
    My GI is doing an endoscopy along with my every-10-year colonoscopy because some of my antibody levels are still elevated. How soon after the endoscopy can I eat? I need to take some medication that day and am trying to decide if I will take it with water an hour before my a.m. colonoscopy prep (divided prep) or after the whole thing is over. The pills...
  9. RMJ
    Tests made by different manufacturers do have different scoring systems. And some people have higher levels of antibodies than others. Kurasz, did your sister's docs just call it a false positive because it was high? It is possible but that interpretation would worry me unless they had other evidence, such as a negative biopsy. I used to work...
  10. RMJ

    ARCHIVED My weekend

    RMJ replied to Galixie's topic in Coping with Celiac Disease

    Oh, it would be more difficult if your doctors don't back you up. Sorry you don't have a definitive diagnosis from a doctor,
  11. RMJ
    I had my first experience last Friday turning down gluten free food made for me by someone I barely know. Yes, it was very, very kind of her, and she went to extra trouble to buy a gluten free Trader Joe's pie crust, but I only eat baked goods that I make or that are made in a dedicated facility. She claimed to know what Celiac disease is. I can't believe...
  12. RMJ

    ARCHIVED My weekend

    RMJ replied to Galixie's topic in Coping with Celiac Disease

    I just say that my being gluten free is from a medical diagnosis, not the fad, and most people are satisfied with that.
  13. RMJ
    I had my first celiac tests done through www.mymedlab.com. They can't operate in all states. In my area they actually use the same lab to perform the tests that lots of local doctors use. I don't know if they have the Dgp test available in all areas.
  14. RMJ
    GFR ranges are very strange. We went through this with my husband. Did you notice in Icelandgirl's link that there is no range that is considered good and normal? I just had mine tested and the report said that normal was > 60. As your report says, your value is only a problem if there is other evidence of kidney damage.
  15. RMJ
    My spine is fine, at least fine for my age (has some expected issues for a 61 year old). Still don't know what is causing the tingling. Oh well. At least it has stopped getting worse.
  16. RMJ
    Will do! Thanks to all for sharing your experiences and for your support.
  17. RMJ
    Thyroid tests normal. It appears to be a mechanical problem (compression of nerve), possibly in my back. Next step is MRI. I'm just thankful that it is merely tingling and not pain!
  18. RMJ
    Thank you for the reply and the links. I was tested for nutritional deficiencies when I was originally diagnosed with celiac and was fine (high B12 and folate). My doctor is testing my thyroid, I see her Monday for the results. Tingling in the right foot started while doing physical therapy exercises for tingling in the left thigh, so it may be that the...
  19. RMJ
    I have celiac and am on a gluten free diet, although my DGP level is still slightly elevated. I am having troubles with peripheral neuropathy (tingling) in my feet. Certain positions make it worse, as if a nerve is being pinched. I have a question for those who have had peripheral neuropathy that is related to gluten. Do position and/or activities matter...
  20. RMJ
    To answer about dairy: Celiac disease can damage the part of the villi in the intestine that make lactase, an enzyme that breaks down the lactose in dairy products. When lactose isn't broken down it can cause digestive disturbances. You can try eliminating it to see if you feel better. Eliminating it will not affect future celiac testing.
  21. RMJ
    That is surprising. Did you get a number for the EMA result? If a number, it would look like 1:160 or 1:5. Knowing that would let us know how positive the EMA result was.
  22. RMJ
    Having supportive family makes celiac much easier - so you caring so much is wonderful!
  23. RMJ
    From a chemistry point of view, it is very unlikely that gluten would be in actual steam. It could be in small droplets such as oil splatters. Also, it is not a problem to touch something containing gluten - just wash your hands afterwards.
  24. RMJ

    ARCHIVED Paris!

    RMJ replied to durrsakja's topic in Traveling with Celiac Disease

    In case someone searches out this topic later, here is a link with a list of 100% gluten free places in Paris. Open Original Shared Link
  25. RMJ
    I haven't tried it, but wanted to say that I really like your writing! It is not on their list of gluten free items - popcorns are at the end, under snacks. Is it labelled gluten free? Open Original Shared Link
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