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Ursa Major

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by Ursa Major

  1. Personally, if I had the money, I would still get tested by Enterolab myself. Even though I can't really do their normal testing for gluten intolerance, casein, soy etc. any more (and I know I react badly to all of those anyway). But I think I will go for the gene testing as soon as I can afford it. I would find it helpful to know if I have the celiac disease...
  2. I am glad the doctors figured out what your problems were, and that your surgery went well. Thanks for letting us know that you are feeling much better. Take care of yourself! Ursula
  3. Here is a link to the article Scott posted on celiac.com. https://www.celiac.com/st_prod.html?p_prodid=1411 As you can see, it is 50 mg. Personally, I think it was a very small group they studied, some of those people didn't even get gluten, and one had a relapse from 10 mg a day. I wouldn't eat any gluten on purpose, even if it is crumbs, as some people...
  4. Peta, if your post hasn't been pinned yet, then you must have done something wrong. We have enough moderators that there is no way it would take remotely as long as even ten hours, never mind 18.
  5. Sleep clinics seem to all think that everybody is the same, and needs to go to bed before ten, and get up by eight I believe. Check out these links about night owls: Open Original Shared Link Open Original Shared Link I found reading through this site very enlightening. The early birds seem to always think they are superiour to night owls, and...
  6. No, you wouldn't have undone three years of healing. It would take more than eating gluten for one day. But it takes about three weeks to heal the damage from one mistake. If you keep cheating let's say every three weeks, you'll never give your intestines a chance to heal, and you may as well not bother with the gluten-free diet, as you would, even without...
  7. Addie, unfortunately, many people with celiac disease are also intolerant to all dairy. My oldest daughter had to stop having dairy for four out of her five children when breastfeeding, because they are casein intolerant and were getting terrible eczema. When she eliminated dairy from her diet, the baby's skin would clear up. You may have to switch to things...
  8. All of your symptoms could be celiac disease. You should have the celiac disease blood panel, as well as the endoscopy. And then, even if they come back negative, it would be good to give the gluten-free diet a try. Because there are many people who don't have celiac disease, but gluten intolerance, which can be just as bad. Anyway, one step at a time...
  9. If you are a true nightowl, then your body clock is 'set' differently. If you go against that and suddenly go to bed early and get up early, you will do more damage than good. Make sure you get enough sleep (about eight to ten hours a night with adrenal fatigue, and at least one nap during the day). My naturopathic doctor agrees with me on that. Those...
  10. Another thought: How long were you sick before being diagnosed with celiac disease? It can take up to five years for the intestine to heal completely in some cases. Maybe you're just still healing.
  11. I love his mohawk, how cute! And the motorcycle picture is adorable.
  12. I am sorry your villi don't appear to be all healed. I agree with Sandy, it could be a casein intolerance that is causing that. I also read that soy can cause blunted villi as well. You may need to eliminate other foods, just getting rid of gluten may not be enough.
  13. Whenever I make myself cream of buckwheat (once or twice a week) I eat it with maple syrup and some goats milk, and seem to be okay. I tried drinking it straight once, and didn't think it was too bad. But I stopped drinking any type of milk about 27 years ago, and don't need any. You don't notice the taste one way or another in cereal. I used rice dream...
  14. Good for you for sticking to your guns. You know, before there ever was a baby-food-industry, babies weren't fed solids until they were actually able to chew, or the food could be mashed well enough with a fork so the kid wouldn't choke on it (like bananas or potatoes). Rice would obviously not be introduced until the baby had molars I am sure. So, I don...
  15. Nancy, that is absolutely hilarious!
  16. Jerry, have you read the excellent article in Scott's blog? Here is the link Open Original Shared Link Scroll down to the entry titled "Gluten causes brain disease!" It answers a lot of questions.
  17. Actually, there is evidence that casein and soy can also cause villi damage. You might want to try eliminating casein to see if it helps. Here is an interesting link to check out. Especially if you click on the side on 'the answer'. Open Original Shared Link
  18. Elizabeth, I hope you will feel better by tomorrow! You never know, much can happen in one day. Sometimes I feel absolutely dreadful with bloating, gas and extreme fatigue, and the next day I wake up and feel much better (I can't say fine, I never feel fine). So, don't give up hope. I am glad you are resolved to wear what you have to in order to go, and are...
  19. Addie, it is not likely that he will outgrow the gluten intolerance. I don't believe you can. It will be much easier for you if your daughter is on the gluten-free diet as well, and there is no way it could harm her. NOBODY needs those gluten grains to be healthy. All the things that are naturally gluten-free are what you'd mostly cook for supper anyway...
  20. Hi Addie, and welcome to this board. I doubt that it is a fluke that your son seems to be doing better. Many other breastfeeding mothers had the same experience as you, that their babies started getting better immediately after they eliminated gluten (or other allergens) from their diet. You can post on the "Parents of kids or babies with celiac disease...
  21. Your son may also be intolerant to dairy and/or soy, which could very well be the cause for the joint and muscle pain. Other food intolerances are possible as well, especially the nightshade family, other grains, eggs or legumes. Check out the links in my signature (especially the lectin one, as the lectins cause joint pain for me, salicylates cause muscle...
  22. I don't believe there is any good reason to start solids before eight months at all. It is NOT true that baby needs extra iron before 12 months old, which is the time the stored up iron will run out, and the baby should be started on eating meat for iron. Also, it is a bad idea to start with cereals, as grains are very hard to digest. The best things to...
  23. Ah, but Jerry, antidepressants are big business, and the psychiatrists need to make a living, too, don't you know? I have never heard anybody suggest to me that my depression, anxiety, aggression, meltdowns, angry outbursts etc. could be food related. It seems NO doctors seem to know that there could be a connection. And family and friends will look...
  24. Personally, I would take the Enterolab diagnosis as a firm diagnosis. The blood tests are only about 50% accurate. It is extremely likely that you feel so great now due to eliminating gluten. I hope you'll continue to improve, and that none of your symptoms return.
  25. In both the first tests my personality type was ISTJ (Introvert Sensing Thinking Judging), follow this link for a detailed description of the ISTJ type Open Original Shared Link), and the third one it says I am a type B, with a 53% The ISTJ personality type in both cases describes me perfectly.
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