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icelandgirl

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Everything posted by icelandgirl

  1. icelandgirl
    Hi Peg, Aren't mystery symptoms fun? Not! ? I just want to say that I've had the left sided pain as well. Mine, like Cristiana's, will sometimes continue after a BM. I think this happens when I get constipated. And then something will happen causing it to all come out and then there's pain that continues after. I hope that's not TMI. I have...
  2. icelandgirl
    I'm so sorry for what you have been through, but also very glad that you shared! People need to understand how serious this disease is when left untreated. Thank you for sharing with us!
  3. icelandgirl
    I am sorry for your frustration! It certainly could be that you're getting over being glutened. But, I wouldn't take normal values as an answer on thyroid. I'd call and get those values. If they're not in the optimal range (TSH around 1 and Free T3 and Free T4 between 50-75% of the range), ask for a trial of thyroid medication. Just my opinion, of course...
  4. icelandgirl
    Cyclinglady...is that true? 2/3 of adults never heal from celiac? I hadn't heard that, but find it scary!
  5. icelandgirl
    Hi there...I don't have any answers. I do want to send you ((((hugs)))) and positive thoughts. I do hope that all is ok for you. Do the follow up call quickly, if nothing else to ease your mind. I tend to worry a lot and it can be torture waiting. Please let us know how it goes. We are here for you. ((((((hugs)))))
  6. icelandgirl
    Hi StringCheese...how very frustrating! You absolutely have to be your own advocate and fight for yourself to get results. I think getting a new doctor would be best...this one seems to be clueless and out of touch. I have been there...I've walked out after an appointment to my car, sat in there and cried out of frustration. Keep eating gluten until...
  7. icelandgirl
    I agree with cycling! Your Dr's are misinformed. On a strict, gluten free diet your antibodies should come down. They should be tested at least once a year. I switched Dr's when I went back after 6 months and asked to be retested because he told me the same thing and I knew he was wrong. When I had them tested at that time, by a new Dr, they were still...
  8. icelandgirl
    Hi Stacy, I'm sorry that you still don't have answers...how frustrating! I do believe that you could use some thyroid replacement medication. To feel good, your levels need to be optimal, that means FT3 and FT4 are 50-75% of the range. Your FT4 is at 26% of the range as of your August results and your FT3 is at 10%! That's your energy and good...
  9. icelandgirl
    Hi Mnoosh...yes, that's what happens to me. The first time I was glutened I had eaten out and they seemed knowledgeable too...but alas I was so sick. For me, it took 3 weeks to get back to normal BMs the first time. It stinks, but it's true. I was glutened in June and this time the D only lasted about a week, but other symptoms lasted longer. It...
  10. icelandgirl
    Hi Peggy, I'm so glad that you've shared where you're at...it's helped me. I too was glutened on vacation...mine was in early June. The terrible symptoms have long resolved, but by looking at my food and symptom diary I can see that it's been since that time that I've had my current issues. Like you, I am soy free. I was dairy free for a while...
  11. icelandgirl
    Hi Peggy, I don't have an answer, but am having some similar struggles myself. I'm so frustrated and just wanted you to know that you are not alone! I hope you get something figured out soon. Please report back on nightshade elimination as that is what I'm considering trying....I'm really sad at the thought. ((((Hugs))))
  12. icelandgirl
    I think that's so cool! Please do let us know how it goes!
  13. icelandgirl
    How fun to be getting the tester!! Please, please report back!
  14. icelandgirl
    Good for you on not just saying ok to the 6 months! An endocrinologist is a good start. Make sure you take a complete list of your symptoms and ask for a full thyroid panel and ultrasound. I hope for you that things start happening soon! Do keep on them, you absolutely have to be your own advocate. My mom got a call back that her results are in and...
  15. icelandgirl
    Hi Stacy, My GP ordered the ultrasound for me. My mom's did for her. She's doing well, thanks for asking. Still no results...just waiting. I agree that you need some answers. Ongoing fatigue and hair loss has a cause...it may be as simple as needing a small amount of thyroid medication. I feel your frustration.
  16. icelandgirl
    You're so welcome. I could use a hug most of the time myself. Lol! My mom's numbers were always fine. She wasn't feeling great though and last year I had her request a thyroid ultrasound. They found a large nodule that they decided to watch. Her energy level has decreased this year and her thyroid numbers have been crazy. They did another ultrasound...
  17. icelandgirl
    Hi Stacy and ((((hugs))))!! I do think it could be your thyroid. I agree that a thyroid ultrasound is in order. Also, you didn't include ranges on your labs, but if yours are the same as mine, then your Free T3 and Free T4 are low...that means hypothyroid. A lot of Dr's only look at TSH or make sure that every number is within the box, but you...
  18. icelandgirl
    Hi Bamagal, That sounds super scary...((((hugs)))). It could definitely be thyroid...hyperthyroidism or Graves will increase heart rate. Please ask that they do a full thyroid panel on you to include: TSH, Free T3, Free T4, TPOAb and TgAb. Good luck and let us know how it goes!
  19. icelandgirl
    Honeyville is great!
  20. icelandgirl
    Hi Ravenu5! I feel your frustration! I have Hashis. After being diagnosed with celiac and continuing issues I ended up gluten, soy and dairy free. That led to my having kidney stones earlier this year and switching to a gluten free, soy free, low oxalate, adequate calcium diet...this led to high cholesterol. I'm super frustrated and annoyed. I broke...
  21. icelandgirl
    Hi Lisa, I completely understand why you didn't do a biopsy on your daughter. I went through the appendix thing myself...not fun! I was diagnosed with just bloodwork and no biopsy, but did have the full panel. I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests. Since she was already willing to test you, I'm sure...
  22. icelandgirl
    Big ((((hugs)))) to you sweetie. I'm glad the surgery is behind you...that's always tough. I'm so sorry that you are facing this, but you sound ready to taking it on. Please do keep us updated. As Gemini said, we really do care. I will be praying for you.
  23. icelandgirl
    Oh boys mom, I'm so sorry. (((((Hugs))))) I have not been through this either. I would follow Geminis advice on a nutritionist. I wish I could offer something more. Hopefully your boys are surrounding you with love right now. Do whatever you can to take care of yourself now. Be good to yourself. Pray, meditate, yoga, etc. I hope that someone...
  24. icelandgirl
    That's so wonderful cyclinglady! I'm so happy for you...this makes me want to head to Europe!
  25. icelandgirl
    Everything Gemini said!! I'm just wondering about ordering your own tests online? I have not done this, if anyone has please chime in. I found this website where you order and pay for it, they send you a lab req, you go get it done and get results. It might be worth a try? Open Original Shared Link I know that you're getting discouraged...
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