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icelandgirl

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Everything posted by icelandgirl

  1. icelandgirl
    Hi Palmtrees and big ((((hugs))))! Although my digestive symptoms come first, I think the mental and emotional symptoms are worse after a glutening. The brain fog is absolutely horrendous and the feeling like I'm stuck in some mental pit, that I will never come out of, is the worst. It's a dark and lonely place, truth be told. Thankfully, it does...
  2. icelandgirl
    I was just coming on to post about this...I am fascinated! I sent the link to my mom and asked her when I first had gluten. She remembered...she had trouble with breastfeeding and I was started on formula very young. At that time in Iceland, they added cereal to it for extra nutrition. She sent me the link to the cereal: Open Original Shared Link ...
  3. icelandgirl
    Hi Pcooley! For my peripheral neuropathy I take magnesium. My Dr recommended 200-400 mg a day. I started with 100 and found 300 to be the magic number for me. I take a chelated magnesium. It has reduced my symptoms almost completely. It was so bad at one point that I had a hard time sitting and reading. Are you supplementing with a good D...
  4. icelandgirl
    Hi fbmb! I take Florajen 3 for my probiotic and I do feel like it really helps. I contacted the company and they do test to 5 ppm. I've never had any issues with it and I do feel better when I take it. I don't take a multivitamin, just a D since that was my deficiency.
  5. icelandgirl
    Hi Fbmb and big ((((hugs))))! I'm sorry about your frustration, but I also totally get it. It took me a year to feel mostly decent and within that year I would have setbacks where it would seem for a time that things were getting worse. I spent a lot of time worrying and panicking,if I'm to be honest, but things would improve again. Now, at 3 years...
  6. icelandgirl
    This is very interesting. Does it say anywhere what it would be called on the ingredient list? I personally can't handle the additive carageenan. It's added to a lot of yogurt, ice cream type things to make them creamier. For me it causes tremendous bloating. 6 months after diagnosis I was still having painful bloating daily that my Dr and I couldn...
  7. icelandgirl
    I agree Cristiana! My nodule was 5 mm when I had been gluten free for 6 months(that was when it was discovered). A year later it was 3.5 mm. I do think that for celiacs, at least, that thyroid problems including nodules are helped by the gluten free diet.
  8. icelandgirl
    Wonderful news! I'm so glad for you and am sure you are relieved! ????
  9. icelandgirl
    Absolutely! Keep advocating for yourself! I'm thinking of you today, hoping that all goes well. Hugs!!
  10. icelandgirl
    Hi again ? As of September, your Free T4 was at 53% of the range, so decent. It could, of course, have changed since then. Have your symptoms increased recently? I would say that with your symptoms and a palpable nodule that most likely your values would be changed now. Are you able to request having your bloodwork redone? With the nodule...
  11. icelandgirl
    Hello...can you clarify the range on Free T4? Is it .9-19, 9.0-19? You want to be between 50-75% of the range. Looking at Free T3 would be so helpful as that is the active hormone...it's your energy and healthy hair hormone. It's best to have that one at 50-75% of the range as well. Having antibodies tested is crucial. If you have high antibodies, you...
  12. icelandgirl
    Most likely they did TSH and Free T4. Free T3 and the 2 antibodies TPOAb and TgAb would be very helpful especially with your nodules. I have found some very helpful information on this site Open Original Shared Link. It's kind of like celiac.com, but for thyroids. ☺ You may find some helpful information there. Here is another link to some good i...
  13. icelandgirl
    Hi friend, I too have a thyroid nodule. Mine was found almost 3 years ago. I switched Dr's and my new one, upon finding that I was on thyroid medication and had never had an ultrasound sound, ordered one. Mine was 5 mm at the time. The general policy here it seems that if its over 1 cm, they do a biopsy. If it's smaller than that, they watch it...
  14. icelandgirl
    Hi Jamie! I completely agree with Pinky. Have your thyroid fully investigated. A lot of Dr's will only test TSH and it just doesn't tell the whole story. You also need Free T3, Free T4, TPOAb andTgAb. The last 2 are antibody tests. Your TSH should be close to 1 and both Free's should be within 50-75% of the range to be optimal. When your thyroid...
  15. icelandgirl
    Hi Peg...I'm sorry that you're experiencing so much pain...that's terrible. ((((Hugs)))) I would suggest taking magnesium daily. I take mine before bed each night, 300 mg. It has helped so much with my peripheral neuropathy. I also find Epsom salt baths to be very soothing when I have pain. Do whatever you can to relax and take care of yourself...
  16. icelandgirl
    I'm so glad to hear that!? Patience is certainly a necessity for us, but sometimes you just need to vent!
  17. icelandgirl
    Hi cyclinglady...just wanted to check on you to see how you are doing. I hope you're feeling much better!
  18. icelandgirl
    I also use and love coconut aminos...so good!
  19. icelandgirl
    I second this. I do react to oats...I so wish I didn't as I miss oatmeal. Definitely try cutting those to see if there's an improvement. Keep in mind that in terms of healing your intestine, 6 weeks is not a long time. You need a lot of patience with celiac...so much more than you anticipate at diagnosis.
  20. icelandgirl
    Hi cyclinglady...I'm so sorry you're going through this! ((((Hugs)))) I got an infection when I had my wisdom teeth out. I only had 2 wisdom teeth, which is odd anyway. But one got infected after removal and it was terrible. I remember the pain...it felt like someone was hammering inside my head. They had me on antibiotics and had to put in a drain...
  21. icelandgirl
    I'm sorry if you've had trouble. I ordered a case of bagels directly from Canyon as my store kept running out....never had any issues.
  22. icelandgirl
    Hi Molly! Welcome and ((((hugs))))! The good news about being diagnosed as young as you are is that you likely don't have as much overall damage as people diagnosed later in life. So your recovery may be faster. Make sure that your doctor has tested you for common deficiencies that celiacs experience, B12, D and iron seem to be common ones...
  23. icelandgirl
    Hi Mandy and welcome to the board! You have done great so far in advocating for yourself and that will serve you well in your recovery. It will take time. You've been sick for years, getting worse and worse. Now you have to be patient with healing. Like the others have said, eating a diet rich in whole foods is such a great way to go. That...
  24. icelandgirl
    I did not have dessert. I had a steak, potato and asparagus. I'm assuming it was cc. Perhaps the person cooking didn't understand how careful they have to be? It was really bad though. The restaurant is very close to my house and when I drive past I still shudder.
  25. icelandgirl
    That would be so fun!??
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