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docaz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by docaz

  1. docaz
    I completely agree with you regarding AN-PEP and thank you for your kind comments. The issue is that some products contain DPP-IV and these do not work. Here is a paper that shows how effective AN-PEP is and how ineffective DPP-IV is https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4452362/
  2. docaz
    You are very fortunate that you can live a life that is not impacted much by a gluten-free diet and give your husband a hug for supporting you. For some this is not a big deal at all and for some (like my teenage kids) it is quite challenging. I also hope that Bobbie gets some closure based on a proper diagnosis.
  3. docaz
    The suggestion of a genetic test is actually a very good because a negative test will automatically exclude the diagnosis of celiac disease. If it comes out positive, the situation still remains vague because not everybody who has genetic markers will develop celiac disease but it is still good to know because the field of celiac disease is dynamic and...
  4. docaz
    This is also true that if symptomatically a gluten-free diet helps, then continuing with it is a good thing. It is still important to know if one has celiac disease or a type of gluten-sensitivity. In case of gluten sensitivity, if one has accidentally ingested gluten, the implications are not as severe. In case of celiac disease, the implications are...
  5. docaz
    This biopsy report is actually very vague. First of all "lymphocytes" are all white blood cells but for celiac disease to be diagnosed specific white cells which are rarely present in the lining (neutrophils) and not just any lymphocytes have to be found in the lining. In addition "minimal" villous blunting is extremely subjective because the...
  6. docaz
    Duodenal biopsies that show signs of inflammation for various diseases and often misdiagnosed by inexperienced pathologists. I am not saying that this is the case here but when my kids where diagnosed, I did call up the pathologist. I happen to know how to read histologic slides and indeed the diagnosis was made with some elements of being arbitrary because...
  7. docaz
    It appears that many gluten-sensitives are caused to fructans. The body can not break down these complex sugars. There is an enzyme called inulinase, that could possibly work but at this time it completely prohibitively expensive because it is only made is small laboratory quantities. The FODMAP diet is something to consider and you can google it. Functional...
  8. docaz
    Experts come more and more to the conclusion that a pure gluten-free diet is almost impossible to maintain. A recent study which in my opinion was very cleverly done, examined doggy bags taken home after eating gluten-free food in restaurants. The doggy bags were examined and a very high percentage showed to contain gluten. (If you do a web-search for gluten...
  9. docaz
    Looking at the government clinical trial page, it appears that the study is requiring the participants to maintain a gluten free diet and it is not a gluten challenge study? Is that the case, or are some participants actually ingesting gluten? Thx for the info. https://clinicaltrials.gov/ct2/show/NCT03569007
  10. docaz
    Thank you for noticing that. I did pack as much AN-PEP as possible into the capsule without other ingredients except a flow agent to allow the capsule to be filled better and a small percentage of a food grade acid that has proven to greatly increase the activity. It makes the product slightly more expensive but one capsule is only about 50cents and...
  11. docaz
    Scott, you touched upon something that is very true and possibly the reason why there will never (or at least for many years to come) be an FDA approval for a product that will have an indication to be taken to allow someone to eat gluten. In order for a product to go through the FDA process it has be first prove that it is safe in humans and that it...
  12. docaz
    Hi, I have been made aware of this thread and I have formulated GliadinX in response to 2 of my children having been diagnosed with celiac disease about 8 years ago. Right of the bat, I would like to emphasize that even if there is a large number of studies showing that AN-PEP/GliadinX breaks down gluten (gliadin) I do not want to encourage anybody to...
  13. docaz
    Very well written. It is always a struggle finding the balance between not being cautious enough and risking exposure to gluten or going overboard and making live unnecessarily hard.
  14. docaz
    OK, I see your point and agree with it.
  15. docaz
    I can see that but should that be a reason to withhold it from people who are very, very careful?
  16. docaz
    This is a very good question and indeed, major centers are looking at AN-PEP but are still cautious. The enzymes have been available for laboratory testing about 14 years ago but have been on the market only for a few years. It is clearly proven the AN-PEP does break down the immunogenic component of gluten, the attenuation of the inflammatory reaction in...
  17. docaz
    Particularly when traveling, cross-contamination is a higher risk because of language and cultural barrier. I think that everybody should have AN-PEP enzymes in their "emergency kit". Even under best conditions, contamination or accidental gluten consumption is not always available but in particular traveling adds stress and I think that this article is very...
  18. docaz
    Keeping a gluten-free diet is not easy and sometimes we will eat too much sodium, saturated fats, carbohydrates, nitrates or whatever else there is and if it is in moderation we can say sometimes "Yes" just because we enjoy it, instead of always "No".
  19. docaz
    This burger is available to restaurants and they can put it on whatever bun they want. I am not gluten free but my kids are. I must admit that I ordered it a restaurant that is very "gluten-free-aware" but I had it on a regular wheat bun because I wanted to do my own experiment how it compares to a regular beef burger and it was really very good. I might...
  20. docaz
    The question that is also worth evaluating is how much adhering to a gluten-free diet is causing a psychopathology in addition to studying how gluten is the culprit. There is no question that a gluten-free diet has social implications and puts a lot of stress on the children, on parents and others because a simple dinner at a restaurant or at relatives house...
  21. docaz
    I like eating meat and wanted to try this burger in a restaurant just because. I was very impressed. With all the condiments, I am not sure I would be able to tell the difference between meat and the impossible and I tried that patty by itself and it was also very good. My kids also like beef burgers and I grilled just to try out a different brand,...
  22. docaz
    Two of my children were diagnosed about 7 years ago and the yearly blood draws were quite traumatic for one of them. I did order this test and it was a much nicer experience for the younger one. The other preferred the blood draw because she picked on the wound and it bothered her so I guess, it is a matter of preference but it was great for our younger one...
  23. docaz
    There is also one called imaware that is being sold for $99. My kids took it because they did not want to go to the doctor.
  24. docaz
    This is probably one of the most difficult situations to be in because the blood test is just a touch above normal and you do not want to be going gluten-free for life if you do not have to. This means that you do have slightly more antibodies than is considered normal but not much and therefore your body does not create damage to the small intestine that...
  25. docaz
    Hi, I am a father of 2 celiac children and in the medical and biotech field and I am also the founder of GliadinX. At the time, when my children were diagnosed, AN-PEP the main ingredient in the formulation was not available for sale. It is manufactured by DSM, one of the largest if not the largest enzyme manufacturer in the world. I was fortunate enough...
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