Jump to content

chrissy

Advanced Members
 View Profile  See their activity

  • Posts

    993

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by chrissy

  1. chrissy
    stay gluten free and have your blood work redone-----a drop in Ttg levels after being gluten free should eliminate any doubt your doc might have.
  2. chrissy
    bette hagman's basic featherlight bread, when it is hot out of the oven and slathered in butter, tastes pretty much like regular wheat bread hot out of the oven. when one of my girls cooked this for the first time, i quit crying about their celiac diagnosis.
  3. chrissy
    our ped gi tells me that celiac can cause liver changes----but i think that if you are gluten free, celiac should not be the cause of liver changes. i know that a positive ANA doesn't necessarily mean anything---people can have raised ANAs without having an autoimmune disease, but you obviously have one because you have celiac disease. my sister has autoimmune...
  4. chrissy
    kassie wants to know why that gal was looking on wikipedia if she is a chemisty/biology major??!!!
  5. chrissy
    we were suspecting celiac in one of our girls----i tested the family since we had met our 100% coverage and i knew it was genetic---and we discovered 3 of the girls had celiac. one of them did not have any obvious symptoms, but her Ttg levels were higher than the one that had the most "classic" symptoms---and we weren't suspecting celiac in the one with...
  6. chrissy
    i have not read through all of this thread, yet. i have/ had about 35-37 of the symptoms on the list (some of them seem to be repeats---just worded differently) i also remember a tick bite---but it was a LONG time ago. do any of you know of a doctor anywhere near me that would check for this? i live in southern idaho, far away from everything.
  7. chrissy
    according to your blood tests, and the fact that you said you had occasional gluten, i would think that your negative test results are probably right. it only takes a little bit of gluten to perpetuate the autoimmune response in a celiac. this does NOT mean that you are not having a problem with gluten, it just means you probably don't have celiac disease...
  8. chrissy
    the wikipedia entry isn't wrong----just the gal's interpretation of it. kneading bread dough DOES develop the gluten, but it doesn't CREATE the gluten. you knead bread dough so that the gluten develops into a nice stretchy structure to hold the bread together and help it rise nicely. bread that doesn't get kneaded enough won't rise as well. you have to...
  9. chrissy
    i had an endoscopy done in october. i told the surgeon that 3 of my children had celiac disease and wondered if he would do biopsies to check for celiac. ( i mean, as long as you are already down there....) he told me that he usually only did that if someone had active celiac disease. i keep wondering how he would know if i had active celiac disease...
  10. chrissy
    just the fact that your sister has celiac disease is reason enough to get screened for it. when we suspected one of our kids had celiac, we tested the rest of the family----that is how we discovered that the other two girls had celiac, also. all three girls had different symptoms. my mother and two of my sisters have also been tested since my girls were...
  11. chrissy
    i would think it would be fine to wait 2 weeks to change your daughter's diet. who wants to make a diet change when going on vacation??!! what symptoms is your daughter having? did you ever get a copy of your daughter's tests from the clinic to be sure of what it is they actually tested. i know i asked you this before, but i have not been on this site...
  12. chrissy
    there is also the problem with the fact that enterolab does NOT test for total IgA levels. enterolab also will diagnose ALMOST EVERYONE with "gluten sensitive" genes----because dr. fine considers so many genes to be "gluten sensitive" genes that there is only a small chance that you WON'T have a gluten sensitive gene. also, enterolab will tell people that...
  13. chrissy
    my computer was having trouble and i had to take it in to the shop. after getting it back, i was not able to log on to this site. when i requested a new password, i was told there was no one on the board registered under my name. i re-registered, and was logged on with my original screen name? anyone know what's up? i didn't have to put my info back...
  14. chrissy
    which IgA test did they do? antigliadin, Ttg, or EMA?
  15. chrissy
    our ped gi says that the tests aren't as reliable until after 3. i have read somewhere that young children don't always produce the antibodies. one of my kids is IgA deficient, but we know that he has the DQ2 gene. he will be tested yearly with an IgG test----we have already tested his total IgG levels to make sure that they are ok. we did his original...
  16. chrissy
    i think that maybe it might be a good idea to go into the clinic and get a copy of the paper work that shows the blood test results. i'm still guessing that it is total IgA serum levels they checked. one of my kids is IgA deficient and his levels were almost non-existent. i don't think that just slightly deficient would make that much of a difference...
  17. chrissy
    cool!!
  18. chrissy
    not likely at that age.
  19. chrissy
    i'd wait and talk to the doctor----i think that nurse gave you incorrect information. 24-100 is most likely the total IgA serum range. a score of 23 would mean that your daughter was slightly low, but not deficient. the nurse doesn't seem to have given you any scores for any kind of celiac test, so i'm not sure what she is basing her info on.
  20. chrissy
    there really doesn't appear to be anything in those test results that indicates a gluten problem. the antigliadin antibody was 1 point above normal. antigliadin antibodies can be slightly elevated by a number of things---even constipation can raise them. your fat score was incredibly high. there are a number of different things that can cause malapsorption...
  21. chrissy
    there are so many things that could cause a funky looking diaper in a 6 week old. i don't think i'd worry about celiac disease just yet.
  22. chrissy
    how did the doc decide that it was refractory celiac? she has only been gluten free for almost 6 months. if she is older, it could be several years before the intestines heal completely.
  23. chrissy
    angie, how far along are you? this could simply be nothing more than the weight of the baby putting pressure on some nerves when you lie down.
  24. chrissy
    if my insurance doesn't cover the tests-----about how much could i expect to pay?
  25. chrissy
    when i saw the topic of this thread i figured it might be another one of "those" threads. i got a really good giggle out of your post, bronco!!!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.