chrissy
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Latest Celiac Disease News & Research:
Everything posted by chrissy
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ARCHIVED New To The Board And Oh, So Confused
chrissy replied to bnsnewman's topic in Parents, Friends and Loved Ones of Celiacs
the bread machine with a gluten free cycle is zojurishi----or something like that!!LOL!! my dad makes pamela's bread in a regular bread machine. -
there should be a number inside the piano that tells when it was made. a piano tuner would be able to look this up for you.
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ARCHIVED Double Scheduled
chrissy replied to rebz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i had a colonoscopy done without sedation and it was ok---but, i think that it might depend on how "deep" they need to go as to whether or not you want to be put out. -
ARCHIVED The Center For Celiac Research
chrissy replied to Julie-uk-nz's topic in Related Issues & Disorders
i hate it when people say celiacs disease, too!! -
ARCHIVED What Is The Deal With Fibromyalgia?
chrissy replied to floridanative's topic in Related Issues & Disorders
i have an appt. with a neurologist in 2 weeks---i suppose i could ask him to run a lyme test? is carpal tunnel connected to fibro? i am having so much trouble with it recently. i can't hold a book or magazine without my hands and wrists cramping. my fingers are starting to feel kind of clumsy, too. -
ARCHIVED What Is The Deal With Fibromyalgia?
chrissy replied to floridanative's topic in Related Issues & Disorders
i have been weaning myself off of my wellbutrine and my cymbalta. my doc said i couldn't go off of them----but i can't see paying for two scripts a month----and still being depresses and agitated-----i can do that without paying the pharmacy. our weather is changing every few days and since i can feel the changes 3 days before they are obvious, i have been... -
ARCHIVED Double Scheduled
chrissy replied to rebz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i'm not sure what you are asking---you said you have already had a scope done without anesthesia and it was fine-----an endoscopy and a gastroscopy are the same thing. is there a reason that you are afraid of doing it without anesthesia again? i had a scope done in december and was put completely out for it----i can't imagine having it done while awake... -
ARCHIVED What Do I Do Now?
chrissy replied to Electra's topic in Parents, Friends and Loved Ones of Celiacs
when does eczema normally present itself? i have atopic dermatitis, and it pops up just any old time it feels like it. -
ARCHIVED What Is The Deal With Fibromyalgia?
chrissy replied to floridanative's topic in Related Issues & Disorders
i'm greatful that they are at least labeling it a "syndrome" now----at least it is acknowledged that people are really having the problems. i think that there are probably quite a few different "causes" of fibromyalgia. i'd sure like to figure out what is causing mine. ursula---how did you figure out all your other sensitivities??? -
ARCHIVED Warning About Generic Version Of Anti-depressant
chrissy replied to Flor's topic in Related Issues & Disorders
susan---i'm guessing that it is because of the "SR". the generic name of the med is still buproprion, but when the generic med is made into the "SR" form it gets a different name. that is probably why there are two generic names----did that make sence?---i know it did in my head!!LOL!!! hasn't the "gluten free bible" been around for awhile----that... -
ARCHIVED Could There Ever Be A "safe" Wheat For Celiacs?
chrissy replied to chrissy's topic in Gluten-Free Foods, Products, Shopping & Medications
the one thing about the article that i find kind of funny, is that they are thinking they could breed this safe wheat----isn't this what caused the problems in the first place? we might breed the wheat to be safe for a celiac, but in the process, we might create some other problem. why do we always think we can improve on mother nature????? -
ARCHIVED Warning About Generic Version Of Anti-depressant
chrissy replied to Flor's topic in Related Issues & Disorders
susan---catesfolley was correct in her spelling of the generic name of wellbutrine. it is BUDEPRION, not BUPROPRION. i'm glad you shared your story about the problem with the meds. i know they help so many people, but people need to be aware that when the meds aren't working, or the symptoms are getting worse, that maybe the meds could be part of the problem... -
ARCHIVED Could There Ever Be A "safe" Wheat For Celiacs?
chrissy posted a topic in Gluten-Free Foods, Products, Shopping & Medications
i don't know if there is any hope for safe wheat---but i found this article interesting. Wheat ancestors lack the gluten immunogenic factors of modern wheat] Mapping of gluten T-cell epitopes in the bread wheat ancestors: implications for celiac disease [in Process Citation] Gastroenterology 2005 Feb;128(2):393-401 (ISSN: 0016-5085) ... -
ARCHIVED Comparing 2 Sons' Results From Enterolab
chrissy replied to Pacer's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
does your son have a positive Ttg? -
ARCHIVED Need Help With Test Result!
chrissy replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
looks like maybe you are IgA deficient-----and there is no celiac test among those. my son is IgA deficient, so he has to have a total IgG serum test and a tissue transglutaminase IgG test done when we do his celiac testing. (he has the celiac gene, so he will have yearly testing) -
ARCHIVED I Am Soooo New - What Makes Up A gluten-free Flour Blend
chrissy replied to jmd3's topic in Gluten-Free Recipes & Cooking Tips
bette hagman has some great flour blends---i just can't seem to find my book at the moment to tell you the amounts!! her "featherlight" blend has worked really well for us. blends with bean flour in them bake up really nice, and have a bit more nutrition---just remember that bean flour tastes NASTY before it is cooked. -
ARCHIVED Test Results - Confused
chrissy replied to CraigN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
craig---keep in mind that dr. fine feels that NO ONE should ingest dairy. personally, i wouldn't base any life changing decisions based on those test results----the only (barely) positive result you have is anti-gliadin, which can be raised by conditions other than celiac. -
ARCHIVED Conflicting Test Results
chrissy replied to bmpress's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
barry, sounds like you have a smart doctor. since you didn't have positive blood work, you can't follow the reduction in antibodies to assess your progress. of course, you can choose to do (or not) the endo. personally, i feel like it is a good idea to follow the advice of a doctor you have confidence in, and who has actually examined you. i think that... -
ARCHIVED Unedible Products
chrissy replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
basically, what it all comes down to, is you have to do what works for you. as of the LAST antibody test----i believe that all of our girls antibody levels were normal. (some of the earlier tests were the one's that were NEARLY normal) our girls don't have thyroid or neuro problems. we choose not to be celiac "zealots"-----and our girls are healthy with... -
ARCHIVED Do Other People's Comments Bother You?
chrissy replied to NWLAX36Mom's topic in Coping with Celiac Disease
my youngest celiac daughter is still in grade school. i think it is really cool when her friends ask her if something she is eating is safe. i feel like they are interested in her and want to help her stay healthy. -
ARCHIVED Doctor
chrissy replied to bchapa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
save your money----i can tell you your test results from enterolab already-----they are going to tell you that your son has a gluten sensitive gene. your doctor is wrong in saying that your son can ABSOLUTELY not have celiac without DQ2 or DQ8, but chances are he probably doesn't have celiac without them----however, he could still be non-celiac gluten... -
ARCHIVED My Son Throws Up Rice Flour, Could This Be Celiac Disease?
chrissy replied to melf's topic in Parents, Friends and Loved Ones of Celiacs
is he actually sick, or is he just throwing up? kids can have reflux and do alot of throwing up without being sick. it seems strange, (but fortunate) that he would react so badly to these foods, but not be bothered by them in your milk----but maybe you are on an elimination diet?? allergy testing could help, but not necessarily, since the testing is... -
ARCHIVED Grocery Store Stocking Craziness
chrissy replied to TrillumHunter's topic in Gluten-Free Foods, Products, Shopping & Medications
i know this isn't helpful, but, there is something about reading "vital wheat gluten" that makes me snicker to myself----for celiacs, it is like a contradiction in terms!!LOL!! -
ARCHIVED Soy Crisps?
chrissy replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
my girls have eaten soy crisps without a problem. -
ARCHIVED Test Results
chrissy replied to alexp's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
definitely old school if he still thinks that you have to be anemic and have diarrhea in order to "really" have celiac disease. my 3 girls were not anemic and only one of them got diarrhea---(and not all the time).