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AristotlesCat

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About Me

Do yourself a favor, avoid this forum. It is filled with awful and inaccurate information. It was established in 1995 and its age really, really shows. 

  1. This isn't what is going on. I was fine on the previous brand of coffee. People here really should stop diagnosing people with things remotely.
  2. My aim wasn't to be rude. If that is what it was, I apologize. But I was surprised by your recommendation and response (not just there but also on another thread we were commenting on). I think there is bad information being spread on this forum by posters who have an outdated view.
  3. Thankfully creamer isn't an issue for me. I only use it occasionally and since I've been on the look out for the problem, I've only been taking the coffee black until I get to the bottom of things.
  4. Thanks for the information. I just want to clarify something here as well, since it didn't occur to me this might be what people are zeroing in on: Peripheral Neuropathy is not an unusual celiac symptom. If some of the other posters were trying to suggest that my PN was caused by some other condition I have, let me assure them: my neurologist, my GI...
  5. The cross contamination issue came up in other threads with some of the same posters. My statement about that was taken those other threads into account. I am saying there are a few key posters downplaying the risks or possibility of cross contamination. I also think saying flat out it is virtually impossible that I had a reaction to the coffee is odd...
  6. And one last time I'd like to point out, all I asked here was for some coffee recommendations.
  7. Everyone is different, that sounds like a big reaction. Still I've had some unusual reactions to gluten exposure myself in the past, and even something as seemingly minor as the cramping can get pretty intense. I would definitely agree with cyclinglady that getting the antibodies test soon is a good idea (at the very least you get a data point to have handy...
  8. Pizza is one of the hardest ones to do. This is something where it is wise to lower your expectations and to consider making it yourself (because if you find a crust you like, there is a god chance the cheese or sauce might not be to your taste). I have yet to find a pizza brand that gets everything right. But don't despair, there are some tasty options provided...
  9. I would be pretty careful about rotisserie anything in a supermarket or megastore in the US if it isn't labeled gluten free.
  10. They don't have to certify. But the gluten free labeling rules say if it says gluten free on the label it is supposed to be under 20 parts per million. There are good reasons for this. It just takes a small amount of gluten to trigger a reaction in the body for weeks. If they can't take steps to occasionally check, to verify that their source isn't introducing...
  11. I was diagnosed with celiac about seven years ago I think. At the time it showed up on an endo and I tested positive for antibodies. I was having tingling in my legs and feet and other symptoms. Went on the gluten free diet and my antibodies went down, my symptoms went away. No more tingling feet. This lasted for years. Then about two years ago symptoms returned...
  12. Fair enough. But some celiacs lie to themselves about the actual level of risk when dining out. I am very distrustful of anyone who thinks nothing of drinking prepared coffee at a restaurant or who doesn't seem to pay much heed to the risks of cross contamination. Cross contamination is pretty well established as a problem for celiacs and the people here...
  13. This doesn't surprise me. I used to work at a whole foods (in the fish and meat departments). We had a practice there of putting penko bread crumbs on older fish and frying them then selling them as snacks. This on its own is fine (the fish was still good and the frying made it taste great). But we used the same surface for spreading the penko as we did for...
  14. Also I do want to point out, because I think it is important, that I started a thread asking a community called celiac.com what coffees they would recommend, if they knew of any certified gluten free coffees. I don't think anyone recommended a single brand except Ennis_TX. Most of the responses were either people telling me coffee should be fine, people suggesting...
  15. I am sure the reason varies from company to company. But I have contacted many the use the label and have frequently encountered the mindset among several that they don't have to take any special precautions because the food in its raw state is naturally gluten free. That is a very dangerous mentality if you are putting any kind of gluten free labeling on...
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