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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. I don't understand why you are worried about B6 toxicity or for any of the common forms of B vitamins for that matter. They are all water soluble and excess is just peed out. Toxicity is only a concern with fat soluble vitamins.
  2. Russ, I was referring to the OP not responding to my suggestion about cutting out oats and dairy. I think the timing of our posts was confusing in that regard. Also, we both know that typically it takes years for celiac disease to get diagnosed after onset, it is not always the case and we cannot assume that to be in individual cases without some data...
  3. Ellen, it might be wise to go back to your dermatologist armed with new information and request another biopsy done correctly. Or, seek out another dermatologist who is competent to perform a biopsy correctly.
  4. How to correctly biopsy DH: https://www.mdedge.com/familymedicine/article/27546/dermatology/biopsy-location-key-dermatitis-diagnosis
  5. You did not respond to my earlier suggestion of look at other foods that could be causing this such as oats and dairy which have proteins similar to gluten and cause similar reactions to gluten in a subset of celiacs.
  6. Celiac disease can onset at any age. It takes not only the genes but a stressful triggering event, such as a viral infection, for the genes to be turned on or expressed. If you diarrhea is caused by celiac disease, you should be improving by now I would think.
  7. Welcome to the forum, Ellen! If they were bug bites, why would they only show up behind the knees? From your description of the bumps, it sounds like it could very well be dermatitis herpetiformis ("DH"), a rash whose only known cause is celiac disease. When a biopsy is done for DH, my understanding is that the tissue samples need to be taken from between...
  8. "However, unless the modified food starch is derived from one of the top eight allergens (like wheat), it is not required by law that the specific source be listed." from: https://www.glutenfreesociety.org/modified-food-starch/ Should be safe.
  9. You say your functional doctor says you don't have the gene (actually there's more than one gene that has been connected with celiac disease) but did that doc actually order a genetic test for that? And you say you were tested twice for celiac disease and told you didn't have it. Sounds like you have been on and off gluten for some years. My question...
  10. Very well done and informative. The most important thing I came away with from this article is: "The IgA anti-gliadin antibodies can totally disappear in 2-6 months on a gluten free diet, so they are useful as a diet control. By contrast, IgG anti-gliadin antibodies need a long time, sometimes more than a year, to become negative. The reverse is also true...
  11. Key sentence in the article that should not be overlooked: "Interestingly, sourdough fermentation did not reduce overall concentration of immunogenic peptides, but it did change the in vitro digestion profile of certain peptides." These changes were observed in a test tube environment but the study did not evaluate the effect of sourdough fermentation...
  12. Biopsy has been done according to first post: "7/7/2023 Endoscopy with small bowel biopsies, all showing “sprue-like changes” So, there is no question about whether or not OP has celaic disease. WBruce, I would suspect you got "glutened" inadvertently. There's a real learning curve involved in consistently avoiding gluten. It's included in ...
  13. I would think that would make the crust much like sourdough bread which we know is better tolerated by some celiacs than regular bread.
  14. It could mean you have celiac disease but it is a less specific test than some others for celiac disease.
  15. Probably everyone has H. Pylori it's just a question of is it in balance and in check with regard to the millions of other kinds of microbiota in the gut.
  16. What is a "RU value"? Are they saying that any initial negative for the tTG-IGA will trigger a reflexive total serum IGA?
  17. You may also be allergic to cefalexin apart from gluten or microcrystalline cellulose. If you intend to get formally tested for celiac disease you must go back to consuming gluten or the testing will be invalid. The Mayo Clinic recommends the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the blood...
  18. Barley has a fraction of the gluten wheat does. It could be you also have an allergy or sensitivity to some other protein in barley in addition to celiac disease or NCGS (Non Celiac Gluten Sensitivity).
  19. I'm not sure if there is an industry standard range for total serum IGA. Each individual lab may develop it's own test for that one as is the case for the individual IGA antibody tests. So, you might need to ask that question of the lab that does the evaluation.
  20. B vitamins are all water soluble. Any excess is peed out and will likely show in bright yellow urine (mostly due to riboflavin (B2). So there are no toxicity concerns with high doses of B vitamins.
  21. It means you tested negative for celiac disease on that particular test. Had you been eating regular amounts of gluten in the weeks and months leading up to the blood draw. Cutting back on gluten prior to testing will sabotage the test results. If you don't have celiac disease but have celiac-like symptoms then you could have NCGS (Non Celiac Gluten...
  22. Welcome to the forum, DJ B! Have you been already diagnosed with celiac disease? A certain percentage of those with celiac disease also get a rash called dermatitis herpetiformis or "DH". It is characterized by little blisters in the bumps. Celiac disease is the only known cause of it. If you have not been checked for celiac disease you need...
  23. Welcome to the forum, Mike T! There are a few things that can cause elevated tTG-IGA besides celiac disease but H. Pylori is not one of them that I know of. As you say, given the timing of your going gluten free, is impossible at this point. My recommendation for you is that when you get the H. Pylori under control is to go back to eating regular amounts...
  24. Welcome to the forum, Cloe! Which IGA test do you refer to? There is more than one. Is this tTG-IGA you are referring to? DGP IGA? Total serum IGA? If so, we would need the range used by that lab to specify what is normal since every lab formulates their own tests and uses their own scale. There is no industry standard. Please post the information you...
  25. Although knowledge and awareness concerning gluten disorders has increased in the medical community as a whole in the last 25 years, there is still too much ignorance, especially among older physicians who have been out of medical school for some time. The veteran celiacs in this forum community will attest to that and how frustrating it can be to get taken...
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