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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Hashimoto's disease results in hypothyroidism. Hashimoto's is an autoimmune disorder where the cells of the thyroid are attacked by the immune system, leading to death of the cells and diminished production of thyroid hormone.
  2. trents
    Allergies engage an entirely different immune system path so that would not impact tTG-IGA. Celiac disease, hashimoto's, etc. are autoimmune conditions. I would think diverticular disease of the bowel would not show the same kind of damage as villi blunting. With diverticular disease, there are little pockets that develop in the bowel lining that trap food...
  3. trents
    To be honest, what I'm not sure about is if non celiac inflammation/villi blunting will result in elevated tTG-IGA or if elevated tTG-IGA is specific to the inflammatory reaction caused by gluten.
  4. trents
    Kathy, yes, there are some other foods (eg., the protein casein in dairy), some other medical conditions (e.g. Crohn's Disease) and even some medications (e.g. NSAIDs and a certain blood pressue med) that can cause inflammation in the small bowel villous lining that mimics celiac disease. Do a search, on "What things besides celiac disease can cause elevated...
  5. trents
    This may be helpful: Studies have shown that most people who claim to be eating gluten free are really only eating "low gluten" because of being unaware of the myriad of ways and places gluten is hidden in the food supply. This was especially true of those frequenting restaurants. Truly eating gluten free requires education and diligence. It is also...
  6. trents
    Welcome to the forum, RefiRed1! From: https://jbiomedsci.biomedcentral.com/articles/10.1186/1423-0127-19-88 "Celiac disease (celiac disease) is a multifactorial disorder with an estimated prevalence in Europe and USA of 1:100 and a female:male ratio of approximately 2:1. The disorder has a multifactorial etiology in which the triggering environmental...
  7. trents
    Speaking of the Mayo Clinic, they have guidelines for a "pretest gluten challenge" for those who have been eating gluten free or cutting back on gluten but then want to get tested. With regard to antibody testing for celiac disease, the Mayo recommends the daily consumption of an amount of gluten equivalent to two slices of wheat bread for 6-8 weeks leading...
  8. trents
    I would wait. The reason I say that is if the test numbers are borderline, it may make a difference. Besides, you only have two more days before the blood draw to put up with the symptoms. "Completely gluten free"? Have you already been cutting him back on gluten? Keep us posted.
  9. trents
    Did you know that beginning the gluten free diet ahead of being tested will invalidate the testing? Celiac disease causes inflammation of the lining of the small bowel when gluten is consumed. If gluten is discontinued, the inflammation goes away and no antibodies will be produced to detect. From what you report about your own experience that makes me wonder...
  10. trents
    Welcome to the forum, Reneemb! Were you, yourself, officially diagnosed with celiac disease or NCGS (Non Celiac Gluten Sensitivity)? Concerning your son, realize that non adults, even teens, may have immune systems that are not completely mature and so may respond differently to antibody tests than do adults. Commonly, general practitioners will...
  11. trents
    Thanks for sharing! Keep the good work up.
  12. trents
    When was your celiac testing done in relation to going gluten free? Before or after? Celiac diagnostic antibody tests will be negative if the gluten free diet was started weeks or months ahead of the antibody testing. The symptoms you describe (migraines, elevated liver enzymes) are often associated with ceiliac disease.
  13. trents
    Why would you have a problem with absorption if gluten affects the brain but not the gut? Have you actually been tested for celiac disease while still consuming regular amounts of gluten? Have you been attempting to eat gluten free and still having an issue with gluten ataxia or are you having a problem with gluten ataxia because you are not attempting to...
  14. trents
    I'll ask again. Have you had your thyroid checked? Also, if you are still having stomach issues, I would wonder if you are still getting glutened sometimes from sources you do not expect. It's easy to achieve a lower gluten diet but to achieve a truly gluten free state in one's eating is more difficult than what first meets the eye. It requires education...
  15. trents
    Welcome to the forum, Karunkat! I think you meant to type >12 is positive instead of <12 is positive. On that scale basis, 19 is not a strong positive but it is not equivocal either. Every lab uses custom scales for the antibody tests. There is no industry standard. I also have a sensitivity to eggs but I find I can eat them occasionally and...
  16. trents
    Personally, I would not put a lot of confidence in a dietician/nutritionalist who themselves were not having to personally cope with celiac disease as so many in the medical community are operating on outdated information and very partial knowledge when it comes to celiac disease.
  17. trents
    This is exactly the reason we often push for a formal diagnosis. It is just human nature to rationalize it all away unless there is a concrete diagnosis. On top of that, if you factor in childhood/adolescent immaturity and social pressures, your concern is quite legitimate. I want to emphasize the importance of what you brought up yourself about getting...
  18. trents
    Do you know for certain that you react to oats? Only about 10% of celiacs do and the amount of wheat cross contamination in an animal feed product that is oat based would not likely be enough to cause you problems since you are not directly consuming the feed yourself.
  19. trents
    You state that you really feel a strong need to know for sure if you have celiac disease. So, yes. Go back to eating regular amounts of gluten for 2 months and get retested. If you can handle the gluten that is. If you have already begun a gluten-free diet and been on it for a significant period of time, you may find you react more violently to gluten if...
  20. trents
    Have you had your thyroid checked?
  21. trents
    No, I never saw a nutritionalist. I really don't see a need for that for most celiacs. This might be just as helpful: And taking some gluten free supplements to address the nutritional deficiencies in vitamins and minerals (especially B vitamins, D3 and magnesium) would be wise as well.
  22. trents
    It's not just the hand contact I'd be worried about but also breathing in the dust as you pour it out of sacks and so forth. You will breathe some in and it gets trapped in the mucous of the nasal passages and winds up in the gut eventually.
  23. trents
    Typically, B vitamins and D3. We commonly recommend celiacs just starting to eat gluten free to supplement with B12, B complex, D3 and magnesium in order to jump start healing and to continue at least until the villi are restored which can take 2 years or more.
  24. trents
    Studies vary widely in the familial connection rate of celiac disease. For a long time, researchers believed that there is a 10% chance for first degree relatives to have celiac disease if one family member was diagnosed with it. Two more recent and large studies pegged it at almost 50%. First degree relatives refer to those who gave birth to you or those...
  25. trents
    Elevated liver enzymes are a recognized clinical symptom of celiac disease. Happens in about 20% of celiac cases. Most general practitioners aren't aware of that, however. To my knowledge, it is not well-understood why or what is the connection. I do not know if there is a connection between kidney function and celiac disease but it would certainly not surprise...
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