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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, cacampora! I'm not sure if this is directly answering your question but it is typical to develop more intense symptoms when doing a gluten challenge after having been gluten free for a significant amount of time. You lose whatever tolerance you once had for gluten once you go gluten free.
  2. trents
    I do not believe that is a tiny minority of the overall population. Are you talking about the USA population? Certainly there is a segment of the population in the USA that cannot afford to make good food choices but I believe they are the minority at this point. If the current administration remains in power much longer that may change, however. I think...
  3. trents
    @plumbago, thanks for the link. An interesting read indeed. Not sure what you mean when you say, "There are truly thinks like food deserts. And there are things like government regulation." Seems obvious to me that deserts are food and that we do have government regulation.
  4. trents
    I agree with Guest Kate. The heart of the problem lies with the consumer, not with food companies or with government regulations. Food companies are in business to make money. They will give the public whatever the public wants and will buy. And the government is pretty responsive from a regulation standpoint if voters put pressure on them through representatives...
  5. trents
    So, it sounds like your PCP can order the tests you need. Whatever he/she ran in the first place that was positive and triggered the referral to the gastroenterologist should be sufficient to check progress. I would do that on a yearly basis. I had follow up endoscopies twice within the first three years and the GI doc doing the scoping said there was...
  6. trents
    So, I'm not clear on which doc, the PCP or the gastroenterologist ordered the antibody tests. But since your Transgltaminase (tTG-IGA?) was strongly positive, it would seem to me that it would only be necessary to have that one done annually to check on your success in adhering to the gluten free diet. That number should be going down and eventually show...
  7. trents
    I assume that either your PC physician or your gastro doc ordered a celiac blood antibody test or test that was/were positive and prompted confirmation via the endoscopy/biopsy. Find out what test that was and have it ordered again by your PC doc. Do you have access to your medical records to find out what was ordered?
  8. trents
    A buffet would have it's risks from cross contamination, especially if you are a sensitive celiac.
  9. trents
    Looks like they only examined and biopsied the stomach. Celiac disease affects the small bowel.
  10. trents
    There are a number of celiac antibody tests that can be ordered. The most popular one with PC physicians is the tTG-IGA, and it may be the best all around test for celiac disease but full panel is always better. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  11. trents
    Do you have good support systems in place? Like family, good friends, mental health counselor, spouse or partner? I sense there is more going on than just food issues, not to minimize your autism and ADHD.
  12. trents
    Celiacs typically develop intolerance/sensitivity to non-gluten foods over time. After all, our immune systems are dysfunctional to begin with. Common among those are dairy, soy, oats and eggs but it could be anything. Also, common ingredients used in many gluten-free foods and recipes cause some of us distress, like xanthan gum. Also, look into common...
  13. trents
    Can you elaborate on the 85% gluten free home to protect you and your daughter? What about the other 15%?
  14. trents
    @Matthew, Those are the exact symptoms I experience when I get a good dose of gluten. Some celiacs react the same way to the protein found in dairy and in oats as they do gluten. Are you still consuming either of these?
  15. trents
    msmcgregor, the issue with oats is not only the possibility of cross contamination with wheat but with the oat protein (avenin) itself. For about 10% of celiacs, avenin causes a gluten-like reaction.
  16. trents
    Perhaps the warning is a general one and not just meant for those with gluten issues. It's not meant for oral conception so it should only be a concern for a very small segment of people who fall into the category of people super sensitive to gluten, even through skin contact. Does it list the active and inactive ingredients? You can always contact the manufacturer...
  17. trents
    Definitely continue to eat regular amounts of wheat/gluten foods up to the day of the blood draw. Beginning a gluten-free diet before testing will sabotage the tests. If you are positive for celiac disease from the blood antibody test then the physician may likely refer you to a gastro doc for an endoscopy with biopsy of the small bowel villous lining. Ideally...
  18. trents
    Welcome to the forum, Aged31! Those are classic signs of celiac disease but could also be cause by other medical issues. If you GP doesn't come up with the idea on his/her own, make sure you ask to be tested for celiac disease as let me assure you, it is not on the radar of many GPs.
  19. trents
    @patty_maguire makes a good point. Neither "gluten free" or "certified gluten free" means there is absolutely no gluten in the product. They are relative terms. If we had sensitive enough instruments to be able to detect it we would find there is gluten in the air you breathe. Getting a feel for your own level of sensitivity is the critical issue. Believe...
  20. trents
    Joe, I suspect you will find that other gluten-free bread making companies are doing this as well. I use Franz loaf bread products and I was noticing the other day that the slices seem smaller than usual.
  21. trents
    Have you been officially diagnosed with celiac disease or has celiac disease been officially ruled out?
  22. trents
    It should only matter if you are an especially sensitive celiac and if you aren't, you would be severely limiting yourself unnecessarily. But keep in mind there is always the occasional product that is labeled "gluten free" that doesn't live up to its billing. Many food companies do their own in house testing whereas "Certified Gluten Free" means the food...
  23. trents
    Is your stool well-formed? If the poop is not well-formed but loose it could be that you are not tolerating some ingredient in gluten-free recipes. Many gluten-free recipes, especially with processed gluten-free baked goods, have ingredients that celiacs don't tolerate will such as xanthan gum. Have you been officially diagnosed with celiac disease or...
  24. trents
    Gluten Free means the gluten content does not exceed the 20ppm of gluten standard set by the FDA. Certified Gluten Free means the product has been tested by a certifying group and does not exceed 10ppm of gluten.
  25. trents
    There are some common sense things like not using the same toaster as other family members and making sure dishes are thoroughly washed. But then there are the situations where you would not expect to find gluten like most soy sauces, most canned soups (Would you expect Campbell's Tomaton soup to have wheat in it? It does. Wheat is used as a thickener in...
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