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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Thanks for the info, Posterboy. We have known for awhile that CMP can blunt villi but this demonstrates what many of us assumed that it also produced some of the same antibodies that gluten does.
  2. trents
    At 5'10" and 137 lbs that can't be too far off of your ideal weight I would think. What do you want to weigh? It can be a challenge for someone your age to gain weight if genetically they are prone to be thin. When I was your age (I am a male) I was 5'8" and 145 lbs, lifted weights, ate a lot but could not gain weight. I may have had celiac disease back then...
  3. trents
    Thank you for the clarification. A couple of other questions. 1. Have you been retested since your diagnosis 10 years ago? This would give an indication of whether or not there has been healing of the villi that line the small bowel and if gluten is somehow getting into your diet despite you efforts to eat gluten free. Studies show that most people...
  4. trents
    But don't lose track of the big picture. You already know that gluten is the culprit behind your health issues. You have proved that to yourself because when you go gluten free all those issues get much better. Regardless of what the test turns up, you know this to be true. It is also possible that you have NCGS (Non Celiac Gluten Sensitivity). The two share...
  5. trents
    I think 7.5 weeks should be sufficient. Kudos for tuffing it out.
  6. trents
    Gluten can also contribute to depression. It crosses the blood brain barrier like opiates do and has addictive qualities. Are you following a strict gluten-free diet and if so, for how long now have you been doing that?
  7. trents
    Welcome to the forum, pbzgf! Are you making a conscientious effort to eat gluten-free? You don't really say that in your first post but you did say, "I never really thought of celiac disease so influencing of the life I live." So, it made me wonder whether or not you were taking the gluten-free lifestyle seriously. Also, you state you just thought of...
  8. trents
    Since we know that in genera terms, a viral infection stressor can trigger active celiac disease, my feeling would be that COVID can, like any virus, trigger it.
  9. trents
    "Whole IGA test"? Don't confuse a "Total IGA" test with a "full celiac panel". Total IGA is a composite value that measures the entire IGA load, not just those IGA components associated with celiac disease. When total IGA is low it is reasonable to assume that the individual IGA components that make it up, including antibodies associated with celiac disease...
  10. trents
    Welcome to the forum, ChaplainMeg! I am a retired chaplain (healthcare) myself. No one actually needs an official diagnosis of celiac disease. Those in the UK can receive government assistance to offset the cost of gluten free prepared foods but other than that, an official diagnosis may be helpful to some people for remaining disciplined in their gluten...
  11. trents
    Barbs_, as you know by now, having celiac disease is not a simple healthcare problem to address necessarily, especially when it has gone undiagnosed for many years. By that time, celiac disease has typically brought along some other autoimmune buddies and spawned a lot of other associated health issues that will also need attention. Many years of undiagnosed...
  12. trents
    The link to the info on the cedars-sinai web page does not describe two types of DH and the second one seems to talk about two stages of the same type, namely, the fresh outbreak with pustules and the scabbed over later stage as it starts to dry up. But it is possible you may have some other rash going on in addition to DH. Yes, a total IGA deficiency...
  13. trents
    Welcome to the forum, Tag! The development other food intolerances/allergies is very common to celiacs. The leaky gut syndrome that accompanies celiac disease is largely responsible for this I believe as it allows larger than normal protein fractions to cross from the gut lining cells into the blood stream where the immune system falsely interprets them...
  14. trents
    Once you get the biopsy behind you, you can begin the gluten-free diet in earnest. The Mayo Clinic guidelines for the pre-biopsy gluten challenge is the daily consumption of gluten equivalent to two slices of wheat bread for two weeks until the day of the procedure. If you cannot get the biopsy scheduled in the near future and you start the gluten-free diet...
  15. trents
    Welcome to the forum, LizG! Some things to consider: 1. It is more difficult to eat gluten-free than most people imagine when first beginning the gluten-free journey. It involves more than just eliminating the major sources of gluten like bread and pasta. It involves learning how gluten is hidden in food industry terminology, learning where it is...
  16. trents
    I cannot answer that question about the reliability of the home test kits. I have had food allergy (and aerosol allergens) via skin prick and serum testing. I can't remember whether the serum allergy test was the ALCAT or something else. It was a long time ago. I had the testing done by allergists and PC physicians as opposed to a home test kit. But what...
  17. trents
  18. trents
    It can be, yes. Same for the dairy protein casein. And not only can there be an issue with the dairy protein casein but many celiacs are also lactose intolerant. The latter may improve with time and the healing of the gut.
  19. trents
    I have not heard of two types of DH but that doesn't mean you are wrong. Can you link a reference to that?
  20. trents
    Be aware that some celiacs react to the oat protein avenin like they do to gluten.
  21. trents
    Welcome to the forum. Barbs_! Many or most of us who have celaic disease also have food allergies or other food intolerances. It's all part of the immune system dysfunction/leaky gut that goes hand in hand with celiac disease. You might want to get some ALCAT food sensitivity testing done and you might also want to look into SIBO, a common gut malady...
  22. trents
    Two types of DH?
  23. trents
    Welcome to the forum, Jensamms! Have you been checked for SIBO (Small Intestine Bacterial Overgrowth)? It is very common among the celiac population and fits the description you give of symptoms.
  24. trents
    Welcome to the forum, Shyofthemoon! The Mayo Clinic Guidelines for the pretest gluten challenge are the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of serum antibody testing. Cutting that short may invalidate the testing. I know, it's tough. There is a skin rash condition known as...
  25. trents
    I note the ingredients include xanthan gum. This is found in many gluten-free processed foods and it causes problems for many of us celiacs.
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