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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    What about NCGS?
  2. trents
    Maren, It appears your primary care doc did not actually do any antibody tests specific for celiac disease. The only thing he/she did was test your total serum IGA which has value only in the sense of explaining why the tTG-IGA test might be negative in the face of celiac symptoms. If you have been on a gluten free diet for over 15 years then any testing...
  3. trents
    On the forum, try alternate terminology like "period" or "monthly period" or "menses".
  4. trents
    We have had many posters on this forum report that gluten consumption adversely affects their menstruation. And I'm sure it's one of the complications I have seen in the lists of health problems associated with celiac disease. Have you googled it?
  5. trents
    Russ314, you said: "Some people e.g. with IBS report that avoiding gluten makes their symptoms improve. This could be something to try once the possibility of coeliac disease has been eliminated, and possibly doesn't need to be as strict a diet." But what if BeckyH25 has NCGS? Are you saying she doesn't nee to be as strict in avoiding gluten?
  6. trents
    "But this doesn't mean there couldn't be a stress factor necessarily. Just that if there is a stress factor genes may also play a major role in that stress factor." Excellent point. The corroborating genes may make us more susceptible to the environmental risk factors. We are "fearfully and wonderfully made" (Psalm 139:14).
  7. trents
    "These data suggest that environmental factors, apart from gluten, have little or no effect on the pathogenesis of celiac disease." Is this what you are reacting to? So, if I understand correctly the point being made by this study, it is saying that we have been incorrect in assuming that the development of active celiac disease depends on two factors...
  8. trents
    Concerning your main question, I would opt for, "I'm gluten intolerant". That would be be a true statement and is broad enough to cover both celiac and NCGS. Besides, most people just give you a blank look when you say, "I have celiac disease". And "intolerant" conveys a more vigorous problem with gluten than "sensitive". How old are your children?...
  9. trents
    Welcome to the forum, Maren! The genetics of celiac disease is not a settled thing. So far at least two genes are known to be associated with celiac disease but researchers are finding evidence there may be more. Have you considered NCGS (Non Celiac Gluten Sensitivity)? It shares a lot of the same symptoms with celiac disease, is 10x more common...
  10. trents
    https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
  11. trents
    Eating out will always present danger since you have no control over how the food is prepared and handled back in the kitchen. Avoid eating out if at all possible. Studies have shown it is the number 1 underminer of gluten free eating.
  12. trents
    In the UK there are certain government subsidies if you have an official diagnosis. But if that doesn't apply to you where you live then the only benefit would be psychological and social. Some people seem to require an official DX in order to stay on the wagon and not rationalize it all. Some report that their family and friends won't believe them without...
  13. trents
    Welcome to the forum, Wise1! First, is there a reason you haven't been tested for celiac disease when it runs in your family? Please be aware that you would need to be eating gluten daily (equivalent of two slices of wheat bread) for 6-8 weeks if you ever go in for testing. On the other hand, if you are convinced enough that you have celiac disease...
  14. trents
    Has imaging been done (Xrays, MRI, CT Scan) of her lower spine and hips? Does she appear to be guarding to avoid pain when attempting to bend at the waist?
  15. trents
    Yes, it is unfortunate that more blood tests weren't ordered for celiac disease. Not everyone who has celiac disease will show elevated tTG-IGA. Some immune systems respond atypically and as Russ314 said, low total IGA can skew the tTG-IGA downward. There is also the option of purchasing a home celiac test kit from a companies like imaware. But please understand...
  16. trents
    Welcome to the forum, LMNmom! Some questions: 1. How long ago was your daughter diagnosed with celiac disease? 2. Do you now have her on a gluten free diet? 3. Have the other issues besides the inability to bend at the waist gotten better since going gluten free, assuming that you have her on a gluten free diet? 4. Has anything been...
  17. trents
    Well, that takes the "what if" out of it now. Now it's down to the challenge of learning to live a gluten free lifestyle. What will you do when she's invited to birthday parties? This might help you get started: Unless everyone in the household eats gluten free while in your own home it can be a real challenge to prevent cross contamination. And there...
  18. trents
    Bummer!
  19. trents
    Ordering gluten free items, even from the gluten free section of a menu, avoids only part of the potential problem. It's what goes on in the kitchen with regard to preparation and handling that is more the problem in restaurants. Here are some cases in point. You order gluten free spaghetti but they may boils those gluten free noodles in the same pot as they...
  20. trents
    Welcome to the forum, cantgonow! Love your handle! Most appropriate. We know that celiac genes are inactive until turned on by some triggering stress event. The MRSA infection you described would certainly seem to qualify. Are you taking any supplements to correct the inevitable vitamin and mineral deficiencies that accompany celiac disease? Make...
  21. trents
    Not sure what you are referring to by "the two you mentioned". CBC is probably the same as "whole blood count". It would look for things having to so with blood cells such as red blood cell counts/shape/size (anemia related things), platelets and white blood cells (infection fighters). CMP would be to check for things like liver and kidney functions...
  22. trents
    Welcome to the forum, Joz! First, don't cut back on gluten before all testing is complete or you may sabotage the results. Second, the effect of celiac disease on weight can cut either way. Most celiacs seem to have trouble keeping weight on prior to diagnosis and going gluten free. Of course, this is due to the malabsorption caused by damage to...
  23. trents
    I would not think so. Gluten does not trigger the genes. But if the genes are triggered then gluten will cause inflammation. A common trigger is a viral infection but there are others. This is an area we don't know much about. But many autoimmune disorders are like that in the sense of having genetic potential that lies dormant until triggered by some stress...
  24. trents
    Are the other two symptomatic? A high percentage of the population have one or more celiac genes but most never develop active celiac disease. It takes a triggering event to turn the genes on.
  25. trents
    Thanks for the complement of my avatar.
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