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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Your best bet would be to contact the imaging center and ask them what product will be used. Then call the manufacturer of the product. It is unlikely the imaging center will know the answer.
  2. trents
    But . . . when you have only been off gluten for four days you state you are already feeling definitely better. Actually, I am surprised that your physician wanted you to get a biopsy since I am aware that in the UK if your tTG-IGA score is 10x or higher than normal range they generally don't test any further. Most celiacs find that the medical community...
  3. trents
    I don't think anyone can say whether or not discontinuing gluten before the biopsy will necessarily invalidate the results. The official recommendation by the Mayo Clinic for the pretest gluten challenge when anticipating a biopsy is daily consumption of an amount of gluten equivalent to two slices of wheat bread for two weeks before the endoscopy/biopsy...
  4. trents
    I would agree with your conclusion. I think we don't yet know all there is to know about the genetics involved in celiac disease.
  5. trents
    Keep in mind that having the genes only establishes potential for celiac disease. It does not guarantee you have it or will ever get it. About 40% of the population have the genetic potential but only about 1% have celiac disease. It takes a gene or genes and some triggering stress event such as a viral infection to activate the genes.
  6. trents
    This came to my inbox just this morning. Very enlightening concerning slow healing and refractory celiac disease. https://www.beyondceliac.org/research-news/ask-science-team-symptoms/?utm_campaign=Research Opt-In&utm_medium=email&_hsmi=204116257&_hsenc=p2ANqtz-85lGpXM38uHuLpzJFXHQFGdrmU-QxQ7ovsk-bSR02QFSyskV3q1Wes46O8cABnYa4xkj-TSl9WIo38mie...
  7. trents
    Why is that knitty kitty? Lower extremity muscle weakness?
  8. trents
    Or, she could eliminate all three and then add each one back in one at a time. That way, you have more probability of including the offender from the get go.
  9. trents
    Darren, I am not sure it is true that dairy intolerance will not create positive tTG-IGA results, but I could be wrong. Research has shown that for some celiacs, dairy can cause inflammation and villi blunting. Now, I'm not talking about lactose intolerance, I'm talking about the effect that the dairy protein "casein" can have.
  10. trents
    Don't forget about the possibility of NCGS (Non Celiac Gluten Sensitivity). Many of the same symptoms as celiac disease but won't throw antibodies so lab work would be negative.
  11. trents
    "Other conditions which require caution when it comes to using ashwagandha include if you’re pregnant or breastfeeding, or if you have an autoimmune disease." https://health.clevelandclinic.org/what-is-ashwagandha/ Celiac Disease is an autoimmune condition.
  12. trents
    Kasimir, can you be more specific about the test you did for gluten. What kind of test was it? What is the name of it? There are some blood antibody tests specifically designed for diagnosing celiac disease. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ These tests detect antibodies that are produced by the inflammation in the...
  13. trents
    Low total IGA can cause false negatives, such as a negative tTG-IGA. When total IGA is low an IGG is often run. I think you do need to find out if your total IGA is low since if it is other conclusions cannot be drawn. It also sounds like you might have NCGS (Non Celiac Gluten Sensitivity) which has many of the same symptoms but for which there is no...
  14. trents
    You could also have NCGS (Non Celiac Gluten Sesitivity) which has many of the same symptoms as celiac disease but for which there is no test available. But NCGS is 10x more common than celiac disease. Edit: The only genes that I am aware of that have been definitely tied to celiac disease are DQ2, DQ8 and maybe DQ9 (this last one is a new discovery and...
  15. trents
    You could also have NCGS (Non Celiac Gluten Sesitivity) which has many of the same symptoms as celiac disease but for which there is no test available. But NCGS is 10x more common than celiac disease.
  16. trents
    There are some blood antibody tests that are targeted for celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ Without more specific information about what tests have been run I cannot comment on the "HIGH number for inflammation" you speak of. What I can tell you is that if you are going in for more bloodwork...
  17. trents
    If you truly have been gluten free for two days I should think gluten could not be the culprit, at least much longer. But most people have a very incomplete concept about how and where gluten finds its way into their food. Studies have shown that most people who claim to be eating gluten free are really eating low gluten. This is particularly true...
  18. trents
    Yes. I researched DQ9 and it appears to have some association with celiac disease. I just think there is a lot we don't know about the genetics of celiac disease and even less about the genetics of NCGS. And then there is the whole unfolding science of epigenetics. Epigenetics deals with DNA structures that allow for genetically driven changes in response...
  19. trents
    Do you have online access to the whole report in your patient portal?
  20. trents
    Oats is another food that some celiacs commonly react to in addition to wheat, barley and rye. Dairy, corn, eggs, soy and wheat are all common things that some celiacs react to in a similar fashion to gluten.
  21. trents
    Welcome to the forum, Joven! So let's start with basics since I don't know how much you know about celiac disease. First, celiac disease is not a food allergy. It is an autoimmune disease that triggers damaging inflammation in the small bowel when foods containing gluten are eaten. The cells that line your small bowel are called "villi". When the...
  22. trents
    kiriaussie, welcome to the forum! Do you have a total IGA score from the serum antibody testing? Low total IGA can cause false negatives in the IGA antibody spectrum of testing. In that scenario, the IGG-IGA and the IgG can catch celiac disease. https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ : "IgA deficiency in a patient...
  23. trents
    Mark, it might be a good idea to have a celiac panel serum antibody test done to gauge whether or not the villi are rebounding or if there is still a lot of inflammation going on. And I echo what Scott said about eating in restaurants or eating at others' homes where you cannot control ingredients used and you can't control cross contamination. A study...
  24. trents
    For the most part, the concerns about arsenic toxicity have proven to be exaggerated. There are exceptions in some localities where the soil is high in arsenic content.
  25. trents
    If you do go on a gluten-free diet you may find you become more sensitive to minor amounts of gluten over time. We tend to lose tolerance for it when it is withdrawn. Also, in the first 2-3 weeks after going off gluten you may feel worse. There can be withdrawal malaise. Since gluten-free flours do not contain enrichments like wheat flour does, it would be...
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