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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Smiller, are you on a statin by any chance? I was diagnosed with celiac disease about 20 years and suffered with RLS even after going gluten free. Several years ago I decided it was in my best overall health interest to discontinue the Lipitor I had been on for years. Unexpectedly, my RLS almost immediately disappeared.
  2. trents
    When I search for "Gluten free breakfast cereal" on Amazon Smile I come up with a whole page of them. Here are just a few. And they are sold in individual boxes: Gluten free Honey Nut Cheerios: https://smile.amazon.com/Honey-Cheerios-Gluten-Free-Cereal/dp/B07CM8J4NC/ref=sr_1_5?crid=N16GYPZ0I0TS&keywords=Gluten%2Bfree%2Bbreakfast%2Bcereal&qid...
  3. trents
    It is certainly possible that the original bout of COVID you experienced in November of 2020 is what really triggered the onset of celiac disease. There can be years between the actual onset of the disease and the beginning of significant symptoms. There are many "silent" celiacs who have few if any symptoms for years before the damage to the small bowel...
  4. trents
    Certainly! That is if your physician is willing to go that route. Actually, the biopsy is considered the gold standard of celiac diagnosis. Physicians may be bound by insurance guidelines, however, that demand they do the much less expensive serum antibody testing first.
  5. trents
    No. The mayo clinic official recommendation for the gluten challenge leading up to the serum antibody test is to consume an amount of gluten equivalent to 2 slices of wheat bread daily for 6-8 weeks.
  6. trents
    Out the outset of the gluten free journey it feels indeed overwhelming. It will get easier with time and you will develop a sixth sense as to what to watch out for. But even then, there are still complexities and food questions that have no clear answer. Sometimes the only answer is "maybe" or "could be" or "it depends." All this is compounded by the fact...
  7. trents
    This, Under the Food Labeling and Consumer Protection Act (FALCPA), if an FDA-regulated food product contains maltodextrin and the maltodextrin contains protein derived from wheat, the word “wheat” must be included on the food label (e.g., maltodextrin (wheat)). If you don’t see the word wheat on an FDA-regulated product containing maltodextrin, the ...
  8. trents
    Keep us posted.
  9. trents
    This makes sense to me. I wish you well and much success and fulfillment.
  10. trents
    There is also the option of ordering a home celiac disease test kit from Imaware for about $100 USD. Bujt you would still need to go back on gluten for a couple of months before doing the test.
  11. trents
    Please be aware that most family physicians are woefully ignorant about celiac disease and many or most will just blow you off. This has been the an oft repeated testimony by many who participate in this form. Because of that it has taken many of us ten years or more to get the proper testing done to finally arrive at a diagnosis. You are more likely to get...
  12. trents
    Be aware that greens are also high in oxalates which can cause problems for some people. Green leafy vegetables are among the best plant sources of iron but no plant sources of iron are as effective as red meat. The iron found in red meat, or "heme" iron is much more assimiable than plant source iron.
  13. trents
    I wasn't aware that lactose sensitivity can cause delayed growth. Many celiacs can't handle dairy. After going gluten free and healing of the villi is complete, which often takes about two years for adults, some of them find they can add dairy back in without any issues. But sometimes the mistake is made of assuming that the issue with dairy is lactose intolerance...
  14. trents
    glf01, lack of symptoms from minor amounts of gluten from cross contamination does not guarantee that no inflammation is occurring. That can be the danger of being a relatively unsensitive celiac.
  15. trents
    Has anyone in this thread said or implied that the OP would be "sitting around eating baked goods all day"? And I don't see that anyone has "dissed her dream." People are just trying to offer helpful advice and alternatives, though some may have expressed themselves a little dogmatically.
  16. trents
    6-8 weeks is what the Mayo Clinic recommends for the pretest gluten challenge. If you were to jump right to the endoscopy/biopsy it would only be 2 weeks.
  17. trents
    Any testing, whether it be the serum antibody test or the endoscopy with biopsy will be invalidated if you have already begun eating gluten free. You would need to go back to eating an amount of gluten equivalent to two slices of wheat bread daily for two weeks before the endoscopy/biopsy for it to be a valid test. Both kinds of tests look for the inflammation...
  18. trents
    The most current estimates are that about 1% of the population has celiac disease but 10-12% of the population have some degree of gluten sensitivity. Also, a recent study done by the Mayo Clinic with about 300 people related to each other showed that 44% of those who are first degree relatives of those who had been diagnosed with celiac disease also had...
  19. trents
    Only by first ruling out celiac disease. Many of the symptoms are the same but NCGS doesn't cause damage to the small bowel villi so it won't throw antibodies and a biopsy will be negative.
  20. trents
    Have you been checked for colitis? Have you had upper and lower GI scoping done yet? This jelly is not normal and I wonder if it mucous.
  21. trents
    Keep in mind that the genetic testing only establishes the potential for developing celiac disease. Currently, there are two genes that have been identified with celiac disease risk: DQ2 and DQ8. I recently read about a potential third one. Having one or both of the genes does not guarantee that a person will develop celiac disease. For the potential to be...
  22. trents
    Yes, NCGS (Non Celiac Gluten Sensitivity) could be the culprit. The son who had the antibody test, do you know what his total IGA score was? Low total IGA can put a downward skew on the tTG-IGA score. Children can be more difficult to assess for celiac disease. Their immune systems are immature and may not respond to gluten like that of adults. And, there...
  23. trents
    There is a short time limit on editing an existing post. I think maybe 15 minutes. My advice would be to create a new post and then click on three dots in the upper right corner to get a menu. Choose "Edit" from the menu and you should now see the paperclip icon at the bottom of the post window for attaching.
  24. trents
    I would hesitate to water fast at any time as I think there are other health risks and downsides involved with that which would offset any benefit connected with recovering from a glutening episode. Remaining properly hydrated is important to good health in many ways. This may not be your problem but when I get a significant gluten exposure I get intractable...
  25. trents
    Depends on how you look at it. I see it as an honest disclosure. Products like that may pose no problem for celiacs except the most sensitive. It may be misleading to new celiacs, however, who have not learned the ropes with regard to food industry terminology.
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