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trents

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Everything posted by trents

  1. trents
    Get back to us when you have test results. It is disgusting how we get blown off by so many in the medical community. I know they are under pressure from the insurance companies and government to minimize healthcare costs and increase patient volumes in a way that the previous generation of physicians did not have to cope with but still . . .
  2. trents
    Under the circumstances, I agree with your decision. The proof is in the pudding anyway. If eliminating gluten from your diet causes significant improvement in your symptoms you have all the answers you need. I just want to forewarn you that truly eating gluten free is much more of a challenge than most people realize as how gluten shows up in the food supply...
  3. trents
    Scott, I think you have a typo here and meant to say "one you go gluten-free you cannot be tested for celiac disease."
  4. trents
    Mazzing, welcome to the forum! There are specific tests designed to detect celiac disease. The first stage of testing involves a blood draw and laboratory analysis to look for the antibodies produced by celiac disease: https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/ . Since many of your symptoms are common to those with...
  5. trents
    Yes, Maria. That is what I wanted to know. Although, if you are taking folate supplements it will mask a B12 deficiency.
  6. trents
    I asked if you had been checked for pernicious anemia. Perhaps you are not familiar with that condition. It's caused by a lack of something called "intrinsic factor." and enzyme produced by the parietal cells in your stomach. Intrinsic factor is necessary for the assimilation of B12 and B12, in turn is necessary for the assimilation of iron. The importance...
  7. trents
    Think about it. The purpose of the endoscopy/biopsy is to look for damage to the villi that line the small bowel. If you cut back on gluten consumption and allow healing to take place you may compromise the test results.
  8. trents
    Including the destruction of tooth enamel. But, if you only get glutened occasionally it's probably not an issue. Just don't aspirate the vomit.
  9. trents
    The Mayo Clinic recommendation for the endoscopy pretest gluten challenge is daily consumption of an amount of gluten equivalent to two slices of wheat bread for at least two weeks. You might want to increase your consumption amount. When is your endoscopy?
  10. trents
    glutengek, how long is it between the time you eat something with hidden gluten and when the symptoms start?
  11. trents
    Psyllium is "naturally gluten free" but with so many other naturally gluten free foods the problem can be cross contamination with gluten containing grains during growing, harvesting, transport, storage and processing. I use Kirkland brand (the Costco store brand) psyllium fiber as it states on the container that it is gluten free.
  12. trents
    Did your physician give any justification for not being able to order an endoscopy/biopsy?
  13. trents
    Laruen, see my bold. What you typed doesn't make sense. The DQ2, DQ8 are genes that have been identified with celiac so far and do not establish that you have celiac disease but only that you have the potential for it. For the genes to be expressed in actual celiac disease there has to be a triggering stress factor such as a viral infection. Otherwise...
  14. trents
    May we ask if you are male or female and your relative age? Not all hair loss is due to nutrient deficiencies. Gender, age and hereditary factors are all important players. Have you been diligent in your efforts to eliminate gluten from your diet? Besides biotin, what vitamin and mineral supplements have you been using? Have you had your B12 levels...
  15. trents
    Wheat starch can also be used as a filler in pills. Gluten shows up in the darndest places. Places you would never expect like soy sauce, canned soups, spices and even some chocolate syrup products. Eating gluten free has a real educational curve to it. Wheat flour is a cheap filler, thickener and texturing agent.
  16. trents
    Some Snickers candy bar products are gluten-free and others are not. They don't necessarily use the same formulation to make what seems to be the same product but in a different size or special occasion wrapper (say, for Halloween or the Holidays). Formulation may also vary from one country to the other. I believe there is an article or threads on this forum...
  17. trents
    If you are taking vitamins and supplements, make sure they are gluten free as well. Costco is a great resource for getting quality, gluten-free vitamin and mineral supplements in general. Much of what they sell is gluten free.
  18. trents
    Well, I only mention the amount I use because it would probably be much less than you would use as I'm aiming for 100 g of total protein per day. For celiacs/NCGS folks the total amount of gluten ingested per day is what really counts. The 20ppm "gluten free" standard was established by the FDA to ensure that over the course of a day celiacs and NCGS folks...
  19. trents
    Thanks for the explanations. Originally, I took it to refer to systemic neurological problems some celiacs experience from gluten ingestion/exposure.
  20. trents
    I use Optimum Nutrition Gold Standard Whey protein sold by Costco without any issues. But I only use about 1 scoop per day. On the package it states gluten free in larger letters.
  21. trents
    Good information that may prove to be helpful to others who still have gluten type reactions but are stumped as to where the sources might be since they are otherwise diligent. "Neurotypical adults"?
  22. trents
    Yes, RMJ is spot on. People adjust to a new reality over time and it becomes the norm. Your future in-laws seem to be sensitive, quality people. But be prepared for the fact that not everyone in your social circle will react so graciously. So, it's a good idea to think ahead of some scenarios that might develop and to be prepared with a gracious response...
  23. trents
    The tTG-IGA is the most important test, combining good sensitivity with good specificity for celiac disease. It is considered to be the centerpiece test of the celiac antibody panel. The number aren't dramatically high but any positive in that test points to celiac disease.
  24. trents
    Yes, as Scott said, hosting your fiance's family would be a goodwill gesture and would eliminate the hassle for them. You might even consider cooking some non-gluten dishes just for them if you can do so safely.
  25. trents
    I think you mistyped. It’s Franz, not Fratz. It’s my favorite. Canyon House is good too but their loaf bread slices are diminuitive.
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