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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Not sure what the latest figures are but I've read that about 10% of Celiacs react to oat gluten like they do wheat/barely/rye gluten.
  2. trents
    I have no bright ideas about this one. That has got to be tough to live with! At least you can eat eggs and they are the single most nutritious food on the planet. But seriously, I would keep looking for a medical professional who will take you seriously. This might help get you started: http://toyourhealthllc.com/2018/12/23/the-mystery-of-mast-cell...
  3. trents
    These are absolutely delicious! Soft and kind of chewy. Green! https://www.missionfoods.com/products/gluten-free-spinach-herb-tortilla-wraps/ 6 gm. fiber 130 calories per tortilla 3 gm. of protein Contains soy.
  4. trents
    Infections and other bodily stress events have long been thought to trigger the onset of Celiac disease. So have frequent administrations of antibiotics because, or so it is presumed, they change the micro organic environment of the gut.
  5. trents
    knitt kitty, that was quite the tome! But I agree. The traditional food pyramid we all grew up on has done our society and immense amount of medical harm and is largely responsible for the spiraling numbers of obesity (with all it's attendant vascular problems) and diabetes, just to name a few. We have shot ourselves in the foot with the emphasis on...
  6. trents
    Energy for brain activity or any other of the body's fuel needs can also be derived from proteins and fats, just not as readily. That's why the keto diet works so well. It trains the body to more efficiently use non carb sources (particularly fats) for it's energy needs.
  7. trents
    Sounds to me like you might be on the right track.You might test your theory by trying the keto diet. It's an effective way to lose weight and manage it long term as well if that is needed.
  8. trents
    No, I wasn't counting the very first endoscopy that was part of the diagnosis. So counting that one, there have been four I think. It is not uncommon to take years to heal the villi, especially when you're getting inadvertently glutened on a semi-regular basis. In my working years I did my best to avoid gluten when eating in the company cafeteria, meetings...
  9. trents
    Thanks for the clarification. But you did not answer the main issue. What were the results of the endoscopy? Did it show healing of the villi? I have had three endoscopies since my celiac disease diagnosis about 18 years ago. The first one was done maybe after one year, the second one done at about year three I think and the last one about two...
  10. trents
    Wait. You mention a polyp was removed from your colon. That would be found in a colonoscopy, not an endoscopy.
  11. trents
    What is your gender? Though you state you no longer ate out after being diagnosed with celiac disease, it is still very possible to get gluten exposure from grocery store purchased items that, though they don't contain gluten as an intentional ingredient, have experienced cross contamination during harvesting and processing. And other covert sources...
  12. trents
    I think this forum has a time limit on the edit function. I have run into that problem of not being able to go back and edit a post as well but it only happens after it's been up for awhile.
  13. trents
    Are you taking the need to eat gluten free seriously? How are you doing with that?
  14. trents
    IMO, and many physicians would concur, allergy testing is too often not very helpful. I have had them done, both epidermal and serum testing, and they don't agree well with one another and they don't agree well with what I experience in real life. You can have the same serum samples sent to different testing labs and you will get significantly different results...
  15. trents
    Are you certain your skin breakout is DH? Could it be an allergic reaction caused by some other ingredient besides gluten?
  16. trents
    How much was in each bag? Were these snack size bags or like, family size?
  17. trents
    Amen! Your mom refused to play the victim card.
  18. trents
    This article focuses on this phenomenon in children but mentions previous studies have pointed to a similar phenomenon in adults. According to this Turkish study, children with frequent canker sores are six times more likely than those in the general population to test positive for Celiac disasease. https://www.beyondceliac.org/research-news/kids-canker...
  19. trents
    There is hardly a medication that does not have potential risks. I think we need to see this as trying to correct what we know to be a problem with a remedy that we know works but we also know has the statistical potential to cause other problems and then weigh the benefit/risk ratio. I speak in general terms here, not specifically of PPIs. And each...
  20. trents
    Wow! I can feel your anger as I read your words. I don't know the exact time in life of the onset of my celiac disease. I can trace it as far back as 37 years of age when I when I went to donate blood at the Red Cross and they turned me down because of elevated liver enzymes. I wasn't a drinker and had not practiced risky living so, feeling to be in...
  21. trents
    I seldom get sinus infections anymore or even common colds. Of course, a big part of that may be that I'm retired and don't get the exposure to viruses like I used to in my working years. As I indicated earlier in this thread, I'm in the process of weaning myself off of my PPI or at least moving to a lower dosage. Found this: https://www.ncbi.nlm...
  22. trents
    Good stuff, Kate333. Thannks! I can understand your frustration and pain. There is so much being learned about Celiac Disease these days. We know so much more that we did 15-20 years ago when I was first diagnosed. Slowly, doctors are catching up to the research but that seems to be the way it is with most every disease. Personally, I developed celiac...
  23. trents
    My apologies if I misrepresented what you said but the remark about Big Pharma seemed to qualify your previous remark and imply (to me at least) that Big Pharma studies did show a link. Granted, I have not researched this. But what I can tell you from my own personal experience is that PPIs did give me release from extreme discomfort (heart burn) and...
  24. trents
    Some studies may never happen if not for "big pharma". Just because studies are done by big pharma doesn't automatically disqualify them as being legitimate. For all their evils, it may also be true that we owe a lot to the big pharmaceutical companies. And whereas you might find doctors who claim BE and EC are not linked to long term acid reflux, I don't...
  25. trents
    I wouldn't know about that. But I think 20mg of Omeprazole is the most commonly prescribed dosage for that med. I believe it would be considered the "standard" dosage. But traditional antacids such as Tums and Gaviscon can be helpful in bridging when you are trying to get off a PPI and they should be well-tolerated. Ultimately, the way any of those things...
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