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trents

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Everything posted by trents

  1. trents
    I have this problem as well, only I'm a middle-aged male. The doctors were just sure it was due to enlarged prostate but I knew, like you, it wasn't the "dribble" effect. I was voiding large volumes during the night. A urologist had me catch my urine and measure it for 2 or 3 nights and there was the proof. He put me on a medication called desmopressin which...
  2. trents
    Are you hoping for discussion on the biogenetic engeneering aspect of this undertaking in general or on the fact that specifically, they used wheat DNA in the process? Sorry for the double post. I don't know how it happened. Is there a way for a user to delete a post when this happens? Couldn't find an edit choice for that.
  3. trents
    Hi, Amber! It certainly is possible you have other food intolerances. Many Celiacs also have dairy and soy allergies/intolerances. Have you had any food allergy testing done? The ELISA test is commonly used for this but make sure you have it done at a place where they use a reputable laboratory for the analysis part. Not to scare you but there is also...
  4. trents
    Cristy, Have you actually been tested for Celiac Disease though eithther a blood antibody test or a small intestine biopsy? The DNA testing at this point is a fairly crude tool and not a prarticularly reliable indicator of the presence of specific diseases.
  5. trents
    One other thing. Does your son take a folic acid supplement, say in a multiple? The reason I'm asking is that folic acid supplementation masks B12 deficiency so that his testing may not be accurate.
  6. trents
    Actually, 12 is the low end of normal for ferritin, I believe but 2 is definitely out of range. Ferritin is a storage protein for iron so it could be that your son's body is just now beginning to deplete the iron stores and that to this point the H&H have been maintained. How are you giving the supplements? Oral Fe is best abosorbed in an acidic environment...
  7. trents
    Have you had him evaluated for pernicious anemia (inability to absorb B12, which is necessary for iron assimilation)?
  8. trents
    I was one of those whose liver enzymes were mildly elevated for years before discovering I had celiac disease. The enzymes normalized within 3 or 4 months after going gluten free however. One expert estimates that the incidence of elevated liver enzymes among Celiacs is 18-40%. You may need more time for your liver to heal. If your enzymes continue to be...
  9. trents
    Yep, that certainly is true.
  10. trents
    How old are you? Have you actually had your testosterone level checked? There are many factors that can contribute to loss of libido that have nothing to do with Celiac disease. Some of them are not even physiological, such as depression. After having been gluten free for some months in the first year after my celiac disease diagnosis I had my testosterone...
  11. trents
    If indeed you do have pernicious anemia the oral dosing of B12 you are taking is not high enough to be effective. Studies have shown that shots are not the only way to address perniciou anemia for some people. Apparently there is a passive mechanism of absorbtion that with high enough oral dosing does not require the normal intrinsic factor for assimilating...
  12. trents
    "Some groups aren't waiting. The American Academy of Pediatrics says breast-fed infants should get 400 IUs of supplemental D daily. The National Osteoporosis Foundation urges adults over age 50 to get at least 800 to 1,000 IUs to prevent fractures. Look for D3, which is more potent than D2." And since most with celiac disease are not absorbing vitamins...
  13. trents
    Very interesting! I've not heard that before - that lots of computing time is a major cause of kyphosis. I sat up straighter at the keyboard as soon as I read that! Actually, when I look at pictures of myself in Jr. High I can see the beginnings of kyphosis. It runs in my mother's side of the family big time. I wonder if my osteopenia from celiac disease...
  14. trents
    Concerning bad posture causing scoliosis or kyphosis, I wonder if its more often the other way around. One thing I have seen that might cause spinal misalignment is weight traiing done in such a way as to strengthen the chest muscles without doing anything to strengthen the upper back muscles. The higher muscle tone in the front then pulls the shoulders and...
  15. trents
    I have mild scoliosis and pronounced kyphosis as well. I think I have read somwhere on the net there is a connection. I assume it has to do with bone density loss in the vertebrae from calcium and mineral malabsorbtion.
  16. trents
    Give it time, Child of the 80's. I'm a child of the 50's and 60's.
  17. trents
    Is the issue really a high forehead or is it a short rest of the face that makes the forehead look long proportionally? Or, maybe its a high hairline that's to blame. My hair line keeps moving closer to the back of my head as I age. I've decided it's not really hair loss but hair shift. What use to be on my head has now gravitated down to my ears, nose, and...
  18. trents

    ARCHIVED Anemia

    trents replied to Wolicki's topic in Related Issues & Disorders

    I don't think intrinsic factor will be on your usual, run of the mill CBC or CMP lab work sheet. It requires special testing and I don't think they can measure for it directly. I'm sure someone else on the forum has had it done and can explain the testing process. Do you take a folic acid supplement? If so, discontinue it some time before you get pernicious...
  19. trents

    ARCHIVED Anemia

    trents replied to Wolicki's topic in Related Issues & Disorders

    Wolicki, Have you been tested for pernicious anemia, i.e. lacking the "intrinsic factor" necessary to absorb B12, a necessary biochemical compound for the assimilating of iron frome the gut?
  20. trents
    Barbara, Why do you say you do not have Celiac disease? Have you had the edoscopy/biopsy done to verify that assertion? You say you get sick to your stomach when you ingest "major gluten". That certainly is a classic symptom of celiac disease.
  21. trents
    Funny, my serum protein levels are chronically a little low. I've been trying to figure that one out. I had prealbumin checked once a couple of years ago and it was perfectly normal so that says my dient is not deficient in protein and I would think, at least, that I am absorbing enough.
  22. trents
    Wendy, Thanks for your hard work with regard to this book. I am a 58-year-old male celiac but I do not suffer from prostititis that I know of. I notice there are no other replys to your post. I think the overwhelming majority of participants on this forum are female and this could be the reason.
  23. trents
    TEaglefeather, Most of us who have had celiac disease for a while realize how expensive the "gluten free" foods can be, even when you live somewhere they are available and we probably don't rely on them much. However, you really can eat gluten free off mainstream grocery store stock if you become savvy about how gluten is disguised in food label terminology...
  24. trents
    Jillian is correct, it does have to do with the stomach muscles not the intestines. Sorry, my bad. I made an assumption and should have looked it up instead. Here is a Wikipedia link that puts it in layman's terms: Open Original Shared Link. TEaglefeather, did your hubby's doc use the term gastro paresis to describe your husband's problem? Loss of intestinal...
  25. trents
    Where do you live? I hope somewhere not served by a socialized health care system (I guess I tipped my political hat on that one!) so that if your hubby needs to see a specialist it can be arranged relatively soon. If you are not satisfied that your GP is taking this seriously please ask for a referral to a gastroenterologist.
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