Fiddle-Faddle
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Latest Celiac Disease News & Research:
Everything posted by Fiddle-Faddle
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ARCHIVED Extreme Pain And Bizzare Symptoms!
Fiddle-Faddle replied to num1habsfan's topic in Coping with Celiac Disease
Luck, good vibes, and prayers sent your way!!!!!! -
ARCHIVED Extreme Pain And Bizzare Symptoms!
Fiddle-Faddle replied to num1habsfan's topic in Coping with Celiac Disease
I'm assuming you mean gluten-free breads and pastas?? That would give ME terrible tummy pains! Now that my intestines have healed, I can eat occasional gluten-free bread and pasta, but not a lot, or else it feels like I've swallowed a brick, which then seems to turn into glue inside me. Is it possible that, in addition to likely gall bladder problems... -
ARCHIVED Extreme Pain And Bizzare Symptoms!
Fiddle-Faddle replied to num1habsfan's topic in Coping with Celiac Disease
Lisa, is there any way you can all your home doctor on the phone, and have him (or her) talk to the clinic doc where you will be going tomorrow? As far as pregnancy is concerned, IF you are sexually active, a tubal pregnancy would have to be ruled out--that might be causing the pain on one side. But the white poop is something else, and does need... -
ARCHIVED Ceoliacs And Hashimotos
Fiddle-Faddle replied to chenal52000's topic in Related Issues & Disorders
I would guess that it is much, much higher than that. University of Chicago's 2006 study, indicating a confirmed diagnosis of celiac in 1/133 people (with an average of ELEVEN YEARS before being diagnosed) strongly suggests that far more people actually have celiac than the "experts" know. My endocrinologist is now screening all thyroid patients and all... -
ARCHIVED Gingerbread Cookies?
Fiddle-Faddle replied to jkmunchkin's topic in Gluten-Free Recipes & Cooking Tips
Annalise Roberts has a fantastic gingerbready-tasting molasses cookie recipe. Or maybe she even calls it gingerbread cookies? It's in her cookbook--do you have it? -
Yikes--I empty my box of potato flakes into a plastic bin, so I don't have ingredients to check out. But I'm guessing that I don't have anything special because I bought them either at the grocery store or at Costco, so I guess that means mine are full of chemicals, too. Probably sulfites, anyway. Wonder if Whole Foods has any? I suppose you could...
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ARCHIVED Holding The Fda Responsible
Fiddle-Faddle replied to JodiC's topic in Publications & Publicity
Woo-HOO!!! You are WONDERFUL!!!! Can we clone you 49 times for all the other states?????? -
ARCHIVED Cfs Sufferer
Fiddle-Faddle replied to SickPuppy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome, sick puppy! I hope to see you change your name to "well puppy" soon! Yes, one ingredient can totally mess everything up. SOunds like you have an amazing doctor! Perhaps you need help with figuring out menus? Many of us found that when we cut out gluten, our poor unhealed intestines could not at first tolerate the gluten-free... -
ARCHIVED Ceoliacs And Hashimotos
Fiddle-Faddle replied to chenal52000's topic in Related Issues & Disorders
There have been many, many reports on this board of various autoimmune disorders (including Hashimoto's, diabetes, and rheumatoid arthritis) greatly improving or even completely disappearing upon going strictly gluten-free. This would suggest that it is more than a concurrence or cluster of related disorders, and that celiac might trigger the others. ... -
ARCHIVED Holding The Fda Responsible
Fiddle-Faddle replied to JodiC's topic in Publications & Publicity
I think you are right, but it goes much further than gluten-free meds. Yes, dluten-free meds should be available--but how many meds are really necessary? (Deb, I don't mean to imply that anything you are taking is unnecessary!) Our whole culture revolves around the drug industry. The whole country thinks that cold medicine is a good thing for colds;... -
ARCHIVED Missing Couscous
Fiddle-Faddle replied to ~alex~'s topic in Gluten-Free Recipes & Cooking Tips
I use brown Minute rice in couscous recipes. I have also seen a recipe for "Rizcous," using brown rice that is whizzed for a few seconds in a food processor--the recipe is by Lisa Lewis, in Special Diets for Special Kids. -
ARCHIVED Blood Test And Endoscopy
Fiddle-Faddle replied to Runner1978's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you have been gluten-free for 2 months, you will need to eat a LOT of gluten for 3 months in order to damage your villi (which healed in those 2 gluten-free months) enough to have a positive biopsy result. There has been a lot of talk lately about the problems with biopsy--I hope you can find all the discussion on some of the other recent threads on... -
ARCHIVED Which Tests Can Distinguish Gluten Intolerance From Celiac Disease?
Fiddle-Faddle replied to Joyous's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you really need substantiation, see the first post on this thread:Open Original Shared Link . -
ARCHIVED Which Tests Can Distinguish Gluten Intolerance From Celiac Disease?
Fiddle-Faddle replied to Joyous's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry, MommaG, I haven't spent any time on cancer boards(at least, not yet), so I have no idea why you brought up cancer! But surely you have seen, here, MANY times, posts that tell others that they"only" have gluten intolerance because they have not had a positive biopsyand therefore do not (supposedly) have celiac. There are far too many people... -
ARCHIVED Is All This Really Worth It?
Fiddle-Faddle replied to 1965kid's topic in Coping with Celiac Disease
Don't forget that the soy sauce at Chinese restaurants has wheat in it!!!!!!! But you can certainly bring your own soy sauce--there's a brand, Panda, I think? that makes gluten-free little plastic single-serve packets. -
ARCHIVED Is All This Really Worth It?
Fiddle-Faddle replied to 1965kid's topic in Coping with Celiac Disease
YES!!! It is most definitely worth it! Especially if you have a child--you do want to be around to see her grow up, don't you? I don't mean to be insensitive--I recently lost a friend and colleague to non-Hodgkin's lymphoma--and he most likely had undiagnosed celiac. Hey, you can eat out with ANY of us!!!! It is overwhelming at first, but... -
ARCHIVED Scared Of Eating Gluten For celiac disease Test! Not Sure What To Do.
Fiddle-Faddle replied to Thi8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with everyone, and I want to add that the gluten-free diet is NOT insanely expensive!! Only the gluten-free convenience foods that substitute for the (already) unhealthy gluteny convenience foods are insanely expensive. Fresh fruit, fresh vegetables, frozen vegetables,canned vegetables, fish, chicken, beef, rice, potatoes--NONE of these are insanely... -
ARCHIVED Which Tests Can Distinguish Gluten Intolerance From Celiac Disease?
Fiddle-Faddle replied to Joyous's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There isn't yet enough known about the grey area betwen gluten intolerance and celiac, and there may be more than one cause for each. If celiac is only defined as villi damage,t hen presumably one would be considered "only"gluten intolerant if one had all the symptoms of celiac but was biopsied BEFORE villi damage occurred. Another wrinkle is that... -
Yup! They also make awesome "breading" for chicken fingers and fish sticks. For some reason, Potato Buds brand seems to work best for the breading, but El Cheapo potato flakes work great for matzo balls!
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ARCHIVED Home From The Peds
Fiddle-Faddle replied to Worriedtodeath's topic in Parents, Friends and Loved Ones of Celiacs
Would you still wish you had done the biopsy if #1) It didn't tell you anything you don't already know and #2) Your daughter had a bad reaction to the anesthesia? You have spared your daughter any harm from #2 by not having the biopsy done. And since there are apparently no other issues besides for gluten (you said the diet made all the difference... -
ARCHIVED Doctor Appointment Shocker
Fiddle-Faddle replied to Ridgewalker's topic in Parents, Friends and Loved Ones of Celiacs
Sarah, I can't remember if I mentioned it in a previous post, but I was able to reduce my own Nexium (like Zantac but more $$ ) by 50% after going off gluten. Also, if an ulcer is a possibility, they should check for a helicobacter pylori infection....apparently, that bacteria causes 80+% of ulcers..... -
ARCHIVED Home From The Peds
Fiddle-Faddle replied to Worriedtodeath's topic in Parents, Friends and Loved Ones of Celiacs
I'm sorry, I must disagree--this is simply not true. The biopsy has been considered the "gold standard" of diagnosis for decades--but that is only because of lack of knowledge. The biopsy is not particularly accurate unless your villi are completely and uniformly damaged. You have something like 22 feet of intestine, and the biopsy consists of... -
ARCHIVED Help Before The Endoscopy
Fiddle-Faddle replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Fresh lettuce provides lots of "roughage" and fiber, as do pretty much any raw vegetable. Celery is especially good. The fruits that help most on that score or "stone fruits" (peaches, plums, apricots, mangoes, and pears--the ones that have stone pits rather than multiple tiny seeds). We also had good luck with strawberries and cherries. Bananas are binding... -
ARCHIVED Help Before The Endoscopy
Fiddle-Faddle replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It sounds like gluten may well have caused every problem you have mentioned with the exception of only pooping once a week. Everything else resolved after gong gluten-free except for that, right? Before going through with an endoscopy--which as others have said, is something that would help diagnose other issues--I would want to know if your diet is... -
ARCHIVED Help Before The Endoscopy
Fiddle-Faddle replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't believe an endoscopy SHOULD be considered the diagnostic gold standard. It's simply not as accurate as bloodwork and dietary response.