Jump to content

Fiddle-Faddle

Advanced Members
 View Profile  See their activity

  • Posts

    3,968

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Fiddle-Faddle

  1. Fiddle-Faddle
    Celiac doesn't mean that you have an allergy. It's an autoimmune disfunction. Did your bloodwork say that you are allergic to wheat, or did you test positive specifically for celiac? Either way, I'm not entirely sure that an endoscopy is necessary. Bloodwork + dietary response is a pretty firm diagnosis. An endoscopy might be worthwhile if the diet...
  2. Fiddle-Faddle
    THyroid being off can have similar effects to what you describe, too. Low thyroid can make you awfully depressed and teary; high thyroid can make you sweaty and shaky. It is possible for your thyroid to have wild swings back and forth, too (which is definitely not healthy!!!). Celiac definitely affects thyroid, and there are also several studies indicating...
  3. Fiddle-Faddle
    Hee hee--when I was little, my mom REFUSED to buy anything but pure maple. Back then, we didn't know anything about HFCS, but she took one look at the list of chemicals on the labels and saw "cancer." in her mind's eye. I thought she was a bit wacko, but, hey, she turned out to be right all along! Imagine that... She also made us eat stone-ground whole...
  4. Fiddle-Faddle
    Am I crazy? I have never before been tempted either to lie or to tell someone to lie, but-- If the only thing holding a family member back from even considering that they might have celiac is the lack of an "official" diagnosis, then why not say that you do have an "official" diagnosis???? If you have a positive dietary response, then that is truthfully...
  5. Fiddle-Faddle
    I know. That the woman("Andrea") who complained, whose child needs to be on a high-fat, high-calorie diet--what do you want to bet that her child can't gain weight because of undiagnosed celiac????!!!!
  6. Fiddle-Faddle
    A celiac 11-year-old I know is now being home-schooled because he was begging other kids for tastes of their cookies, sandwiches, etc., and was actually caught stealing their food. I think the gluten for him caused a kind of druggie addictive reaction, and it was like a heroin addict being in a school full of users using heroin in front of him.
  7. Fiddle-Faddle
    I don't know, but AHG DOES have a celiac clinic on-site. I don't know their telephone number, but they shouldn't be too hard to find. I would suggest calling the celiac clinic and asking what they suggest. Best of luck!
  8. Fiddle-Faddle
    Hi, Ruth, I make gluten-free matzo balls all the time--they REALLy taste exactly like regular matzo balls! And I've always made them in a separate pot, anyway, not in the soup, but that's just because that's how my grandma always made them! I think the chicken fat is the key--again, that's how my grandma made them! gluten-free--Matzo balls ...
  9. Fiddle-Faddle
    I was going to suggest this, too! You could even add a bit of the pure maple to it before it's all the way empty (it is a little different-tasting from high-fructose corn syrup). Think about it--it tastes good because of the artificial maple flavor, which is a fairly close approximation of real maple flavor, close enough to be recognizable, anyway....
  10. Fiddle-Faddle
    Well, at least they were honest, accurate, and even knew to point you to a celiac website... I know a lot of people love Aunt Jemima syrup, but it's so full of disgusting chemicals anyway, not to mention high fructose corn syrup. Real maple syrup is SO much better for you (and I think it tastes better, too). Costco sells it very inexpensively.
  11. Fiddle-Faddle
    Gluten can certainly cause low iron and all your other symptoms as well. If you are gluten intolerant or have celiac disease (many of us believe that gluten intolerance is simply early-stage celiac), that usually damages the villi that line your small intestine. The villi are what absorb nutrients, so then you would not be absorbing iron. Calcium is another...
  12. Fiddle-Faddle
    Sounds wonderful! Can we make other impossible Bisquick pies this way??
  13. Fiddle-Faddle
    I just use the corn tortillas, but you have to heat them to make them pliable. Spritzing them with water and/or Pam seems to help, too. There are also rice wrappers sold in Asian stores--bit tricky to work with, but if you line them with a big lettuce leaf, they work really real.
  14. Fiddle-Faddle
    AFH, I agree with everyone else--I don't think celiac has been ruled out at all. I think the biopsy either missed damage that was there or else gluten is causing your immune system to attack other things besides for the lining of the intestine. Whether you want to call it gluten intolerance or pre-celiac, or celiac-that-hasn't-advanced-enough-to-damage...
  15. Fiddle-Faddle

    ARCHIVED Diagnosis

    Fiddle-Faddle replied to JoyfulM's topic in Doctors

    But if you already have a diagnosis of DH, you don't NEED any more testing!!!! DH is a definitive diagnosis of celiac.
  16. Fiddle-Faddle
    I agree about the above bread recipe--it really is the best. But a very close second (and a WAY faster and easier recipe!!!) is this (and start to finish, it is really 30 minutes or less!!!!!): gluten-free--Flaxmeal Skillet Bread This is adapted from The Wheat-Free Cook - Gluten-Free Recipes for Everyone
  17. Fiddle-Faddle
    Possibly--this HAS happened to people diagnosed with celiac. They were turned down by both helath and life insurance, and celiac was used as the excuse by the insurance companies. The insurance companies apparently couldn't care less. They are in the business of making money, not protecting your health. As far as I can tell, they are also strongly...
  18. Fiddle-Faddle
    Sorry things are so frustrating, Ursa. I don't suppose it would help if Susie were to smile and pretend to agree with your husband and the vice principal? Just until February? Sort of as a survival thing... Anyway, prayers sent!
  19. Fiddle-Faddle
    Hi, Meredith, I'm so glad you eventually did get concrete evidence! And shame on your idiot doctor for not giving you the info in the first place! 3 things keep me from wondering, cheating, even thinking about gluten (and my DH was never officially diagnosed!) 1) The rash I had was so unbearable, I would do almost anything to keep it from coming...
  20. Fiddle-Faddle
    So here is my first "in need" post on this thread: My son's friend Noah, age 8 1/2, is STILL in terrible trouble. He has been in a medically induced coma since Labor Day because of encephalitis-caused seizures. The latest cat scans show extensive brain damage. They are still unable to bring him out of the coma without further seizures. I am not...
  21. Fiddle-Faddle
    Thank you, Andrea!!
  22. Fiddle-Faddle
    Thanks, Peter, for putting into better words. I repeat--mtndg's idea of a "members in need" section is the best--that doesn't limit it to prayers, or even anything religious, but people who seriously need support of any kind--prayers, positive energy, cyber-hugs, research for serious health issues (like when mamaw was in the hospital, if anybody remembers...
  23. Fiddle-Faddle
    I made this recipe today and IT WAS AWESOME!!! It was so good, my family gobbled it down and I have already made another loaf! I used Annalise Roberts' brown rice flour mix (well, my version of it: 3 cups brown rice flour, 3 cups white rice flour, 2 cups potato starch, 1 cup tapioca starch, all mixed up in and kept in an airtight bin) instead of the brown...
  24. Fiddle-Faddle
    I'm so sorry you are going through even more grief. {{{{HUGS}}}}
  25. Fiddle-Faddle
    Umm, Scott, I think you may have misunderstood my point. I am aware that we are free to start such threads. As I stated in my first post, confused DID start such a thread--but since I don't have time to constantly scan the Gab/Chat room, I didn't see her post until after her BIL passed away. It might have made a big difference to her emotionally if...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.