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About ch88

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  1. Another link:
  2. Thanks for posting. I know it is difficult to talk about these sorts of things even on a webforum. It is good thing for people to be aware though about celiac disease and that it can cause mental problems. Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts. My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away. It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety. I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten. Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful. I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor. I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot. This is also something that you should talk to a doctor about first.'s_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies. Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills) very well, and do better on an activated form of vitamin b. I take: 1 activated vitamin b12 daily 1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin 1 magnesium pill every day. St Johns Wort daily. 1 zinc vitamin daily I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. I think each of these helps lower my anxiety level. I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy. I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided. I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped. I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain. My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover. Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
  3. You might try going dairy free also...some people say it effects there sleep. I'd stick with the diet as it could take a long time.
  4. Celiac disease is an auto-immune disorder (where the body attacks itself) triggered but eating gluten. If you have any symptoms after eating gluten this could mean you have celiac disease. Many people with celiac disease cant digest milk. Oats and other processed foods are also problematic for a lot of people with celiac disease. I don't know if there are any risks associated with milk and pregnancy. It is a totally different mechanism though and I would be much much more concerned about wheat.
  5. - How do you get the carbs you need for energy now that most ways I had in the past I cannot do? I eat lots of brown rice. - How do you know if it's just the withdrawal symptoms from not eating gluten versus other sensitivities? I'd get tested for celiac disease (its a blood test.) and you have to get it before you go gluten free. - How do you guys deal with the constant issues and avoid anxiety? I exercise, avoid sugar and caffeine, drink chamomile tea (it has calming effects) and green tea. I also take extra vitamin b and vitamin b12. Lots of people with celiac disease are deficient in those vitamins. Also eat lots of fruits and veggies. Oats and processed foods are problematic for a lot of people with celiac disease. A lot of people reduced there carb intake on a gluten free diet which causes weight loss. I wouldn't worry about the weight changes. My weight varies a few pounds up or down and I don't think anything of it. - How long does it take being completely Gluten and Dairy free for the healing to begin? Most people see improvement right away but it varies.
  6. Gluten can cause anxiety and other types of mental problems. I don't know if the problem is the medication or gluten. If you decide to go gluten free it is a good idea read up about cross contamination. Oats and other processed foods often cause problems for some people with celiac disease. Lots of people with celiac disease have vitamin b deficiency. Eating lots of fruits and vegetables is important. I take a vitamin b multivitamin as well as a extra vitamin b12 which seemed to help me. It can take months or even years to fully recover on a gluten free diet. I haven't recovered all the way yet, but I feel much much better.
  7. I was explaining that some people have other trouble that is immune related and caused by eating gluten, but doesn't effect the gut in a noticeable way. According to the paper that I quoted there are some people which have different types of brain problems but don't have inflammation when tested by a biopsy. The author used the term "non-Celiac gluten sensitivity" to refer to anyone who has any brain trouble that can be traced to gluten but without obvious gut inflammation. There are a lot of different possible ways gluten can effect the brain some may not be related to the gut. It could still be an immune system problem. Normally "non-Celiac gluten sensitivity" refers to just a food intolerance. Withdrawal symptoms are not normal and could be indicative of an immune system response of some sort, but I don't know for sure.
  8. Celiac disease can present with other symptoms (such as brain damage, skin problems, anxiety etc) without causing any obvious digestive problems. I'm guessing this means that the biopsy would be negative also.
  9. Is gluten ataxia a form of gluten intolerance, but not of celiac disease? Can this web site be used for gluten ataxia, as well as celiac disease? Should I see the stupid doctors some more, or keep going off of gluten? (I've been gluten-free since Easter. I'm going through painful withdrawal at present.) Should I get a medical bracelet? Any other thoughts? 1. 'Celiac disease' I think of as being an intestinal thing. Gluten ataxia I think is caused by the immune system attacking cells in the brain cells that send signals from one part to another. It may have other causes I am not sure. There is such a thing as "non-celiac gluten sensitivity" and it can effect the brain. You should read this: 2. Yep. 3. If you are effected in any way at all by gluten do not eat any gluten. PERIOD. That means you likely have an immune response to gluten. A single exposure to gluten can damage your brain. Try googling the "gluten contamination elimination diet." You may still get a positive result on the blood test depending on how long ago you last ate gluten. 4. Sounds like a good idea as it might be handy in certain cases if you you had trouble moving for example. 5. Having ataxia alone would be enough for me to stay gluten free.
  10. The Newbie 101 thread has some very useful information. Some people have more severe symptoms than other people (including gluten ataxia or mental problems due to gluten), or may want to be more cautious about eating any gluten. The following information might be helpful if added to the thread, to help people who are newly diagnosed with Celiac disease and want to be especially careful. It is optional whether to add the "may contain traces of wheat" disclaimer after an ingredient list in the USA. If an ingredient wasn't intentionally added it doesn't have to go on the label. Some foods which are labeled gluten free have later been recalled do to contamination. *cough* Cheerios *cough* Some people are very sensitive to cross contamination while some people aren't as sensitive. Eating lots of different types of processed foods increases your chances of eating gluten by accident. Here is a link to labeling laws in the US. Here is an alternative cross contamination elimination diet that some people find effective. Also I think a similar sticky note on the top of other threads might be helpful.
  11. I am not sure if this will answer your question but... The antibodies to gluten can stay in the body for 4 months or longer. Also according to a paper I read some people have elevated anxiety right after going gluten free but that by one year the symptoms are reduced. I recommend googling the "Gluten contamination elimination diet." I had a sudden reduction in my anxiety when I first went gluten free, and a further gradual decrease which has taken a couple years. I still have some anxiety, particularly around people. Removing oats from my diet helped, as well as going on the contamination elimination diet. Make sure you eating lots of fruits and vegetables as vitamin b can play a role in anxiety. Gluten withdrawal is real, but I am not sure on the exact mechanism. Eating wheat can be very dangerous if you have Celiac disease. I agree with Beca... Chamomile tea and Green tea helped and I am skeptical of food that is labeled gluten free.
  12. The body can respond to gluten, without it effecting the gut in any way. A lot of people have for example skin conditions without any digestive problems. One person that I read on this forum, had symptoms of gluten ataxia which where only temporary and occurred immediately after eating something with gluten. I don't know if recovery is possible, but I would not discount it completely. I would start by making sure you are on a 100% gluten free diet. Also I would google the Gluten Contamination Elimination Diet.
  13. I would recommend both quitting all gluten and probably going to the ER, or talking to your doctor. Gluten is known to cause some very major brain disorders. I have heard that the cells that line the gut are similar to the cells that protect the brain. Celiac disease is an auto immune disorder where anti bodies are created in response to gluten. As long as someone continues to eat gluten the number of antibodies can remain relatively low. If somebody stops eating the body continues to produce antibodies that build up in the blood steam. Some people get anxiety whenever they eat gluten and I think other people can get anxiety (or physical pain) by stopping eating gluten. I would recommend getting tested for Celiac disease, that way you could get the support of your family members. Here is a link to a paper that connects gluten with about a dozen different mental health conditions: If you eat gluten and you have Celiac disease it can kill you. Make the right choice. You mentioned that you were taking anti-psychotic medications at one point. Celiac disease can cause schizophrenia and that are types of schizophrenia that are milder and don't involve hallucinations. Anxiety and physical pain are related. I would recommend going to an ER with the information in hand as I don't think most doctors are familiar with what Gluten can do to the brain. There are also cases which don't present in the typical way such as my own. The doctor can give you pain killers to manage the pain and you can request gluten free food.
  14. New planet taste really good. There are also a few other types of gluten free beers that I like. I never knew that Coors made a gluten free beer either. I'll have to ask around to see if I can find it here. I changed my mind about oats. I read that some oat brands were tested and had over 2000 ppm gluten due to contamination which is quite a bit. I might be getting a bit of a reaction from them I am not sure. I am going to avoid gluten removed beers for a while to make sure.
  15. Thanks. Yeah I noticed the original post was old but there are some new ones. I know with omission beer some people have a strong reaction. Other people seem to tolerate it without any noticeable problems. I react strongly to gluten but can drink gluten removed beer without any problems. It took me a while to get comfortable with the idea but I am fine with it now. I can see why some people would want to play it safe and not consume anything made from wheat or barley. The 'removal' process merely breaks the gluten proteins down in to smaller pieces. These smaller pieces are technically not gluten. Some other regular beers have a lower gluten content than gluten removed beer. I think it depends on the individuals choice and on what they react to. Certainly not all people with Celiac disease are the same.