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Does Anyone Else Have Other Auto Immune

ivegotitalso

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ivegotitalso Rookie
ivegotitalso
Posted

hi- i was wondering if anyone else had any other auto immune problems like i have sjorgrens pronounced show grins ?

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Roda Rising Star
Roda
Posted

Yep, I have hashimotos disease. I was diagnosed with it in 2000. Probably had celiac then and just didn't know it.

Skylark Collaborator
Skylark
Posted

I have Hashimoto's thyroiditis as well.

mushroom Proficient
mushroom
Posted

Psoriatic arthritis here.

bluebonnet Explorer
bluebonnet
Posted

hypothyroid for me ... diagnosed at 19 years old with it. and i agree with roda, i probably had celiac back then but just didn't know it.

Looking for answers Contributor
Looking for answers
Posted

I also have been diagnosed with sjpogrens...however vie never had a symptom. I'm hoping going gluten free stopped it I it's track.

  • 2 weeks later...
MsModelSara Rookie
MsModelSara
Posted

I have Hashimoto's Thyroiditis too...probably caused by my gluten sensitivity

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kayo Explorer
kayo
Posted

RA and Sjogrens. Gluten and soy free has almost eliminated the Sjogrens.

  • 4 months later...
Pippi13 Newbie
Pippi13
Posted

Hi! I know this question was posted several months ago, but I'm new here & just saw it.

I also have another autoimmune disease - one I didn't see listed among the other replies. I have Guillian-Barre. That's a terribly painfull & crippling autoimmune disease. I was in a wheelchair for several years because of that. After my celiac diagnosis & my new gluten free lifestyle, my GB has gotten much better. I'm even walking again! :)

Additionally, my "mystery anemia" has healed, & I haven't had a blood transfusion in nearly a year.

My biggest problem now is accidental gluten ingestion.

Although I read all ingredient labels, (as we all know) gluten hides under many false names.

Other times, I was accidentally "glutenised" by cross-contamination. Hence, I only eat food from my own kitchen now. Restaraunts are horrible cross-contaminators, as are the kitchens of friends & relatives - even when they try to be careful, & think they've decontaminated surfaces, they really don't know how to do that correctly.

dwillia75 Newbie
dwillia75
Posted

Hi. I have Hashimoto's and Raynaud's syndrome.

catarific Contributor
catarific
Posted

I have Hashimoto's Thyroiditis too. Had it for years - never need thyroid replacement though until I hit my thirties. Even to this day, I take a moderate dose. Always had constipation issues as a child and teenager - but I do not think when I was that young that people even attributed it to anything but not eating enough ruffage or vegetables. :(

chasbari Apprentice
chasbari
Posted

Rheumatoid Arthritis, Sjogren's Syndrome, high Lupus indicators, Reynaud's in addition to Celiac. All the other have responded positively to strict gluten free.

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    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      Am I celiac or not?

      By trents · Posted

      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Am I celiac or not?

      By trents · Posted

      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Okay, that makes sense - so based off of the 90% odds that it is positive, it’s worth switching to fully gluten-free? How strict do I need to be with cross-contamination, handling, etc. Is it something that can go by feel, for instance if I feel okay making my family sandwiches and handling the bread as opposed to eating it, or is it something that is causing silent damage even if I feel fine? Also, do I make it clear to my rheumatologist and other medical providers that I am celiac? Or will they veto that due to negative endoscopy? Thanks again for the help!
    • Scott Adams
      Am I celiac or not?

      By Scott Adams · Posted

      If you look at the article that I shared you will notice that "The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease," so your results indicate that you very likely have celiac disease, especially if you also have symptoms while eating gluten that go away when you stop eating it (although many celiacs don't have obvious symptoms).
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