Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice

Bella001

By Bella001
in Coping with Celiac Disease

Recommended Posts

Bella001 Explorer
Bella001
Posted

Hello!

I've been gluten free for nearly two years. I've become more and more concerned about a reaction to food to the point I'm avoiding things I may be able to eat. Can somebody please ease my mind or confirm my fears about what I may eat? I keep eating the same stuff day after day and it's getting old!

Here are my foods of concern:

Pickles, Boar's Head. I know they say all their stuff is gluten free but it has vinegar, that is my concern.

Sauerkraut-Boar's Head in a bag.

Rum, I use to drink Malibu and haven't since. I only drink red wine now. I cannot drink vodka, it kills my stomach!

I feel like all I eat is chicken, fish, red meat, fruit, and veggies! Please give me some advice!

P.S. I cannot have nuts, eggs, or dairy either!

Thanks so much!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

I don't know for certain about Boar's Head but I can say they are a very reputable company and have always been quite forthcoming with information. I'm sure if you called they would let you know if they use distilled vinegar or another type that is gluten free. They make the best sauerkraut that you can buy in a store, I'd hate to realize I have to give it up. I quit drinking years ago so I wouldn't know a thing about that other than the fact that I can't have a beer with my brother when I visit home.

Sweetea888 Newbie
Sweetea888
Posted

I was diagnosed with celiac disease at the end of May in 2006. When I had been gluten free for about two years (about the same place you are now), I had a similar sort of meltdown where I wanted to cry every time I went to a restaurant, went to the grocery store or was invited to a friend's house to eat.

But, you can get past this. There are many, many sources available now where you can figure out what you can eat and be SURE you are not getting any gluten. First, WalMart (and Sam's Club) have very clearly marked gluten-free products, for instance. You didn't say what grocery stores are near you, but Kroger and several other national chains have pretty good gluten free products. Also, a lot of Indian and Thai foods are gluten free.

You seem to be concerned about vinegar...there is a lot of conflicting information about there about vinegar. I feel more comfortable using apple cider vinegar and staying away from white vinegar, but most sources say it is o.k. in the United States. In any event, I try to stick with pickles that the company says are o.k. Vlasic and Mt. Olive both have a lot of gluten free pickles...check their websites or email or call them. Also www.thatpickleguy.com has an online store and the pickles there are all gluten free. I have never had any problem with any Boar's Head meats, cheese or any other of their products...and I"m pretty sensitive.

I eat a lot of shrimp and fish, but I also cook turkey breast and turkeyloins. I get really, really tired of chicken. I can't have pork or beef because of a tick bite allergy problem, so I feel your pain on being limited. There are a number of refried beans that are gluten free and most corn tacos and taco shells are gluten free. There are also gluten free corn tortillas, and with corn and rice and all the other ingredients, a lot of Mexican made at home is good and inexpensive. There are also a lot of salsas that are gluten free.

Just recently, Betty Crocker has come out with several products that make having dessert less expensive, easier and delicious...now there are cake mixes, frostings, and chocolate chip cookies that are clearly marked gluten free. Also, both Rice Krispies and

and most of the Chex (except Wheat, of course) are now gluten free.

HOpe this helps. Don't get discouraged. There is a LOT of information available online.

mamaw Community Regular
mamaw
Posted

All Boar's Head deli meats are labeled as well as Dietz & Watson deli meats. Both excellent !.

Plain old Heinz vinegars are gluten-free except for Malt vinegar....

I make our homemade sauerkraut but to date I have never seen kraut that wasn't okay to eat. They do put perservatives in bought kraut...usually kraut is just cabbage & salt....I have eaten bagged silver floss..

hth mamaw

Jestgar Rising Star
Jestgar
Posted

Also, both Rice Krispies and

and most of the Chex (except Wheat, of course) are now gluten free.

HOpe this helps. Don't get discouraged. There is a LOT of information available online.

The brown rice Krispies, and some of the Chex - be sure to read the label!

lynnelise Apprentice
lynnelise
Posted

Rum is made from distilled sugar cane so it is safe to drink!

Metoo Enthusiast
Metoo
Posted

Rum is made from distilled sugar cane so it is safe to drink!

I drink clear rum like Malibu and Heaven Hill.

I clearly cannot have vodka it works a number on me, its not good. I really enjoyed vodka too, but oh well it doesn't like me now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/ Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and...
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

      Ijmartes71 I son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties...
    3. cristiana
      - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Just to say that I too was hesitant to come off dairy products completely @dsfraley. Milk, yoghurt and soft cheeses definitely caused bloating. This bloating gave me rib and pelvic pain, and I remember the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu. Milk, yoghurt and soft cheeses also...
    4. trents
      - trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Yes, that is the suggestion.
    5. Wheatwacked
      - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      Anyway, I have no problem with grass fed milk other than the price. Maybe I should move to Ireland or New Zealand. They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week. A year ago I had over ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,562
    • Most Online (within 30 mins)
      7,748
    Hannah Kelch
    Newest Member
    Hannah Kelch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By knitty kitty · Posted

      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Second chance

      By Mari · Posted

      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By cristiana · Posted

      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By trents · Posted

      Yes, that is the suggestion.
    • Wheatwacked
      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

      By Wheatwacked · Posted

      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.