Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


Bella001

Recommended Posts

Bella001 Explorer

Hello!

I've been gluten free for nearly two years. I've become more and more concerned about a reaction to food to the point I'm avoiding things I may be able to eat. Can somebody please ease my mind or confirm my fears about what I may eat? I keep eating the same stuff day after day and it's getting old!

Here are my foods of concern:

Pickles, Boar's Head. I know they say all their stuff is gluten free but it has vinegar, that is my concern.

Sauerkraut-Boar's Head in a bag.

Rum, I use to drink Malibu and haven't since. I only drink red wine now. I cannot drink vodka, it kills my stomach!

I feel like all I eat is chicken, fish, red meat, fruit, and veggies! Please give me some advice!

P.S. I cannot have nuts, eggs, or dairy either!

Thanks so much!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I don't know for certain about Boar's Head but I can say they are a very reputable company and have always been quite forthcoming with information. I'm sure if you called they would let you know if they use distilled vinegar or another type that is gluten free. They make the best sauerkraut that you can buy in a store, I'd hate to realize I have to give it up. I quit drinking years ago so I wouldn't know a thing about that other than the fact that I can't have a beer with my brother when I visit home.

Sweetea888 Newbie

I was diagnosed with celiac disease at the end of May in 2006. When I had been gluten free for about two years (about the same place you are now), I had a similar sort of meltdown where I wanted to cry every time I went to a restaurant, went to the grocery store or was invited to a friend's house to eat.

But, you can get past this. There are many, many sources available now where you can figure out what you can eat and be SURE you are not getting any gluten. First, WalMart (and Sam's Club) have very clearly marked gluten-free products, for instance. You didn't say what grocery stores are near you, but Kroger and several other national chains have pretty good gluten free products. Also, a lot of Indian and Thai foods are gluten free.

You seem to be concerned about vinegar...there is a lot of conflicting information about there about vinegar. I feel more comfortable using apple cider vinegar and staying away from white vinegar, but most sources say it is o.k. in the United States. In any event, I try to stick with pickles that the company says are o.k. Vlasic and Mt. Olive both have a lot of gluten free pickles...check their websites or email or call them. Also www.thatpickleguy.com has an online store and the pickles there are all gluten free. I have never had any problem with any Boar's Head meats, cheese or any other of their products...and I"m pretty sensitive.

I eat a lot of shrimp and fish, but I also cook turkey breast and turkeyloins. I get really, really tired of chicken. I can't have pork or beef because of a tick bite allergy problem, so I feel your pain on being limited. There are a number of refried beans that are gluten free and most corn tacos and taco shells are gluten free. There are also gluten free corn tortillas, and with corn and rice and all the other ingredients, a lot of Mexican made at home is good and inexpensive. There are also a lot of salsas that are gluten free.

Just recently, Betty Crocker has come out with several products that make having dessert less expensive, easier and delicious...now there are cake mixes, frostings, and chocolate chip cookies that are clearly marked gluten free. Also, both Rice Krispies and

and most of the Chex (except Wheat, of course) are now gluten free.

HOpe this helps. Don't get discouraged. There is a LOT of information available online.

mamaw Community Regular

All Boar's Head deli meats are labeled as well as Dietz & Watson deli meats. Both excellent !.

Plain old Heinz vinegars are gluten-free except for Malt vinegar....

I make our homemade sauerkraut but to date I have never seen kraut that wasn't okay to eat. They do put perservatives in bought kraut...usually kraut is just cabbage & salt....I have eaten bagged silver floss..

hth mamaw

Jestgar Rising Star

Also, both Rice Krispies and

and most of the Chex (except Wheat, of course) are now gluten free.

HOpe this helps. Don't get discouraged. There is a LOT of information available online.

The brown rice Krispies, and some of the Chex - be sure to read the label!

lynnelise Apprentice

Rum is made from distilled sugar cane so it is safe to drink!

Metoo Enthusiast

Rum is made from distilled sugar cane so it is safe to drink!

I drink clear rum like Malibu and Heaven Hill.

I clearly cannot have vodka it works a number on me, its not good. I really enjoyed vodka too, but oh well it doesn't like me now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.