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At My Wits End...

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Posted 03 June 2012 - 06:54 AM

I used to play volleyball and would love to get back to that. i tore my ACL 2 months ago so unfortunately I can't be very active. I just need to keep telling myself that this is a disease with very powerful symptoms. I have to disconnect the ill feelings with the negative thoughts. I have to accept that this disease has caused a lot of pain and will take a long time to heal, but I will heal. I have to give myself space and allow myself to feel sick. For too long I have turned it around in this way: 1. I feel sick, 2. well there is no reason to have a stomachache, 3. do i feel sick because there is something wrong with my life? 4. Well lets look at all the things that could be wrong, 5. hmm, maybe my job, maybe my life, etc. etc. you get the point, until I reach the lowest, scariest thoughts and have a panic attack.
Being a mental health specialist I am sure you understand these mind games.
I still feel nausea this morning but am in better spirits. I think I can get through the day without a panic because I know I must have gotten glutened on friday and am still dealing with it. Thanks for listening!
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TTG positive, Biopsy positive, April '12
Elevated ALT, Bilirubin, low Vitamin D
Peripheral neuropathy, GI issues, joint pain

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Posted 03 June 2012 - 07:15 AM

When you are healing, you feel lousy so often that it is very difficult to tell whether you got glutened, imagined you got glutened, or are reacting to something else altogether. We have all been there! It sometimes seems like this is going to be your life now, waiting for the "next time" this happens.

Don't worry. It won't be your life. But it will probably be your life for at least another 6 months or so. Your best bet is to ditch ALL processed foods (even gluten-free ones) and dairy, for now. Don't eat out either. Hard, I know, but the risk of cross contamination is so great, and the effects of gluten, or even difficult to digest foods, like dairy or soy, are going to wreak havoc on your gut. Think of it as if you just had a bad case of the stomach flu. Remember how you would ease back into eating "real" food- the first day or two you stuck to really bland, easy to digest stuff?

Well, that is how your gut feels right now. It has been ravaged. It is so sore and wounded, and when you ask it to digest something difficult or harsh, like dairy or alcohol or fried stuff...chances are you are going to feel it!

And yes, the gut-brain connection is HUGE. If your guts are messed up, your mind very well might be too.

But it gets better, I promise! Just stick to wonderful whole foods for now that your mind and body will both benefit from. Make sure you are getting adequate nutrition, take supplements if you need them. And rest. Relax! You have the rest of your life to feel better, and you will!
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