Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hoping For Help


mkpesho

Recommended Posts

mkpesho Newbie

A year ago I visited my Dr. because of excessive stomach pain and gas. She said it may be a lot of things and prescribed meds. She mentioned gluten allergy and IBS among some other things after I pressed for what the


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

I attended a celiac forum last Saturday in Palo Alto, and the topic of cross-reactivity was discussed extensively. While there are some people on this forum who object to this word (or maybe even its existence), it has been a topic covered at many nationwide conferences during the past few years; and, personally, I have accepted it as a very viable theory.

How it was described on Saturday is that when a person's body has been battling either gluten sensitivity or celiac disease, its antibodies continue firing for possibly years after a gluten-free diet is adopted. Our immune systems can become confused so that the antibodies begin mis-identifying the molecules of other foods as gluten molecules, and your body will have the same type of reaction. It is sometimes necessary to remove the most common cross-reactive foods from one's diet for 2-3 months while the auto-immune system calms down and stops mis-identifying molecules. Remember, you were sick for quite a while, and your system became very adept at attacking gluten molecules (and your own body). For many people on this forum who have discussed this topic, oftentimes the culprit is one of the following: dairy, soy, oats, rice, nightshade vegetables, and salicylates. At the celiac forum on Saturday, other foods were mentioned, such as coffee, but I haven't seen coffee mentioned here on this forum as being a problem.

After being glutened last year, I began to react to rice exactly as I normally do to gluten, so I removed it from my diet for four months, and after that time my body no longer mis-identified it as gluten. So, personally, I believe this theory to be completely plausible. Many people on this forum have described similar reactions to non-gluten-containing foods and have had success reintroducing them after several months.

Perhaps others will jump in and list foods that have caused them reactions while their guts were healing.

GottaSki Mentor

I have multiple food intolerances that developed &/or worsened after I was gluten-free.

My first thought is your symptoms came on suddenly, so has there been any items that are new to your diet - change of brands or ingredients in things you regularly consume.

If not, you might want to consider other intolerances. Mine fall within the foods that have high Lectin content, while many other folks have problems with Salicylate foods.

The only way to determine intolerance is elimination - either one food at a time or remove all suspect foods for some time and then add them back in one at a time with a week or so between trials.

If you don't already have one - a food log can help identify problems.

Another thought I had when I read your post was SIBO (Small Intestine Bacteria Overgrowth). It was one of the things my Celiac Doc suggested when I had a sudden return of symptoms after nine months of good health. An internet search regarding "SIBO" might be worth a look.

Good luck to you :)

~**caselynn**~ Enthusiast

Just a thought, do you still have your gallbladder? A lot of times gallbladder disease is the culprit of abd issues. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,334
    • Most Online (within 30 mins)
      7,748

    ShadowLoom
    Newest Member
    ShadowLoom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
    • trents
      Autoimmune diseases tend to cluster. Many of them are found close together on the chromosomes. 
    • Rejoicephd
      Just giving another update... I was referred to rheumatology, and they suspect that I may also be dealing with fibromyalgia (it has not been formally diagnosed, but just suggested at this point).  So, I am continuing with the anti-inflammatory diet and vitamins and still working to keep getting rid of all these hidden gluten sources, but I also do have another possible explanation for some of the issues that I'm dealing with.
    • Scott Adams
      I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could salvage the results of your tTG-IgA test, as long as you were eating lots of gluten beforehand.
×
×
  • Create New...