Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hoping For Help


mkpesho

Recommended Posts

mkpesho Newbie

A year ago I visited my Dr. because of excessive stomach pain and gas. She said it may be a lot of things and prescribed meds. She mentioned gluten allergy and IBS among some other things after I pressed for what the


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

I attended a celiac forum last Saturday in Palo Alto, and the topic of cross-reactivity was discussed extensively. While there are some people on this forum who object to this word (or maybe even its existence), it has been a topic covered at many nationwide conferences during the past few years; and, personally, I have accepted it as a very viable theory.

How it was described on Saturday is that when a person's body has been battling either gluten sensitivity or celiac disease, its antibodies continue firing for possibly years after a gluten-free diet is adopted. Our immune systems can become confused so that the antibodies begin mis-identifying the molecules of other foods as gluten molecules, and your body will have the same type of reaction. It is sometimes necessary to remove the most common cross-reactive foods from one's diet for 2-3 months while the auto-immune system calms down and stops mis-identifying molecules. Remember, you were sick for quite a while, and your system became very adept at attacking gluten molecules (and your own body). For many people on this forum who have discussed this topic, oftentimes the culprit is one of the following: dairy, soy, oats, rice, nightshade vegetables, and salicylates. At the celiac forum on Saturday, other foods were mentioned, such as coffee, but I haven't seen coffee mentioned here on this forum as being a problem.

After being glutened last year, I began to react to rice exactly as I normally do to gluten, so I removed it from my diet for four months, and after that time my body no longer mis-identified it as gluten. So, personally, I believe this theory to be completely plausible. Many people on this forum have described similar reactions to non-gluten-containing foods and have had success reintroducing them after several months.

Perhaps others will jump in and list foods that have caused them reactions while their guts were healing.

GottaSki Mentor

I have multiple food intolerances that developed &/or worsened after I was gluten-free.

My first thought is your symptoms came on suddenly, so has there been any items that are new to your diet - change of brands or ingredients in things you regularly consume.

If not, you might want to consider other intolerances. Mine fall within the foods that have high Lectin content, while many other folks have problems with Salicylate foods.

The only way to determine intolerance is elimination - either one food at a time or remove all suspect foods for some time and then add them back in one at a time with a week or so between trials.

If you don't already have one - a food log can help identify problems.

Another thought I had when I read your post was SIBO (Small Intestine Bacteria Overgrowth). It was one of the things my Celiac Doc suggested when I had a sudden return of symptoms after nine months of good health. An internet search regarding "SIBO" might be worth a look.

Good luck to you :)

~**caselynn**~ Enthusiast

Just a thought, do you still have your gallbladder? A lot of times gallbladder disease is the culprit of abd issues. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,211
    • Most Online (within 30 mins)
      7,748

    blogcommentsieuviet
    Newest Member
    blogcommentsieuviet
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.