Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hoping For Help


mkpesho

Recommended Posts

mkpesho Newbie

A year ago I visited my Dr. because of excessive stomach pain and gas. She said it may be a lot of things and prescribed meds. She mentioned gluten allergy and IBS among some other things after I pressed for what the


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

I attended a celiac forum last Saturday in Palo Alto, and the topic of cross-reactivity was discussed extensively. While there are some people on this forum who object to this word (or maybe even its existence), it has been a topic covered at many nationwide conferences during the past few years; and, personally, I have accepted it as a very viable theory.

How it was described on Saturday is that when a person's body has been battling either gluten sensitivity or celiac disease, its antibodies continue firing for possibly years after a gluten-free diet is adopted. Our immune systems can become confused so that the antibodies begin mis-identifying the molecules of other foods as gluten molecules, and your body will have the same type of reaction. It is sometimes necessary to remove the most common cross-reactive foods from one's diet for 2-3 months while the auto-immune system calms down and stops mis-identifying molecules. Remember, you were sick for quite a while, and your system became very adept at attacking gluten molecules (and your own body). For many people on this forum who have discussed this topic, oftentimes the culprit is one of the following: dairy, soy, oats, rice, nightshade vegetables, and salicylates. At the celiac forum on Saturday, other foods were mentioned, such as coffee, but I haven't seen coffee mentioned here on this forum as being a problem.

After being glutened last year, I began to react to rice exactly as I normally do to gluten, so I removed it from my diet for four months, and after that time my body no longer mis-identified it as gluten. So, personally, I believe this theory to be completely plausible. Many people on this forum have described similar reactions to non-gluten-containing foods and have had success reintroducing them after several months.

Perhaps others will jump in and list foods that have caused them reactions while their guts were healing.

GottaSki Mentor

I have multiple food intolerances that developed &/or worsened after I was gluten-free.

My first thought is your symptoms came on suddenly, so has there been any items that are new to your diet - change of brands or ingredients in things you regularly consume.

If not, you might want to consider other intolerances. Mine fall within the foods that have high Lectin content, while many other folks have problems with Salicylate foods.

The only way to determine intolerance is elimination - either one food at a time or remove all suspect foods for some time and then add them back in one at a time with a week or so between trials.

If you don't already have one - a food log can help identify problems.

Another thought I had when I read your post was SIBO (Small Intestine Bacteria Overgrowth). It was one of the things my Celiac Doc suggested when I had a sudden return of symptoms after nine months of good health. An internet search regarding "SIBO" might be worth a look.

Good luck to you :)

~**caselynn**~ Enthusiast

Just a thought, do you still have your gallbladder? A lot of times gallbladder disease is the culprit of abd issues. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,492
    • Most Online (within 30 mins)
      7,748

    K Zappe
    Newest Member
    K Zappe
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.